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Hey guys. So I was newly diagnosed with Celiac last month and was recommended to this site by my doctor for your helpful guidance to those struggling with this diagnosis. I just had some questions about some concerning symptoms that I have been having that will not go away. Any help would be greatly appreciated.

I am a 23 year old very active male. I have been gluten free for over a month now eating a very strict diet. I have had extremely fatigued muscles with shaking in the hands. Its noticeable anytime I try to do something that involves fine motor skills.  Also I have been very exhausted with extreme hunger cravings, especially sugary item (Despite eating a high protein, veggie diet and eating more frequently than I have in the past). The shaking concerns me and I had my resting glucose levels and resting thyroid levels tested with negative results. I am at a loss at what is causing this and it is pretty scary at times.  Anyone have similar symptoms that won't subside or have any idea of what is causing it? I also had my B vitamin levels checked along with calcium and they both came back normal.

The shakiness is visible slightly and was brushed off by my physician. I just want to feel at least half way normal again as my social life and schoolwork have taken major hits due to feeling sickly.





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Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

Hi Chris and welcome to the forum :) 

First, your doctor gave you good advice, lot's of support and first hand experience is on tap here. Hope you find it as useful as I have, am sure you will.

Second, one month in is still VERY EARLY DAYS. Your system has been under attack for a long time and you can expect a bumpy ride for next few months.

Your symptoms are in NO WAY unfamiliar. I was convinced I had diabetes and had numerous checks because I would experience exactly the same weakness, shaking etc. Energy levels were all over the place, feet felt permanently cold etc. This messes with you in a variety of creative ways. I don't know how much they talked about how celiac can affect you but check out mountain man:


There's a lot to get your head round starting out so check this thread:

for some further info, especially on the diet and how to avoid slip ups.

I would take a quality multi vitamin whatever the levels say, I take a good B one and a multi vitamin too. You may want to google some of the vegetarian threads on here to make sure your getting the diet right there as well. At the moment and for some time to come you won't be getting the full nutrient value from your food so you need to eat as well as possible. 

The good news is that you have a lot of healing ahead of you and you should feel a hell of a lot better once it takes place!

Best of luck! 



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The shakes is probably a nutrient deficiency , we get them with the disease due to malabsorbtion issues from damaged intestines. Most Gluten foods are also enriched with extra b-vitamins, niacin etc which probably helped cover it up previously. Common ones are Magnesium, Iron, B-Vitamins. Iron, Calcium, D, E, zinc, and a few others. I suggest going ahead with a supplement. Nerve issues are common with magnesium and B-vitamins. I use a liquid one form Liquid health 2 in fact due to how they are easy to absorb and no more pills, Stress & Energy, and Neurological Support.   Magnesium I use on rotation both Doctors Best chelated in powdered form, and Natural Vitality CALM which can be a bit harsh on the gut do to it being a citrate form.  And just cause your "Normal" in B-vitamins does not your where you need to be with them. You can not overdose on them for one and I tend to have to take more then the normal dose to feel normal and my levels are quite high with them normally. Everyone is different but just saying trying a bit might help.

We normally suggest a whole foods diet only for the first few months, no dairy or oats to jump start your healing. Also minimize contamination issues. I will share a link with some common foods, places to get them, etc. Along with a link showing stuff I take.  




Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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