Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Think this is coeliac?

thomas1998

Recommended Posts

thomas1998 Newbie
thomas1998
Posted

18 year old male. All of this kicked off back in August where I had a straight 2 weeks of intense abdominal discomfort - bloating, cramps, extreme fatigue. I went to the doctors and she just said it was "probably a stomach virus" as by then most of the symptoms had gone away. I was fine for a few weeks, and then it came back again. I did a blood test (not sure of what, I would assume routine) + a stool test for faecal calprotectin which came back fine. Then my symptoms went away again, and then came back again. That's been the story of the last two months, waves of stomach/bowel/fatigue issues. Right now I'm awaiting results for blood tests on coeliac and thyroid. My doctor told me if these two tests come back normal then I have "IBS-A". Also, I'm not sure if the genetic component is significant but my grandmother has coeliac disease, and I think a few of my aunties and uncles do aswell, or at least some kind of lactose allergy.

 

Full list of symptoms I've had:

Stomach bloating/cramps

Lots and lots of burping/farting

Alternating constipation/diarrhea, very sporadic bowel movements (e.g 2-3 days of nothing, then a day of 4 bowel movements of loose diarrhea. sorry for TMI!) eventually ended up having pain I got checked for and found out I had piles. Also occasionally have mucus in stool.

Tiredness in limbs, particularly my legs feel a bit wobbly and fatigued most of the time.

Fairly regular headaches

Weight has yoyo'd up and down over the last few months

Pain in my joints and limbs (left knee when I walk, right elbow right now for no reason, woke up this morning with random pains shooting up my arms for 2 minutes then it went)

Weird 'circulation' issues like tingling in my hands and feet when I walk up a flight of stairs

And probably more I can't remember.

 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


cyclinglady Grand Master
cyclinglady
Posted

Hi Thomas!  

The best way to determine whether or not you have celiac disease is to get tested:

Open Original Shared Link

It is very important that you continue to consume gluten daily until all testing is complete. 

Your symptoms?  Hard to say as there are over 300 of them attributed to celiac disease.  Be sure to get a copy of your test results.  Hopefully, they ordered a full blood panel and not just the screening TTG IGA.  

I wish you well.  

 

thomas1998 Newbie
thomas1998
Posted
  • Author

Hi, I phoned today and apparently the test takes about 3 weeks to come back, I got it taken a week ago. Hopefully because that seems like a long time it's a full panel. 

thomas1998 Newbie
thomas1998
Posted
  • Author

I have been told the results were normal, don't really know what to do now.

cyclinglady Grand Master
cyclinglady
Posted

Well, this is what I would recommend -- get copies of your tests.  Often, doctors just order the TTG IgA and the IgA deficiency test (a control test in this case).  The TTG is really good, but not perfect.  I should know, as I never have tested positive on the TTG tests even in follow-up testing.  Let us know exactly which tests were taken and what the ranges were.  

What about your thyroid?  Was that normal?  What about Lyme Disease (I know nothing really about it, by many members have had it).  

Open Original Shared Link

Keep us posted!  Hang in there.  Something is wrong!  

 

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442
    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Edy's and Dreyer's ice cream

      By knitty kitty · Posted

      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      Edy's and Dreyer's ice cream

      By Aretaeus Cappadocia · Posted

      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      EDG 3 years ago fine, now it shows focal villous blunting,

      By Aretaeus Cappadocia · Posted

      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...