Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

pain relievers


Fredo

Recommended Posts

Fredo Rookie

Greetings!  I am a 51 yr. old 4 year post diagnosis Celieac.  Between the drawn out healing process, and just plain getting older, I'm discover the need to find a pain reviler for the aches and pains associated with the for mentioned symptoms of discomfort.  I have found a product called Curamine, which is a curry based, and has been helpful, but the stuff is horribly expensive and makes my stomach a little upset sometimes.  Anyone have verified knowledge Celiac friendly pain relievers?  Please, don't bother listing anything that is not VERIFIED as those are easy to find, and the number of, "does not list specific gluten products, but may have cross contamination" (take your chances products) listed are a dime a dozen....   Very frustrating....    Thanks for any and all input!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

You might want to specify what country.  In the US, many are gluten-free and some are labeled gluten-free.  Target labels some of their acetaminophen gluten-free.  There are other brands that do, too.  

Fredo Rookie
17 minutes ago, kareng said:

You might want to specify what country.  In the US, many are gluten-free and some are labeled gluten-free.  Target labels some of their acetaminophen gluten-free.  There are other brands that do, too.  

I am in the U.S.....   And I have searched for those miracle words, "gluten free" on pain relievers and I've been utterly unsuccessful...   

squirmingitch Veteran

https://www.target.com/p/acetaminophen-extra-strength-pain-reliever-fever-reducer-caplets-up-up-153/-/A-51217955

But if you really want to do something about the labeling of things like this then write, call or email your US House representative & urge them to co-sponsor this bill:

https://www.congress.gov/bill/116th-congress/house-bill/2074/all-info#cosponsors-content

You can use this as a template:

This is to request you co-sponsor H.R. 2074 - Gluten in Medicine Disclosure act of 2019. As things stand now, when a celiac has a prescription (as well as when refilling one), we have to have the pharmacy call the manufacturer & give them the lot # to make sure the pills do not contain a gluten ingredient or derivative. As you can imagine, this takes time, often many hours. If it happens to fall on the weekend or after hours, then obviously the pharmacy can not call the manufacturer & get an answer thus causing days delay in patients being able to begin their prescribed medication. H.R. 2074 is extremely important to protect celiac patients.

OR

Please personalize this sample letter adapted from a letter provided by Rachel Jenkins, Legislative Assistant to Congressman Tim Ryan (OH-13) by including a personal story about why this bill is meaningful to you or a loved one.

Cosponsor H.R. 2074: The Gluten in Medicine Disclosure Act of 2019

Dear [Name of your representative]:

According to the Mayo Clinic, the rate of celiac disease has almost quadrupled over the past 50 years. Celiac disease is a serious, genetic autoimmune disorder in which ingesting gluten causes damage to the villi of the small intestine. It affects nearly 3 million people in the United States. In comparison, Alzheimer’s disease affects approximately 2 million people. 

The only treatment is the total elimination of gluten-containing products, including wheat, barley, and rye sources. For some, failure to avoid these can lead to life-threatening complications. Currently, this is nearly impossible to determine the presence of gluten in prescription medicine. 

In 2004, the Food Allergen Labeling Consumer Protection Act required packaged food labels to identify all ingredients containing wheat and other allergens. This requirement does not extend to prescription drugs. After repeated efforts to shed light on this issue, the FDA released draft guidance in 2017 encouraging drug manufacturers to disclose the presence of gluten. While some manufacturers have taken this step, it has not been implemented consistently. This leads to anxiety of not knowing whether or not your medicine is causing more harm than good. 

That is why Representatives Tim Ryan and Tom Cole introduced the Gluten in Medicine Disclosure Act, which will make it easier to identify gluten in prescription drugs. This legislation would require drug manufacturers to label medications intended for human use with the list of ingredients, their source, and whether gluten is present. A gluten-containing drug that does not meet these requirements would be considered misbranded under Section 502 of the Federal Food, Drug, and Cosmetic Act. This labeling will allow concerned consumers to know, for example, if the starch in their prescription drugs comes from wheat or corn. For the nearly 3 million Americans living with celiac disease, that small distinction is an important one. 

Please join other members in cosponsoring this important piece of legislation to make it easier and safer for individuals with celiac disease or gluten sensitivity to make informed purchases of needed medications. 

For more information or to cosponsor, please contact Rachel Jenkins (rachel.jenkins@mail.house.gov) in Congressman Ryan’s Office or Shane Hand (shane.hand@mail.house.gov) in Congressman Cole’s Office. 

Sincerely,

 

 

kareng Grand Master
(edited)

I think Walgreens label a bunch gluten-free.  You could use the gluten-free drug list , too.  

 

https://www.glutenfreedrugs.com/list.htm

 

 

Edited by kareng

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to BelleDeJour's topic in Dermatitis Herpetiformis
      14

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

    2. - coeliacmamma replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      New diagnosis

    3. - Russ H replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      New diagnosis

    4. - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,121
    • Most Online (within 30 mins)
      10,442

    foxymama564
    Newest Member
    foxymama564
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @BelleDeJour, Have you thought about keeping a food mood poo'd journal?  Recording what and when you eat can help pinpoint possible culprits for your outbreaks.  A red dye additive used in some foods and drinks contains iodine.   Have you considered getting a genetic test to look for Celiac genes?  Having Celiac genes and a positive response to a gluten free diet can be used as part of a diagnosis of Celiac Disease without undergoing a gluten challenge.   Do get checked for Diabetes.  Activated Neutrophils are involved in making dermatitis herpetiformis blisters and they are also found in Diabetes.  Apparently, high glucose levels contribute to activating Neutrophils.  People with dermatitis herpetiformis have a 22% increased risk of developing Diabetes.  One study found a majority of people with dermatitis herpetiformis have four or more autoimmune diseases (Addison's, dermatitis herpetiformis, Diabetes, and thyroiditis being the most common). I have dermatitis herpetiformis and I developed Type Two Diabetes.  Ninety-eight percent of diabetics are deficient in Thiamine.  I changed my diet to the AutoImmune Protocol Diet and took Benfotiamine, a form of thiamine, that has been shown to increase insulin sensitivity.  I no longer have any symptoms of diabetes. Because half of Celiacs carry the MTHFR mutation, I supplement with methylated B vitamins.  Many of the B vitamins, including thiamine in the form Benfotiamine, improve the neuropathy that goes along with dermatitis herpetiformis (that itchiness without a blemish).   I take additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide).  Benfotiamine promotes intestinal health.  Thiamine TTFD improves Gluten Ataxia, brain fog, and fatigue.   I use J. Crow's  Lugol's iodine because I have had hypothyroidism.  It's rapidly absorbed through the skin, so it doesn't trigger the immune system in the digestive system.  Thiamine deficiency is also found in Hashimoto's thyroiditis.   And... Thiamine has been shown to calm down Neutrophils.  Calmed down Neutrophils don't make dermatitis herpetiformis blisters.  My skin has improved so much!   Hope this helps!  
    • coeliacmamma
      Thankyou all for your replies this has helped massively 
    • Russ H
      There are some really good recipes here: Gluten Free Alchemist The woman that runs it is UK based, and has a daughter with coeliac disease. I think she might be a food scientist as she is extremely knowledgeable about the properties of different starches and flours etc. Coeliac UK have a lot of UK relevant information regarding coeliac disease, and also have a recipes section: Coeliac UK Find Me Gluten Free is a good resource to find gluten free places to eat out. You can use the website or download their app. Paying for the premium services gives more advanced searches: https://www.findmeglutenfree.com/  
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • Scott Adams
      Be sure to check out our site's huge recipe section as well: https://www.celiac.com/celiac-disease/gluten-free-recipes/
×
×
  • Create New...