New and confused by results

[evenstarfairy]

Hi all, I'm new to all this gluten sensitivity/celiac stuff and just got my test results. Of course I had to go googling lol, and now Im confused by the results. I hope you guys can guide me a little. Ive always had mild to moderate tummy troubles. Gas, bloating, random bouts of diarrhea and from 15-18 chronic diarrhea they told me was ibs, gave me prilosec, immodium, and told me to avoid fatty foods. It eventually subsided, which I accredited to my probiotic regimen I did. I still had chronic gas and bloating after eating, and indigestion at night if I ate too late. So fast forward 15 years, Ive gone on the Paleo diet a few times with my husband (I only did it to keep him motivated and it seemed like a fairly health way to eat, I did not suspect a problem with gluten) and discovered a complete disappearance of symptoms when avoiding gluten, and a return when I quit eating a gluten free diet. So last week I asked my doc for a celiac panel. They ran a celiac panel and a gluten sensitivity test. Here were my results.

Celiac panel:

Endomysial Antibody IgA- Negative

TTG IgA- <2   range is 0-3, so this was also negative

My IgA was in normal range, not IgA deficient

Gluten Sensitivity Test:

ttg/DGP- Negative

Antigliadin IgG- 137  Positive normal range <19

The lab note says results suggestive of non celiac gluten sensitivity

The NP just said the sensitivity test was positive and referred me to a GI doc.

I got nosy, started googling and if I'm understanding correctly, this could still be Celiac's? Or think the lab is right with sensitivity?

Could it be something else? I thought I read it could be other autoimmune disorders? Ive been diagnosed with hypothyroidism since I was 18 (Im 33 now).

Im definitely going to my GI appt. but Im a little freaked out by getting a scope lol, which I figure they'll suggest. But I guess Im just curious if there's a likelihood this could still be celiacs with those results? If it's a sensitivity, are there other tests they'll want to run? Anyone on here ever been diagnosed with a sensitivity instead of celiacs?

Thanks in advance!

 

[frieze]

there is no test for sensitivity, that is a celiac test. make sure you are eating gluten up till the scope time.

[evenstarfairy]

Thanks for replying. See that's what I thought. I've read there is no test for sensitivity. I have no idea why they ordered it like that and the lab sent the results back broken down like that. After reading I see that they just ordered a more extensive celiac panel. So this could still be celiacs? Has anyone had a positive on one of the tests, the rest normal, and it just be a sensitivity and not celiacs? I'm concerned about possible damage in my gut, even though all my IgA stuff was normal and I'm not deficient. Also my GI appt. isn't for a month and a half. Unfortunate that I have to continue eating gluten for the scope that long and knowingly make myself ill. 

[ravenwoodglass]

That is a pretty high positive. if it was related to another autoimmune issue then I don't think it would be that high. You only need one positive to be celiac. Do keep eating gluten but you don't need to overdo it. A couple of slices of bread worth a day should be enough. If you get D immodium can be helpful if you need to leave the house. Since you have had positive blood work you can go gluten free as soon as the endo is done. You don't need to wait on results. Keep in mind there can be false negatives on endoscopy so a strict trial of the gluten-free diet would be need regardless of the results.

Do check out the Newbie 101 thread at the top of the Coping section to learn a good amount about what you will need to keep yourself safe once you are fully gluten free.