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PJP

Hello new here - need advice

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Hello,

I went to my GP yesterday about my abdominal pains that I have been having since Wednesday (still going on now). I have had issues with my adomen like this before and other symptoms and from what the doctor said and from what I've gathered its most likely celiac.

She told me that for my blood tests to work I'd need to eat gluten for two weeks and I took this advice and I also need an ultrasound. But here I after eating pizza with my pains getting worse and buscopan barley helping and struggling to type because I'm in so much pain. Sorry if it makes no sense.  

Im thinking of goung to ae tomorrow as its so bad. Any advice would br sppricatef. Im sorry this couldn't be better. Thank you. 

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2 hours ago, PJP said:

I went to my GP yesterday about my abdominal pains that I have been having since Wednesday (still going on now). I have had issues with my adomen like this before and other symptoms and from what the doctor said and from what I've gathered its most likely celiac.

She told me that for my blood tests to work I'd need to eat gluten for two weeks and I took this advice and I also need an ultrasound. But here I after eating pizza with my pains getting worse and buscopan barley helping and struggling to type because I'm in so much pain.  

Hello and welcome :)

Were you previously gluten free? For celiac blood tests to work you need to have been eating gluten for several weeks beforehand. Two weeks may not be enough for an accurate result :( It may be, people differ, but if the test is negative be aware it could be due to such a short time on gluten. 

A gluten challenge can be rough, although I found in my case that it got easier to endure as it went on (note I tested negative). If your pain is intense do go to A&E to ensure that there's not another factor at work.  

There's some info on testing here

 

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I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. 

As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. 

did you go gluten free before or after the stomach pains?

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6 hours ago, Jmg said:

I think that explains your doctors advice. I think she's thinking that with only 6 days off gluten that two weeks back on should be enough time. 

As to whether 6 days would be enough to throw a result, I honestly don't know. As far as I can work out people's reactions vary enormously. 

did you go gluten free before or after the stomach pains?

Ahh I see. After. I went to A&E and they said to go for blood tests on Tues. I've been given tablets for acid reflux as well. 

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Quote

Ahh I see. After. I went to A&E and they said to go for blood tests on Tues. I've been given tablets for acid reflux as well

I hope you're feeling better now.

When you get the test results you can post them here if you'd like some input from the members. They were really helpful with me when I was going through the diagnostic process :)

Once you've completed testing you may want to go gluten free regardless of the results as it seems as if your body is reacting strongly to it, celiac or not...

 

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On the gluten challenge you do not have to eat a ton of gluten, you cant eat mostly gluten-free, and just have half a slice of bread or a few crackers before bed and try to sleep off the worst of it. You just have to consume it daily to keep the antibodies up for the testing.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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10 hours ago, Ennis_TX said:

On the gluten challenge you do not have to eat a ton of gluten, you cant eat mostly gluten-free, and just have half a slice of bread or a few crackers before bed and try to sleep off the worst of it. You just have to consume it daily to keep the antibodies up for the testing.

I wonder if you meant "you can eat mostly gluten-free, and just have half a slice..."


Diagnosed with Celiac in 2010. Diagnosed with sleep apnea 2018.

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