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IzzyWhite01

Breaking out every night?

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I've been breaking out every night for the past week I went to the ER they gave me a benadryl. Also note that I just got over pneumonia and thyriodist. Anyway every night my tounge feels strange and I break out with tiny itchy bumps all across my face and neck. The bottom edge of my lip gets puffy too and my throat gets so itchy unbelievably itchy. I'm short of breathe too even after my pneumonia cleared. The people at the er haven't been very helpful I can spend 2 dollars on a benadryl instead of driving 20 minutes to get a 1,000 dollar bill next month but anyway I'm going to make an appointment on monday I know my doctor is tired of seeing my face by now but I got to figure out what I'm coming in contact with. Idk if this is a food allergy or what's going on. I'm in my 20s by the way I was diagnosed with cealic via endocospy 3 years ago.

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Thyriodist? Is that a typo? When I google that I get nothing. Did you mean to type "thyroiditis" which is inflammation of the thyroid gland?

May we assume since you are a celiac that you are following a strict gluten free diet?

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Gluten exposures have caused me to develop  Autoimmune Hives which have last for over six months.  Daily eruptions would occur from head to toe.  Antihistamines helped with the itching and were prescribed by my allergist.  

Chronic Hives are commonly linked with thyroiditis.  I have Hashimoto’s.  Also Chronic Autoimmune Gastritis is also linked to thyroiditis.

Celiac Disease and other autoimmune disorders are under the umbrella of hypersensitivity and you can have more than one type of sensitivity going on.  This is just a Wikipedia source on the the topic, but it is a good explanation.  

https://en.m.wikipedia.org/wiki/Hypersensitivity

You can also research Mast Cell Activation Syndrome.  Your doctor (allergist) can order some tests.  Mast cell is new and many doctors are not aware of it.  I usually flare up (swelling, hives, vomiting, drop in blood pressure, etc.) when I take medication or get an insect bite.  Those are my worst triggers.  Which is bad, because I can not take even ibuprofen, aspirin or acetaminophen.  Old member Jebby, who is a baby doctor and has celiac disease, explains it well:

What to do?  My doctor had me on antihistamines which helped with the itching of the hives.    Because they erupted after a suspected gluten exposure (my DGP IgA was off the charts as confirmed by my GI), and I had the flu, a cold and a severe tooth infection within a six week period, my doctors think this triggered not just my hives, but almost a year later, I had a repeat endoscopy which revealed Chronic Autoimmune Gastritis that was not there when I was diagnosed six years ago.  By that time, I healed from celiac disease, but I think activating my celiac disease triggered the hives, the Gastritis, my Hashimoto’s and Mast Cell Issues.   So, a clean gluten-free diet is probably your best strategy.  That and being patient.  Very patient. 

P.S.  See an allergist because experiencing anaphylaxis is scary and can kill you.   An ER doctor’s goal is just to keep you alive (simple term).  

Edited by cyclinglady

Non-functioning Gall bladder Removal Surgery 2005

Diagnosed via Blood Test (DGP IgA only) and Endoscopy: March 2013

Hashimoto's Thyroiditis

Osteopenia/osteoporosis -- June 2013

Allergies and Food Intolerances

Repeat endoscopy/Biopsies: Healed

Celiac.com - Celiac Disease Board Moderator

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3 hours ago, RKBrumbelow said:

Have you had someone check your bedroom, bathing practice, night hygiene etc for mold or other allergens? I wonder if you stayed in a nice hotel for a night if you would break out. It really appears from the brief information given this is environmental. I am not saying you have not developed a hypersensitivity to something, in fact I suspect you have, but it could be anything from bedbugs to your sheets to mold in the walls etc. 

 

 

kind of like my sending gluten with my tongue, I am possibly allergic to gluten as well as having celiac, but what you describe is a histamine/allergic reaction so I would try and figure out what it was and eliminate it first.

 

an allergist or rheumatologist can help you identify the pathogen to your reaction

We do have a mold issues which we cant afford to removed at the moment I have no where else to go I think your right my breathing was fine today as soon as I went into the room with the mold I got short of breathe. I'm too poor to move unfortunately 

6 hours ago, trents said:

Thyriodist? Is that a typo? When I google that I get nothing. Did you mean to type "thyroiditis" which is inflammation of the thyroid gland?

May we assume since you are a celiac that you are following a strict gluten free diet?

Yes it was a typo I'm on my phone I don't have wifi at my home. Yeah my doctor said my thyriod was inflamed but it's not anymore. Yes I've been very strict for 3 years now 

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I would check with your local government social services department to see if there are any public resources available to address your home's mold problem. That presents some potentially serious short and long term health risks. When you explained that your breathing was fine all day until you returned home that was tell tale IMO, especially if that is a pattern you observe. Mold is serious stuff, at least some kinds of it.

Do you rent or own your own home. If you are a renter there may be some legal recourse to have this taken care of.

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On 3/1/2020 at 4:52 PM, trents said:

I would check with your local government social services department to see if there are any public resources available to address your home's mold problem. That presents some potentially serious short and long term health risks. When you explained that your breathing was fine all day until you returned home that was tell tale IMO, especially if that is a pattern you observe. Mold is serious stuff, at least some kinds of it.

Do you rent or own your own home. If you are a renter there may be some legal recourse to have this taken care of.

I still live with my mom, unfortunately she refuses to use government assistance. I'm not sure what else to do as I'm currently searching for a job 

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On 3/1/2020 at 5:17 PM, RKBrumbelow said:

I know the feeling, I bought a home and now it looks like I can never go back to it, I was in the process of drying in repairs on a 1926 craftsman before my most recent bout, and at least for now I can’t even walk, and have not been able to sit or stand on my own for over a month.

 

what you may find, however is that a dehumidifier might put a hold on the spores and hive you a modicum of relief.

 

i don’t know what country you are in, but in the US you might start off with Liheap which does utility bill assistance. They often have contacts to other social workers who can get you to where you need to be.

 

Thank you, yes I live in America. I'll look into lipheap though my mother doesn't like and I quote "getting handouts" it's going to be difficult to convince her. I'm currently searching for a job I'm trying to move out of this house but it's been difficult. Thanks everyone for replying 

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On 2/29/2020 at 9:12 PM, IzzyWhite01 said:

I've been breaking out every night for the past week I went to the ER they gave me a benadryl. Also note that I just got over pneumonia and thyriodist. Anyway every night my tounge feels strange and I break out with tiny itchy bumps all across my face and neck. The bottom edge of my lip gets puffy too and my throat gets so itchy unbelievably itchy. I'm short of breathe too even after my pneumonia cleared. The people at the er haven't been very helpful I can spend 2 dollars on a benadryl instead of driving 20 minutes to get a 1,000 dollar bill next month but anyway I'm going to make an appointment on monday I know my doctor is tired of seeing my face by now but I got to figure out what I'm coming in contact with. Idk if this is a food allergy or what's going on. I'm in my 20s by the way I was diagnosed with cealic via endocospy 3 years ago.

i had this from a dust allergy. the doctors assumed detergent first because i thought i was clean and they assumed i was clean. i put a dusty book on my pillow or something.

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