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  • Recent Activity

    1. - Jane07 replied to Jane07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      any advice would be helpful

    2. - lizzie42 posted a topic in Parents, Friends and Loved Ones of Celiacs
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      Second child with Celia

    3. - CJF posted a topic in Traveling with Celiac Disease
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      European travel with Celiac Disease

    4. - RMJ replied to Jane07's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
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      any advice would be helpful


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  • Posts

    • Michelle Amirault-Packard
    • Jane07
      they gone down alot since my diagnosis .  the ttg test was done in a hospital it still not in the normal range 2 yrs later. the last time went up by the one before a little. maybe it just takes more time really trying to be careful i need to look at everything i eat to make sure 
    • lizzie42
      After my 3 year old daughter's diagnosis, we all got tested. My 5 year old son also came back positive with number 12x the upper limit.  We will confirm with another tTG and the other 2 tests in the panel.  He has zero symptoms that I have noticed. Maybe occasionally vomiting. He does have asthma. He's kind of an a**hole sometimes but also he's 5. He has SO much energy. Like miles and miles of biking, running, gymnastics. Never stops. Eats great, normal growth. It was comparing my daughter to him that made me push to figure out what was wrong with her!  Is it possible for a tTG test to just be totally wrong? 
    • CJF
      I'm heading to the UK for a vacation the end of this month on a tour with Road Scholar. I haven't been out of the US since my diagnosis so I'm a little concerned about exposure to gluten during my travels. Most of our meals are provided by the tour. Either the hotels we are staying at, or places we will visit. Road Scholar is aware of my dietary needs as well. Any helpful hints about navigating the restaurants in England is greatly appreciated. Also are there any medications out there to help mitigate the effects of exposure to gluten? Thanks in advance.
    • RMJ
      Were the two tests done by the same lab? Do the tests have the same normal ranges?  Each test manufacturer uses their own system of units when reporting results. Have your results gone down at all since diagnosis?  Are you sure you’re gluten free? Do you eat at restaurants? I would recommend that you take a really good look at your gluten free diet. It took six years for me to get all my results down to the normal range (I was originally positive for TTG IgA, TTG IgG, DGP IgA, DGP IgG and EMA). I started just avoiding wheat, rye and barley.  My results came down but one was still high.  Then I made sure any processed foods were labeled gluten free.  My results came down more but one was stubbornly positive.  Then I would only eat processed foods if certified gluten free or from a manufacturer with an excellent reputation among those with celiac disease.  All my results were finally normal. My results went back up a little when I started doing a lot of baking with a reputable but not certified gluten free flour.  When I switched to certified gluten free flour my results went back down to normal.  
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