Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Newly diagnosed daughter-product support


Fourgifts

Recommended Posts

Fourgifts Explorer

My daughter just diagnosed 

wasnt able to get into celiac clinic or meet with providers until October she is sick and trying to be careful

do her need separate dishes? Separate sponges? Does mouthwash and toothpaste need be gluten free ( I buy Colgate)

ehat about store brands

the gluten free app says “ no gluten containing ingredients” what does this mean? I see it on canned fruit veggies manwhich sauces and jellies to name a fre

so overwhelmed 

not everyhing is labeled does that mean not safe?

guidance and support appreciated 

thank you


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master
30 minutes ago, Fourgifts said:

My daughter just diagnosed 

wasnt able to get into celiac clinic or meet with providers until October she is sick and trying to be careful

do her need separate dishes? Separate sponges? Does mouthwash and toothpaste need be gluten free ( I buy Colgate)

ehat about store brands

the gluten free app says “ no gluten containing ingredients” what does this mean? I see it on canned fruit veggies manwhich sauces and jellies to name a fre

so overwhelmed 

not everyhing is labeled does that mean not safe?

guidance and support appreciated 

thank you

It’s getting late for me so a couple of things- 

first- don’t panic!  You won’t kill her if you don’t get it right the first few months.

second, use some common sense.  

Also, in the US, all labels will call out wheat in the ingredient section. Rye isn’t in much of anything but bread and crackers and it will be listed as an ingredient.  Barley is an ingredient, it will be listed but it might say “ malt vinegar”. Or “ malt flavor”.  Usually it will say barley malt.  

My oven timer is going off and Hub wants dinner.  I’ll check back tomorrow 

squirmingitch Veteran

Read this Newbie 101 and follow the links contained in the threads too. It will pretty much answer all your questions. It will tell you about what to replace in your kitchen & how to read labels etc......

I use Colgate or Crest toothpaste & mouthwashes as well. I have not seen any toothpaste or mouthwash that contained gluten. Think about it this way... wheat is 1 of the top 8 allergens. Would toothpaste manufacturers risk having 1 of the top 8 allergens in their product? Especially with allergens because people can have anaphylactic reactions to allergens. 

kareng Grand Master

Read the thread Squirmy linked above.  Maybe check out the what’s for dinner thread- just to see that we eat all kinds of food.  You don’t have to read all 9000 posts!  ?

Then come back here with questions.  But like I said, you don’t have to be perfect the first week.  And it really gets easier after about 6 months or so.  You stop questioning every product in your house because you start to know which standard ones are always OK.  

Start simple - basic foods like meat and fruit and maybe a gluten-free cookie.  

kareng Grand Master

This is a really helpful free e book .  From actual experts in Celiac.

https://www.cureceliacdisease.org/ebook/

 

 

GFinDC Veteran
(edited)
20 hours ago, Fourgifts said:

My daughter just diagnosed 

wasn't able to get into celiac clinic or meet with providers until October she is sick and trying to be careful

do she need separate dishes? Separate sponges? Does mouthwash and toothpaste need be gluten free ( I buy Colgate)

No, dishes are fine if they washed clean.  The thing to watch out for is scratched plastic dishware or scratched pots colanders etc where it can be hard to thoroughly clean the surface.

Sponges are not a problem was long you rinse the item carefully.

Yes, mouthwash and toothpaste need to be gluten-free.

What about store brands

You need to get only gluten-free items for her.

the gluten free app says “ no gluten containing ingredients” what does this mean? I see it on canned fruit veggies manwhich sauces and jellies to name a few

I don't use that app myself, so can't say for sure.  Usually I would consider an item with that labeling to be gluten-free though. 

so overwhelmed 

it gets easier with time.

not everything is labeled does that mean not safe?

No, oranges are naturally gluten-free and apples and grapes and many other foods.

guidance and support appreciated 

Gluten is anything with wheat, rye or barley in it.  That includes malt and barley malt.  For 10% or so of us oats are also a problem and need to be avoided.  The simplest way to get started gluten-free is to not eat processed foods.  Instead eat whole foods like, meats, nuts, veggies, and eggs.  This save a lot of time and worry by not having to read ingredients.  An orange or banana is gluten-free and any other whole food without added gluten also.  Gluten is found in many processed foods though.  Keeping off dairy for a few months can be helpful for faster healing.  Celiac damages the ability to digest dairy sugar (lactose).  After healing dairy may not be a problem.

thank you

 

Edited by GFinDC
spelling

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to BelleDeJour's topic in Dermatitis Herpetiformis
      14

      Dermatitis Herpetiformis - follow up dermatology appointment coming up

    2. - coeliacmamma replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      New diagnosis

    3. - Russ H replied to coeliacmamma's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      5

      New diagnosis

    4. - Scott Adams replied to MicG's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Test interpretations

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,121
    • Most Online (within 30 mins)
      10,442

    foxymama564
    Newest Member
    foxymama564
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @BelleDeJour, Have you thought about keeping a food mood poo'd journal?  Recording what and when you eat can help pinpoint possible culprits for your outbreaks.  A red dye additive used in some foods and drinks contains iodine.   Have you considered getting a genetic test to look for Celiac genes?  Having Celiac genes and a positive response to a gluten free diet can be used as part of a diagnosis of Celiac Disease without undergoing a gluten challenge.   Do get checked for Diabetes.  Activated Neutrophils are involved in making dermatitis herpetiformis blisters and they are also found in Diabetes.  Apparently, high glucose levels contribute to activating Neutrophils.  People with dermatitis herpetiformis have a 22% increased risk of developing Diabetes.  One study found a majority of people with dermatitis herpetiformis have four or more autoimmune diseases (Addison's, dermatitis herpetiformis, Diabetes, and thyroiditis being the most common). I have dermatitis herpetiformis and I developed Type Two Diabetes.  Ninety-eight percent of diabetics are deficient in Thiamine.  I changed my diet to the AutoImmune Protocol Diet and took Benfotiamine, a form of thiamine, that has been shown to increase insulin sensitivity.  I no longer have any symptoms of diabetes. Because half of Celiacs carry the MTHFR mutation, I supplement with methylated B vitamins.  Many of the B vitamins, including thiamine in the form Benfotiamine, improve the neuropathy that goes along with dermatitis herpetiformis (that itchiness without a blemish).   I take additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide).  Benfotiamine promotes intestinal health.  Thiamine TTFD improves Gluten Ataxia, brain fog, and fatigue.   I use J. Crow's  Lugol's iodine because I have had hypothyroidism.  It's rapidly absorbed through the skin, so it doesn't trigger the immune system in the digestive system.  Thiamine deficiency is also found in Hashimoto's thyroiditis.   And... Thiamine has been shown to calm down Neutrophils.  Calmed down Neutrophils don't make dermatitis herpetiformis blisters.  My skin has improved so much!   Hope this helps!  
    • coeliacmamma
      Thankyou all for your replies this has helped massively 
    • Russ H
      There are some really good recipes here: Gluten Free Alchemist The woman that runs it is UK based, and has a daughter with coeliac disease. I think she might be a food scientist as she is extremely knowledgeable about the properties of different starches and flours etc. Coeliac UK have a lot of UK relevant information regarding coeliac disease, and also have a recipes section: Coeliac UK Find Me Gluten Free is a good resource to find gluten free places to eat out. You can use the website or download their app. Paying for the premium services gives more advanced searches: https://www.findmeglutenfree.com/  
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! There are other things that may cause elevated tTg-IgA levels, but in general a reaction to gluten is the culprit:    
    • Scott Adams
      Be sure to check out our site's huge recipe section as well: https://www.celiac.com/celiac-disease/gluten-free-recipes/
×
×
  • Create New...