Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

weird symptom?


cstark

Recommended Posts

cstark Enthusiast

Over the past month or so, I have been have a fuzzy feeling in my left ear canal. The best I can describe is it feels like there is a bug in my ear, but when ear is checked, no bug but the fuzzy stays.  Any ideas?  Or is this one of those strange neurological symptoms from gluten?  Please don't tell me you need to get ti checked out, because all the doctors will say is "There's nothing wrong, everything's normal." BLAH!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



frieze Community Regular

could be from your neck, or it is, literally, in your head. perhaps a scan is needed.

GFinDC Veteran

Maybe its trapped water in your ear?  Or maybe an ear infection or allergic reaction to something.  Hopefully you aren't a fan of the Braindead TV show... :)

ironictruth Proficient

I have a pain in my ear that is actually referred from my swollen thyroid. But my ears sometimes feel full, I think it is related to my brain pressure.

Who checked it out? Primary doc or ENT? Were you glutened recently? 

Have you seen a neuro? We have celiac and MS in my family so I hit the MRI pretty quickly when the weird neurological stuff showed up.

 

cstark Enthusiast

Okay, everybody.  Here's the thing.  I have been brain wave tested, neuro-tested, thyroid tested, and ALL the doctors said everything is "normal".  Whatever that is now. One thing I now know is that I have a brain.  YIPPEE! :) 

cristiana Veteran

Hi cstark

I have a buzzing sensation in my right ear/sensation of fullness, since 2013 I think.

According to my ENT it is a kind of tinnitus but at times it really feels as if something is actually buzzing around at the back of my head, if that makes sense? I too have been MRI'd to check but there was nothing there - apart from a brain, I am glad to say!

Sometimes there is no noise at all.  But when it happens I would say it affects my hearing to some degree, I find myself asking people to repeat themselves!

My observations is that it happens more when I eat a lot of milk or yoghurt so dairy must be a contributing factor (although hard cheese doesn't seem to have the same effect) and also when it is playing up my head position can make it worse.  I notice that it is worse if I hold the the receiver of a phone up to my ear for any length of time and I am hunched over the phone. Absolutely no idea why.  

I don't think it is anything to do with gluten - it started up in the autumn after I hurt my neck badly lifting my son above my head in July  (bad idea, he was seven at the time). Apparently my C-spine alignment is poor so perhaps it is some sort of neck nerve impingement as GFinDC's post might be suggesting.

 

 

 

GFinDC Veteran

I get increased ringing in my ears with some food reactions.  I suppose your ear symptom could be related to B vitamins deficiency?  Just a guess.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    2. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    3. - Aretaeus Cappadocia replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

    4. - Peace lily commented on Scott Adams's article in Latest Research
      2

      New Study Reveals How the Immune System Learns Which Foods Are Safe to Eat

    5. - nancydrewandtheceliacclue replied to nancydrewandtheceliacclue's topic in Super Sensitive People
      12

      Celiac flare years after diagnosis

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,061
    • Most Online (within 30 mins)
      10,442

    Francisco1007
    Newest Member
    Francisco1007
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia and @Russ H thank you both for your helpful advice and information. I haven't seen a GI in years. They never helped me aside from my inital diagnosis. All other help has come from my own research, which is why I came here. I will be even more careful in the future. 
    • Aretaeus Cappadocia
      @nancydrewandtheceliacclue, you are welcome. After looking at this thread again, I would like to suggest that some of the other comments from @Russ H are worth following up on. The bird-bread may or may not be contributing to what you are experiencing, but it seems unlikely to be the whole story. If you have access to decent healthcare, I would write down your experiences and questions in outline form and bring this to your Dr. I suggest writing it down so you don't get distracted from telling the Dr everything you want to say while you have their attention.
    • Aretaeus Cappadocia
      @Russ H, I partly agree and partly disagree with you. After looking at it again, I would say that the slick graphic I posted overestimates the risk. Your math is solid, although I find estimates of gluten in white bread at 10-12% rather than the 8% you use. Somewhat contradicting what I wrote before, I agree with you that it would be difficult to ingest 10 mg from flinging bread.  However, I would still suggest that @nancydrewandtheceliacclue take precautions against exposure in this activity. I'm not an expert, I could easily be wrong, but if someone is experiencing symptoms and has a known exposure route, it's possible that they are susceptible to less than 10 mg / day, or it is possible that there is/are other undetected sources of exposure that together with this one are causing problems. At any rate, I would want to eliminate any exposure until symptoms are under control before I started testing the safety of potentially risky activities. Here is another representation of what 10 mg of bread would look like. https://www.glutenfreewatchdog.org/news/wp-content/uploads/2019/10/10mgGlutenCrumbsJules.jpg Full article that image came from: https://www.glutenfreewatchdog.org/news/what-does-10-mg-of-gluten-look-like/
    • nancydrewandtheceliacclue
      @Aretaeus Cappadocia thank you for your reply and the link, that is very helpful to get a visual of just how small of an amount can cause a reaction. I know I am not consuming gluten or coming into contact with gluten from any other source. I will stop touching/tossing bread outside! My diet has not changed, and I do not have reactions to the things I am currently eating, which are few in number. My auto immune reaction just seems so severe. The abdominal pain is extreme. It takes a lot out of me. I guess I will be this way for the rest of my life if I ever happen to come into contact with gluten? I appreciate the help. 
    • Jmartes71
      Thankyou I did find out the Infectious disease is the route to go rather than dermatologist. I did reach out to two major hospitals and currently waiting on approval for one of them in Infectious Diseases to call me. I also did have implants ( I didn't know and sense not properly in my medical. Neither did surgeon)in 2006 and there was a leak 2023 during the same time I was dealing with covid, digestive issues, eyes and skin.Considering I " should  be fine" not consuming gluten/wheat, taking vitamins for sibo and STILL feeling terrible.It has to be parasites. I also take individual eye drops prescribed, could there be an issue there? Anyways my pcp thinks I need therapy because again they don't acknowledge my digestive issues because in my records it shows im fine, hintz the reason I had to go back to bay area hospital:(  I thought skin issues maybe sibo related but I feel and have seen and seriously trying not to think about it because it's disgusting. 
×
×
  • Create New...