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Does this sound like celiac?

Theatre7

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Theatre7 Newbie
Theatre7
Posted

I'll try to keep this short, and I'm seeing my doctor next week who will hopefully screen for celiac so I will know for sure, but I want to see if I'm headed in the right direction. I've had an assortment of ailments troubling me for years with no answers and I just did the 23 and me genetic testing and one of the things that came up as a slightly increased risk was celiac. I have one of the genetic variants common in celiac, so I started researching and it sounds like the possible answer. These are my symptoms: horrible constant fatigue, depression, anxiety, alternating diarrhea and constipation, lots of painful gas, food poisoning symptoms through the years when eating various foods from restaurants, migraines, mouth ulcers, itchy legs, drenching night sweats, occasional muscle and joint pain, skin pain the day after having a few drinks, bloating. I think that's all for now. What of these symptoms are common for you if you've been diagnosed? I also know I'm vitamin d deficient. That's about thing only thing that came up in previous blood work for other things. Thank you so much for your help!!!

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cyclinglady Grand Master
cyclinglady
Posted

Well, some 40% of the population carries the genes that COULD develop into celiac disease and only a few actually do.  Genetic testing is most often used to RULE OUT celiac disease.   Many illness symptoms often overlap making it difficult to diagnose base on symptoms alone.   For example, celiac disease has over 200 symptoms attributed it.  Some celiacs have many and some celiacs have none (silent celiac disease).  Also, I could have sworn that my niece had celiac disease.  Turns out she had Crohn’s, another autoimmune disorder involving the gut.  So, testing is the way to go.  Learn more about testing and stay on gluten.  The celiac tests will not work if you go gluten free.  

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Theatre7 Newbie
Theatre7
Posted
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Thanks so much for replying! I know anything autoimmune is so hard to diagnose as there are symptoms that overlap like crazy across the board. I've been trying to figure out what's going on for so long and I feel like every time I see the doctor I'm nowhere closer to figuring out what's wrong with me. It's so frustrating. I'm definitely going to stay on the gluten and have some testing done to see. I definitely don't want celiac but also, if it's negative, it's back to the drawing board again. I'll look into things like Crohn's as well, just in case. Something's not right with me, and it can't just be depression and anxiety. Thanks for your input!

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