Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Celiac diagnosis with numeric data and timeline for 28 year old male


l394l

Recommended Posts

l394l Newbie

2001 (12 years old) – First prescribed Omperezole for acid reflux.  Would go to nurses office during school because of nerves/ nausea

10/2012- Upper endoscopy- All looks good

05/2013- Experience severe lower left quadrant pain, constipation for first time.  Happened during boot camp—extreme stress, chronic dehydration, physical exertion.

10/2013- Colonoscopy, no biopsies taken, diverticula seen, otherwise all looks good.  Diagnosed with IBS

**Deal with intermittent constipation, diarrhea, abdominal pain for years**

01/2016- Go to Primary Dr. because I feel waves of fatigue/ sleepiness/ facial flushing/ foggy head/ memory issues at work. Still same old same old abdominal issues

            -Testosterone Free plus total blood test 248.2 (Ref range 249-836)

            -25 OH Vitamin D 19.3 ng/ml (Ref range 32-100)

06/11/16- Hospitalized for migraine—numbness in jaw, left arm, loss of vision, confusion, vomiting.

11/22/16- Go to new Gastro Doctor

            -Damidated Gliadin Abs, IgA 53H (Ref range 0-19)

            -Saccharomyces cerevisiae, IgA 42.5H (Ref range 0-24.9)

            -Saccharomyces cerevisiae, IgG 43.1H (Ref range 0-24.9)

            -Deamidated Gliadin Abs, IgG 3 (Ref range 0-19)

            -Immunoglobin A, Qn, Serum 278 (Ref range 90-386)

            -t-Tranglutaminase (tTg) IgA <2 (Ref range 0-3)

            -t-Transglutaminase (tTG) IgG <2 (Ref range 0-5)

01/26/17- Upper and lower scope/ further bloodwork

            -Gastritis, duodenitis, small internal hemorrhoids

            -Deodenal Biopsy- mildly increased intraepithelial lymphocytes

            -DQ2- Positive

            -DQ8-Negative

03/01/17 GLUTEN FREE DIET

Current symptoms: General feeling of unwellness, anxiety, nausea, diarrhea, weight loss, irritability, lack of motivation, loss of interest in pretty much everything.

My gut has always been tied to my nerves (i.e. adrenaline dump makes me vomit, job interview means diarrhea before, cheating girlfriend makes me physically sick and vomit).  I really think the current gastro symptoms persisting despite being gluten free are due to an undiagnosed anxiety issue.  I have a really stressful job and I believe the celiac diagnosis and new stressors associated with it have put my anxiety in overdrive.  Having to carefully plan meals or explain to others my new choice of diet has put me over the edge.  I am a pretty private person…and now having to speak openly with servers at restaurants about my disease or explaining to coworkers when asked about my new diet.  These new stressors have brought an underlying anxiety issue to the surface.  It has gotten bad to the point where I have to leave work because my upper stomach cramping is so bad…I can’t eat in the morning because I am so nauseous.  I wake up in the middle of the night to do diarrhea. 

I know i haven't really presented any questions that need answering...at this point, I'm just hoping to connect with someone with similar issues.  I also hoped it would be helpful to provide some numeric data of my own...many of the postings list extensive subjective symptoms without the actual test results...So I hope thats helpful.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Ennis-TX Grand Master

Yeah its like a fight or flight thing with stress, if I get stressed with a full stomach I vomit. I can tell when this is the trigger cause I just nerves get real antsy, I start pacing, then just start burping stuff up no pain, no extreme urge, just blurp and there it goes a few mouth fulls normally then done.   

PS do not eat out, eat at home and take your own meal prep boxes to work, and when invited out to eat. Play it safe, and just tell them "I have some major food allergies, just playing it safe".

Been dealing with constipation since I was a kid, they had no idea what was causing til my stuff go so bad and so many other systematic issues I thought I was dieing and running a bucket list.

Thoughts on dealing with stress, look up Liquid Health Stress & Energy and Liquid Health Neurological Support. Take 1 tbsp each 2-3 times a day before meals....works wonders as part of this disease and having damaged insides is you do not absorb the right vitamins like your b vitamins and this leads to stress, anxiety, and depression issues.   Also look at magnesium, if your dealing with constipation Natural Vitality Calm is great start off with a small dose of 1/2 tsp 1-3 times a day. Over a few weeks you can slowly step it up til you find your sweet spot where you feel great and have easy bowl movements. IF you have extremely bad reactions to the magnesium citrate in the Calm try Doctors best which is a glycinate and easier on the stomach.    You can find all of these on Luckyvitamin.com or amazon. price check and order how it works best for you.

Few helpful links

https://www.celiac.com/forums/topic/91878-newbie-info-101/

https://www.celiac.com/forums/topic/117090-gluten-free-food-alternatives-list/

https://www.celiac.com/forums/topic/116482-supplement-and-foods-you-take/

 

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...