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Smilewiper91

Quiting gluten

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I have to confessed when I found out I suffer with celiac, I didn't quit all the stuff I should. I would actually put up with the being bloat and pain plus everything else. Literally the only thing that has made me want too knock it all on the head is, my image. I know that sounds so vain lol but I have had enough of eating and then looking pregnant. Anyway it has only been 1 day if honest but I still feel I have the belly. How long does it take for it too go away? Its annoying, my belly still looks big, it isn't like i am eating and then feeling pain. Nor am I really gassy like when eating gluten. Stomach has made the odd sound here and there though, which I didn't think it would if I change my diet? I am just wondering would I still have some signs for a little while as my body gets used too the change of diet? I have got over the fact I won't be drinking beers and stuff, and kind of embraced that I will be living a healthier lifestyle because of it. I just want the belly to go down. 

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1 hour ago, Smilewiper91 said:

I have to confessed when I found out I suffer with celiac, I didn't quit all the stuff I should. I would actually put up with the being bloat and pain plus everything else. Literally the only thing that has made me want too knock it all on the head is, my image. I know that sounds so vain lol but I have had enough of eating and then looking pregnant. Anyway it has only been 1 day if honest but I still feel I have the belly. How long does it take for it too go away? Its annoying, my belly still looks big, it isn't like i am eating and then feeling pain. Nor am I really gassy like when eating gluten. Stomach has made the odd sound here and there though, which I didn't think it would if I change my diet? I am just wondering would I still have some signs for a little while as my body gets used too the change of diet? I have got over the fact I won't be drinking beers and stuff, and kind of embraced that I will be living a healthier lifestyle because of it. I just want the belly to go down. 

When were you diagnosed?  It can take a year or more to feel better.  Consider our Newbie 101 tips located at the top of the “Coping” section.  

Edited by cyclinglady

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

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Diagnosed months ago now and never really changed anything in my diet at all. Has been days when I am just laying there in pain. Would make most people quit and I know I should have but never did. I just thought if I cut it out I may lose the bloat feeling. I wake up in the morning and don't feel as bad, I e-mailed nandos to ask about a rub I use being safe and they said it was. Had that with vegetables microwaved type n thought maybe that so have brought fresh now. Only other thing I ate yesterday and this morning was a few grapes which someone said could cause me to be bloat? I did also drink lactose free milk with my coffee only as in the past I've found milk bloats me and gives me gas. Nothing like eating gluten but still not nice. Maybe worth cutting out the lactose free milk and seeing if its diary causing it? 

 

Honestly is a pain, never knew how for granted everyone takes just being able to eat what they want. At the moment I am wanting to lose weight so meals are pretty boring. Once time have lost weight though and got my metabolism changed ill treat myself a little more to the gluten free stuff out there. For now it's just fresh veg and fruits with sweet potatoes or brown rice and different meats.

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Check the newbie 101 section, honestly if you did not clean your your stuff, decon, throw out CC condiment jars, scratched pots, pans, bowls, colanders etc...you still having traces of gluten. But it is going to take weeks for your to notice gut improvements, other symptoms will go away over months....you will find many things that you thought were normal were not and were actually celiac related. Life changing it is. You have years of damage, it will not fix over night.
https://www.celiac.com/forums/topic/91878-newbie-info-101/
Dairy is a common issue with this disease, change over to like almond milk or other nut milk in your coffee. Damaged intestines are not going to work with it due to enzyme issues, have to heal those first or it might give you issues.

Carbs might be another thing for a bit, this might be a bit of a push but if your bloat gassy, distended it could be a issue like SIBO, or Candida which will often easily settle in with celiacs, and require a low/no carb diet to starve the bugger out and a supplement regime to kill them off and repopulate the gut with good flora from probiotics (I use Nature Plus Fortify)
Look up Keto or Low carb diets, do stuff like meat, leafy greens, nut butters, seed butters, avocado, healthy fats and protein with no sugars, grains, or carbs. Bit extreme but really does the job after a week long "keto flu" of your body transitioning to the burning of fat instead of carbs for energy.

I found my UC and Gluten distentions lasted days....might make you laugh but I was so disgusted with the sag skin back then I had gotten a Postpartum girdle lol messed up for a guy I know.

Meals do not have to be boring, I go with omelettes, stir frys, nut meal porridge, soups, stews, crock pot meals, sheet pan meals. All are easy and foil lining a baking sheet throwing your meat, veggies, etc. Sprinkle of seasonings and sheet pan baked meal done. Crock pot liners make safe easy crock pot meals in large batches easy. Nordic ware makes microwave omelette makers, steamers, grill plates with covers etc. So you can get by cheap without replacing stuff til you get the diet down. Whole foods are your friends but they make gluten free everything now days.
OH to spice stuff up look like stuff like Big Axe Spices they are salt free and LOADED with flavor, salt could be a edema water retention issue so watching it can help.
Bit of a treat list, and where to find foods, seasonings, spices. I update the list quarterly with a new one.
https://www.celiac.com/forums/topic/121148-gluten-free-food-alternative-list-2018-q2/

 


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Thanks for the reply, honestly my diet is pretty much meat and vegetables, only carbs have been sweet potatoes and not much either as I ain't the most keen on them. The bloating I have a feeling is from the lactose free milk.  Tomorrow I am going to avoid it and see if I feel any better, its certainly nothing like when I eat gluten. I had a small glass of lactose free milk just before my steak and found it has bloated me. 

 

When my gut heals itself after all the damage, would I be able to have diary again? It's proper disheartening thinking everything was just gonna go away over night lol. I thought soon as I cut out gluten my belly would no longer bloat. Didn't expect to suddenly lose weight but this bloating is semi depressing and kinda makes me think ah what's the point. I am determined though to live a healthier lifestyle as before I would simply live on cheap pizzas and other junk.

 

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30 minutes ago, Smilewiper91 said:

Thanks for the reply, honestly my diet is pretty much meat and vegetables, only carbs have been sweet potatoes and not much either as I ain't the most keen on them. The bloating I have a feeling is from the lactose free milk.  Tomorrow I am going to avoid it and see if I feel any better, its certainly nothing like when I eat gluten. I had a small glass of lactose free milk just before my steak and found it has bloated me. 

 

When my gut heals itself after all the damage, would I be able to have diary again? It's proper disheartening thinking everything was just gonna go away over night lol. I thought soon as I cut out gluten my belly would no longer bloat. Didn't expect to suddenly lose weight but this bloating is semi depressing and kinda makes me think ah what's the point. I am determined though to live a healthier lifestyle as before I would simply live on cheap pizzas and other junk.

 

Most can reintroduce it after 6 months or so....me I am forever lactose tolerant, and a whey allergy. BTW I still eat pizza, cheese, etc all the time...they make dairy free and grain free everything lol. Check that list, I use Califlour Foods pizza, bit more like a flat bread but it works, I use non dairy cheese like miyoko on my pizza often sometimes I use a spread like leaf cuisine cheese spreads, or kite hill cheese (their ricotta is dead on, try it with skillet browned meat bit of cumin, and marinara sauce for a ravolli skillet dish without pasta). I used to use daiya but they now use xantham gum, their cutting board cheese is supposed to be great on pizza. I still use their mozzarella in my bakery for our cheesy bread...it is honestly loved more then gluten breads by customers and it sells out quick often. I posted the recipe for it in a blog here. Tree line makes some lovely artisan blends of scallion, black pepper, garlic onion, Leaf Cuisines makes a great spread that taste like smoked gouda (was a child hood favorite of mine) that I now enjoy again dairy free. I also make cheap cheese sauces when budgeting and can not affford the good stuff from the store, but grainy but works, fun using spices and herbs to do artisan blends...even found a diary free cream cheese extract from lor ann oils that is a god send for making sauces and even a gelatin, almond milk, sweetened one with it for a cream cheese dairy free jello I sweeten with serve sweetener.
Heck even with my restrictions I can have no carb pasta, rice etc thanks to miracle noodles. But they make tons of others types that have standard carb loads for those who can have ones made from rice, millet, etc. pasta wise.

Honestly the whole celiac disease thing inspired my cooking more and I love creating new things gluten free. I often do chef work and custom stuff for people.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Thanks for the reply, for now I want to lose weight and get slim. I am not huge but I just don't feel happy and ain't the type to moan and do nothing. I am off tomorrow to buy myself a new push bike and start putting in some miles. Whilst not gone ott in the kitchen it has got my wanting to start eating healthier as I can look at the cheap frozen pizzas and see they contain stuff I can't eat. I knew it wasn't good for me anyway in terms of just wanting to be healthier, the celiac is just an extra push away from them. 

I brought lactose milk, reason is I remember before ordering a "protein pizza" when was marked as gluten free. After eating it I was a bit gassy and annoyed due to it being gluten free. It was only then through Google I saw talk of celiacs possibly being temporarily reactive to lactose. I bloat on it and a little gas but nothing at all in comparison of when I eat gluten.

I am not just lactose intolerant though it seems,as I brought lactose free milk. I just woke up from a nap and didn't feel bloat. Didn't eat instead I made a cup of this lactose free milk and straight away its bloated me. Very very little gas and odd sound from my stomach after it. Nothing major but that's it I am going to have to cut it out. Will just Google some breakfasts I can make which don't contain gluten or dairy, as was only planning to use the lactose free milk with my gluten free porridge.

Once I have lost a bit of weight I will happily buy foods that are gluten and dairy free such as the pizzas you mentioned. Just for now I am really on the idea of eating completely healthy with meat and veg and dropping some weight. In months down the line once my vili has healed I will try to slowly introduce dairy and see how I get on with it.

 

Thanks so much for the replies I honestly appreciate it and helps put my mind at rest. Easy to feel like I'm going to just be bloat forever and feel quite down about it. Know that sounds really vain but its frustrating standing up and looking pregnant, a little depressing almost. Honestly wish there was a cure for celiac, even if it wasn't on the nhs and I had to pay a few grand, I wouldn't think twice.

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Umm, the pizza crust I mentioned is low carb...it is marketed as a health oriented pizza. I use the plant based one...it is a cauliflower pizza with no grains in it. Honestly it is healthier then most gluten free breads, at just 90 calories for 1/3 of the crust and just 6 total carbs (3net).  I have made it extra crispy for chips, in strips, breakfast pizza, flat bread, wrap, etc....sorry for the obsessive over the pizza....mental quirk with me and my "Other" issues. But true your better off for now on just meat and veggies, just do not be so dishearted not to try one of these in a few months.
https://www.califlourfoods.com/collections/plant-based-vegan-cauliflower-pizza-crusts
Vain...not in the least....I am a guy...with long hair half way down my back...I never left the house with my distention out of embarrassment. Crazy thoughts people might have thought.....I invested in all kinds of fixes for that issue....fracked up part is my lower distention was also caused by Ulcerative Colitis that would flare up to sugar and was found out 4 years after my celiac diagnosis.....I assumed it was bad gut bacteria the way fruit, grains, etc. made me get all gassy and distend, so I ate them in moderation before learning what it was and going almost completely keto with my diet removing all sugars and carbs...still eat too much protein to stay keto but it allows me to build up muscle.

Breakfast...I go with eggs....almost every morning, different seasonings, different veggies in them, different cuisines even. Sometimes burger seasonings and lettuce, sometimes Cajun bit of okra, taco seasoned with sauce with lettuce wraps, Italian seasoned with marinara, change the insides from kale, spinach, romaine, bit of fish or crab with scrambled with cocktail sauce, sometimes I fall back to making migas with Protes protein chips kin a skillet and scrambled with the eggs and served with salsa. Omelettes, quiche, scrambles, add in some coconut flour, almond flour, and flax or chia seed and make grain free waffles or pancakes with the eggs. Sometimes just whisk and cook it into a sheet and eat it with avocado and my grain free low carb paleo bread.
Sometimes I just make nut meal porridge with coconut flour, seed meal, and almond butter with 1/4 tsp of psyillum husk and cooke til it thickens up I sort of eye ball it but about 2 heaping spoons flour and seed meal each and 1/4 cup of nut butter use nut milks or water...simple and filling.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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After trying to read as much as I can on the subject I am sure even worried now I have IBS. I have cut out gluten and yet still anything I seem to eat bloats me? I have an orange for breakfast, doesn't contain any gluten yet some how I look pregnant? I also am constipated since cutting out gluten and haven't been a poo since. Honestly is driving me mad and makes me think what's the bloody point. I don't expect to be slim over night after living on crap food but literally everything is bloating me, even a fruit?

 

My brother's already on the beers as its sunny out and I have simply ate an orange yet I look bigger than him due to the bloat belly.

Does it sound normal for a celiac? I thought I could eat non gluten food and be okay. Also little chance of cross contamination with other foods I've ate as I went and brought all new food tubs as I really wanted to eat healthy and have my meals all there so never hungry. Not eating gluten food, while bloat I am no where near as gassy nor do I have any stomach pains. It's literally just anything seems to bloat me but I imagine being constipated doesn't help with that. Is it normal to get constipation when you first switch? Or do I possibly have ibs? I just wish I could be normal enough to eat anything and stay in shape ffs.

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11 minutes ago, Smilewiper91 said:

After trying to read as much as I can on the subject I am sure even worried now I have IBS. I have cut out gluten and yet still anything I seem to eat bloats me? I have an orange for breakfast, doesn't contain any gluten yet some how I look pregnant? I also am constipated since cutting out gluten and haven't been a poo since. Honestly is driving me mad and makes me think what's the bloody point. I don't expect to be slim over night after living on crap food but literally everything is bloating me, even a fruit?

 

My brother's already on the beers as its sunny out and I have simply ate an orange yet I look bigger than him due to the bloat belly.

Does it sound normal for a celiac? I thought I could eat non gluten food and be okay. Also little chance of cross contamination with other foods I've ate as I went and brought all new food tubs as I really wanted to eat healthy and have my meals all there so never hungry. Not eating gluten food, while bloat I am no where near as gassy nor do I have any stomach pains. It's literally just anything seems to bloat me but I imagine being constipated doesn't help with that. Is it normal to get constipation when you first switch? Or do I possibly have ibs? I just wish I could be normal enough to eat anything and stay in shape ffs.

-_- Could be something more, SIBO, Candida, UC, all would bloat you with sugars carbs. The chance of CC is still present, but doubtful if just a orange triggered it...not like you cut it with a gluten knife, on a gluten cutting board. And no one is cooking with flour in the house right?

A intolerance, or food sensitivity is also a concern, it is not uncommon for celiacs to develop temporary food sensitivities or intolerance issues. https://www.mindbodygreen.com/articles/are-food-sensitivities-for-life

Really just give it some time, digestive enzymes might make it easier, I have to use porcine enzymes myself due to pancreas issues but they still many have shown digestive improvement with them. Probiotics to get the good gut flora in there and perhaps push out any bad ones in your gut can help.

For now keep a food diary, record everything you eat and how it is fixed, how you feel etc. Rotate your diet removing certain foods for days then reintroducing them seeing if it changes how you feel.
https://www.wikihow.com/Keep-a-Food-Diary
Constipation in celiacs if often caused by magnesium deficiency. Natural vitality calm will help start with 1/4 tsp  (1-2g) and up it by that much each day til you reach the full dose easing into it. You can dose up in the same amounts til you get loose stools in what is known as dosing to tolerance then notch it down.
Are you eating plenty of fiber? IE nuts, avocado, seeds, tons of leafy green? Drinking plenty of liquid throughout the day? Try getting a app to track your food intake, calorie intake, fiber, liquid etc. Since you changed your diet, your body could be a limbo shock to the change, or you might have missed something by not eating enough or the right ratios.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Hi,

Celiac diease is an autoimmune condition.  Autoimmune means the bodies immune system attacks it's own body tissues.  The immune system is not a fly-by-night thing.  When it starts an attack it goes whole hog to the finish.  The immune system cells are generated to attack and they continue to do so for possibly months.  That's why it is important to avoid even tiny traces of gluten in the diet.  Your immune system reacts to germs and such that are so small you can't even see them.  Your immune system thinks gluten is a germ and will attack even 20 ppm of gluten in your body.  Or less.  The immune response is not a 1 day thing.

You need to give the gluten-free diet time, and no gluten to see results.  It's best to eat a simple diet of meats and veggies like you are doing for a while.  At least a month or two.  Also avoid lots of spices and dairy.  Probiotics may help.  It also helps to avoid sweet things and carbs.  Celiac damage can cause a bad bacteria mixture to form in the gut. It takes time to get things straightened out there even once you have started healing.  This is a diet for the rest of your life, not a few days.  But you'll get better at it in time.

Here's the newbie thread mentioned earlier.

 

Edited by GFinDC

Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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Cheers for the reply guys, I am eating and getting bloat but that is bound to happen seeing as I'm constipated right? I have taken some natural herbal pills for it can't remember the name, hopefully does the job.

 

The only thing that's making me feel a little better is while I am bloat, I have no gas what so ever nor any stomach pain.  If I can just adjust my diet adding more fibre then hopefully things will be alright. I am only eating some carbs with my lunch, should I not do that for the first month? I am getting carbs with my breakfast and have cut out all dairy as was seeing lactose free milk made me a little gassy. Going to have oats in the morning with almond milk, lunch meat with some veg and dinner the same thing. Any time I fancy a snack I will go to fruit. Honestly I don't care about diet and if it seems boring, I want results bad enough that ill suffer anything. 

 

So yeah no gas or pain, the bloating I am hoping is from the constipation which while not good at least I feel a little better knowing the cutting out gluten is stopping me farting or having stomach pain. Hopefully tonight I will need to use the toilet and then adding the oats in the morning and even more vegetables gets some results.

 

Seriously thanks to everyone who has replied, must be annoying having to repeat stuff to all us newbies. Would offer to buy you all a drink but you know lol. The gluten free versions of food ill try once I've lost some weight. Same as drinking alcohol on a nice summer's day I'd love a drink but for now I'm on a mission to get healthier. Shouldn't be too hard after I've literally lived on cheap pizzas and take a ways. Despite that I'm not actually huge but I want to be fitter.

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18 minutes ago, Smilewiper91 said:

Cheers for the reply guys, I am eating and getting bloat but that is bound to happen seeing as I'm constipated right? I have taken some natural herbal pills for it can't remember the name, hopefully does the job.

 

The only thing that's making me feel a little better is while I am bloat, I have no gas what so ever nor any stomach pain.  If I can just adjust my diet adding more fibre then hopefully things will be alright. I am only eating some carbs with my lunch, should I not do that for the first month? I am getting carbs with my breakfast and have cut out all dairy as was seeing lactose free milk made me a little gassy. Going to have oats in the morning with almond milk, lunch meat with some veg and dinner the same thing. Any time I fancy a snack I will go to fruit. Honestly I don't care about diet and if it seems boring, I want results bad enough that ill suffer anything. 

 

So yeah no gas or pain, the bloating I am hoping is from the constipation which while not good at least I feel a little better knowing the cutting out gluten is stopping me farting or having stomach pain. Hopefully tonight I will need to use the toilet and then adding the oats in the morning and even more vegetables gets some results.

 

Seriously thanks to everyone who has replied, must be annoying having to repeat stuff to all us newbies. Would offer to buy you all a drink but you know lol. The gluten free versions of food ill try once I've lost some weight. Same as drinking alcohol on a nice summer's day I'd love a drink but for now I'm on a mission to get healthier. Shouldn't be too hard after I've literally lived on cheap pizzas and take a ways. Despite that I'm not actually huge but I want to be fitter.

Many Celiacs are completely fine with carbs, sugars etc. I am a rare case due to another disease, and it flares up with them. BUT I was point out with you because you were trying to go healthier and avoid the bloat and distention which can be made worse by carbs/sugars. And running on the assumption it might be in part due to other issues like SIBO or Candida causing the bloat. I was just hitting as many birds as I could with one solution for you to trial for the quickest recovery and meeting your goals. Sorry if I overwhelmed you or misled you. As mentioned by another poster the antibodies can take quite awhile to go down.

BTW remove the oats....not only do 10% of celiacs react to oats, but even gluten free oats are commonly contaminated with small traces. It is the way they are grown, harvested, and processed normally on rotation with wheat leading to high probability of contamination.

That magnesium I suggested will probably help more then a laxative, I am going on the line that many celiacs with constipation get it due to magnesium deficiency as your intestines are damaged and your not getting it from your food. This leads to nerve issues, constipation, memory issues, anxiety, joint issues, etc. Although in higher doses it will work just like a laxative and is in fact marketed as one and sold under different names as Magnesium Citrate in a glass bottle as a fizzy drinkable laxative....I just use the magnesium calm and sometimes which to doctors best version when I get a flare up as it can be easier on the stomach.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Not overwhelmed me at all, I honestly really appreciate all the replies. Is quite mad to me that so many people are so helpful. 

 

I will try the gluten free oats but if I get a reaction I guess I will have to knock them on the head. What do most celiacs have for breakfast then? Honestly this morning I was seriously annoyed and down. I just feel a lot better now my dad has pointed out how I haven't been gassy or in pain. If I wasn't constipated I would honestly say I would be feeling alright. 

 

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8 minutes ago, Smilewiper91 said:

Not overwhelmed me at all, I honestly really appreciate all the replies. Is quite mad to me that so many people are so helpful. 

 

I will try the gluten free oats but if I get a reaction I guess I will have to knock them on the head. What do most celiacs have for breakfast then? Honestly this morning I was seriously annoyed and down. I just feel a lot better now my dad has pointed out how I haven't been gassy or in pain. If I wasn't constipated I would honestly say I would be feeling alright. 

 

-_- I think I answered the breakfast question 3 times already? Eggs in every which way(scrambles, omelettes, quiche, sheets), nut meal porridge, or grain free toast (run my own bakery and make a low carb bread from nut flours, bit like Julian bakery or Mikey muffins with the low carb paleo concept) with avocado or almond butter are some of mine. Others here eat gluten-free cereal (not the BS cheerios that really are hit and miss), Canyon house bagels or toast or some other brand( starch loaded carb bombs but to each their own), rice porridge, yogurt (they make dairy free ones by silk, so delicious, almond breeze if you want to go that route), fruit, etc.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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Well I have been to the toilet. Feel more bloat than when I went? Lol not joking either. Today have on my ate the Orange in the morning then gluten free sausages with some beans. Only thing I can say is there isn't any pain or gas like I would usually get. Gonna stick at it anyway and fingers cross the bloating goes down. Also had a coffee with no sugars and almond milk, forgot about that but thought it would be fine. Have had no gluten food though so didn't think I would be bloat. That honestly was my main reason for finally deciding to knock gluten on the head. The pain, truth be told I could live with that. It's the looking pregnant which honestly drives me mad. Do you reckon they'll ever actually find a cure?

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Hi smilewiper,

I suggest you steer of the oats for a few months.  Oats are often contaminated with wheat in growing or shipping/processing.  On top of that there is a chance you may react to them.  Some people with celiac react to oats as they do to wheat, rye, and barley.

Personally I doubt they will find a cure for celiac disease.

For breakfast try bacon and eggs, or omelets.  Or reheat dinner leftovers.  Just because the meal is called breakfast doesn't mean you have to eat different foods at it.  Think outside the cubical cardboard container. :)

There are breakfast threads on the forum if you want to search for them.  Also dinner threads.

Edited by GFinDC

Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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3 hours ago, Smilewiper91 said:

 Do you reckon they'll ever actually find a cure?

Doubtful at least in the way your probably thinking. Celiac is a genetic disease, like in your genes and just becomes active in some. Being a autoimmune disease the concept is your own immune system is trying to kill you while trying to get rid of the gluten that it perceives as a foreign invader. A "Cure" would be on the genetic editing level like the new CRISPER gene therapy where they would have to edit your genes and turn off that switch.....and possibly cause a ton of other issues, the RNA editing version showed some promise before they found most peoples immune systems will kill the "editor" they use to change the genes.....Now perhaps further testing in combination with immune suppressants might work but the chance of MUCH worse complications and mutations are more likely then a cure. I would say we are decades away from being able to do such a thing. There was another treatment in research that used a Vaccine to temporarily turn off the immune response but had to be taken all the time and with mixed results.  -_- I think I would look more forward to something less dangerous like a 3D protein printer or a star trek food replicator that make make meals without the gluten proteins present as it literally builds the protein matrixes of the food...

But in all honestly there is already a known cure for celiac....do not eat gluten....think of gluten, flour, beer, etc...as what your body now treats it as, rat poison, and antifreeze...it is not food just poison treat it like so and you will be fine.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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I honestly wouldn't mind eating anything long as I can lose this bloating. That was my main reason for deciding to finally eat right. The diarrhoea and pain I actually could say I got used to it. I'm young and wanna feel confident about my body, when bloat I hate it. Makes me depressed and not want to go out. Just can't believe I am still bloating even without eating gluten. I even imagined that was due to the constipation but once i had been a toilet I was still bloat. Just gets me down big time, I hate the way it looks.

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Today I have only ate some veg and two chicken breast. I am just as bloat as I'd I ate a pizza. The only difference is, I am not gassy or getting real pain like before. I can hear my stomach making some sounds? Going to ring the doctors Tuesday. My bloat is bigger than my Dads and he has been on the beers all day. Excuse my French but pissed off and thinking what's the point. Life without ever being able to just be out and grab any food I want or have a Stella on a summer's day. Don't care about the damage it'll do may as well be dead anyway if can't do the basic enjoyments of life. Honestly whole thing has just got me down and feeling like s$#&, sick of it.

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2 hours ago, Smilewiper91 said:

Today I have only ate some veg and two chicken breast. I am just as bloat as I'd I ate a pizza. The only difference is, I am not gassy or getting real pain like before. I can hear my stomach making some sounds? Going to ring the doctors Tuesday. My bloat is bigger than my Dads and he has been on the beers all day. Excuse my French but pissed off and thinking what's the point. Life without ever being able to just be out and grab any food I want or have a Stella on a summer's day. Don't care about the damage it'll do may as well be dead anyway if can't do the basic enjoyments of life. Honestly whole thing has just got me down and feeling like s$#&, sick of it.

In six months you'll probably feel better, if you stick to a totally gluten-free diet and avoid processed foods.   There are plenty of gluten-free beers available.   There are also digestive enzymes that might help your digestion.  Six months is not very long to feel better IMHO.  Getting cancer of the gut or developing additional IA conditions by not following the gluten-free diet is not a fun thought.  The chances of cancer are very low, but I don't know about the other AI conditions.  Plenty of people on this forum have other AI conditions though.  Most often it seems they occur after being undiagnosed with celiac and eating gluten for years IMHO.  The damage to your gut is just part of what celiac can do to you.  There are much more bothersome and difficult conditions that can occur if you don't stay gluten-free.  I'd consider that worth staying gluten-free IMHO.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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2 hours ago, Smilewiper91 said:

Today I have only ate some veg and two chicken breast. I am just as bloat as I'd I ate a pizza. The only difference is, I am not gassy or getting real pain like before. I can hear my stomach making some sounds? Going to ring the doctors Tuesday. My bloat is bigger than my Dads and he has been on the beers all day. Excuse my French but pissed off and thinking what's the point. Life without ever being able to just be out and grab any food I want or have a Stella on a summer's day. Don't care about the damage it'll do may as well be dead anyway if can't do the basic enjoyments of life. Honestly whole thing has just got me down and feeling like s$#&, sick of it.

First....when first getting off...it can take weeks to months for the reactions to stop and go down. YOU HAVE active antibodies to gluten in your body that are STILL attacking your insides. They will keep this up for weeks, and they will start all over again if you eat a bloody crumb. Celiac is a auto immune disease, its your immune system, and it now and forever will attack your own organs when it detects gluten, starts off in the intestines where it detects destroying your villi, in some it can then go and attack other organs...for me it attacks my brain and nervous system causing brain damage, and nervous system damage. Others have had it attack there joints, skin, etc. Sometimes it just stays in the intestines, but it can cause collateral damage and complications like cancer, or we have had some people have a intestinal rupture that required a colostomy and them using a bag.....look that up.

You have extreme bloat with it,...yes. Call it assumption but I think that last route is about where you might be heading if you try to take this disease lightly. You said it was not gassy now, that it did not seem to be constipation..that leaves inflammation. Lets take it at that angle and try to go on a easy foods diet for a few weeks til we get that under control and get your antibodies back down. Your at a disadvantage here being new to the diet in a shared house but you can do it.

You can still have good food I gave you a good list of substitutes that are gluten free for most things, I as a chef aspire to make enjoyable for people with this disease because I understand the cravings and the pain this disease can cause....and all to well what happens if you do not follow the diet. Sorry for the rough insensitive talk here but I have seen many come here blow it off and have their lifes go to hell from it. I want to help you, so do not wallow in pity just yet.

-_- I honestly wish I could just offer your and many others a half way safe house with a licensed nutritionist to help get you started but only think I can do is give you advice and try to help you with knowledge I know from years of dealing with it myself.


Diagnosed Issues
Celiac (Gluten Ataxia, and Villi Damage dia. 2014, Villi mostly healed on gluten-free diet 2017 confirmed by scope)
Ulcerative Colitis (Dia, 2017), ADHD, Bipolar, Asperger Syndrome (form of autism)
Allergies Corn, Whey
Sensitivities/Intolerances
Peanuts (resolved 2019), Cellulose Gel, Lactose, Soy, Yeast
Olives (Seems to have resolved or gone mostly away as of Jan, 2017), Sesame (Gone away as of June 2017, still slight Nausea)
Enzyme issues with digesting some foods I have to take Pancreatic Enzymes Since mine does not work right, additional food prep steps also
Low Tolerance for sugars and carbs (Glucose spikes and UC Flares)
Occupation Gluten Free Bakery, Paleo Based Chef/Food Catering

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I'm gonna go back to the doctors, ringing them tomorrow. I don't get many of the issues others here seem to get such as skin problems or anything else. Literally my only problem would be that I bloat but then it goes because I have diarrhoea. I've ate nothing but a chicken breast and some vegetables twice a day. I still feel bloat and tbh that is my only reason for wanting to give up foods that I enjoy in the first place. Call it vain but I am fed up looking pregnant. It's so annoying as I bumped into an old school friend and we was laughing about how we used to steal Turkey burgers from the canteen. Would eat two and sell two then buy ourselves some cheap cider.  Made me think how only a few years ago I was eating anything. I have just woke up now so not even ate anything yet and I still feel and look bloat. At least when eating gluten I would wake up and look slim.

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Just had diarrhoea, worst than if I had ate gluten. Stomach is also making weird sounds which don't normally get when eating gluten. Usually just bloat and then diarrhoea but this is actually worse. I have literally only ate some vegetables with chicken breast, used new food boxes as I cooked a few meals in advance. So I can't see there being cross contamination plus like I say I don't have this much diarrhoea even when eating gluten. I could munch 3 bags of crisps and a Chinese and it wouldn't be this bad. Gonna go back to the doctors and see what they say. On the plus side in just a few days I've lost some weight. No surprise as before like I say my diet was terrible and cheap pizzas and take a ways.

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Had some gluten free oats today, I was weary as seen others mention they could be cross contaminated. I feel fine though and after experiencing the bloating from the peanuts it got me thinking. Maybe i still just have the wheat belly rather than actually bloating? Is that possible? I still have the wheat belly and when i eat it sticks out bit more like anyone who's ate a meal? It certainly doesn't feel anything like when i ate those nuts yesterday. 

How long does it take for someone to lose the celiac belly roughly? I am seriously thinking it is just that and since switching my food I haven't been actually bloating. Also will exercise help speed it up? mentioned before I have ordered myself a bike, was supposed to be here today but didnt get delivered and they've promised me tomorrow.

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