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pschwab

Sensitivity level means...??

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My son was diagnosed with celiac a little over a year ago. Our whole house is gluten free, and we rarely go out to eat. He is in preschool and they are very careful with him. As best I can tell he has not been glutened since he went gluten free. My question is about sensitivity levels. I read this forum often and sometimes see comments like, "I'm very sensitive so what affects me might not trigger others". If he's not showing outward signs of being glutened, I'm wondering if he's doing an excellent job staying away from cross contamination or if he is being cross contaminated and we don't know. Also if he's not showing signs of being glutened, could he still be doing unknown damage to his intestines? We are super careful with him but he's three and puts toys in his mouth that I fear neighborhood kids might have touched with "gluten hands." We require anyone entering the house to wash immediately but with three siblings there are lots of kids in and out daily. When he was diagnosed his ttg levels were 300, 6 months later they were 71, a year later they were 26. He will be tested again next February. I'm just anxious since he's in such critical growing years. Any insight would be great. Thanks!

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We were stressed about this as well with our daughter.  It ended up taking 2+ years to get her to "negative" TTG levels (which then came up again at 2.5 years).  We also live in a gluten-free household and never go out to eat.  Because she started growing again, the doctors are not concerned. But as a mother, I'm always worried about it!  Just do your best and I'm sure he will continue to heal.  I've been told the younger a child is diagnosed, the more fully they are able to heal.


Mom to 2 young kids with celiac, diagnosed March 2015

*Gluten free household

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