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Did Anyone Have This Problem After Dx


Moongirl

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Moongirl Community Regular

After my Dx i started to get this burning/acid churning going on in my stomach. I never had a problem before with acid or reflux...it all started after i went gluten-free, anyone have this problem too?!!?

Im taking prilosec for it now which helps but I wonder why this happend in the first place....i thought it could be due to the diet, even my GI was baffeled, but he doesnt think it related to the celiac... i thought things were supposed to get better, whats going on here? :unsure:


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jerseyangel Proficient

Yes--I never was troubled with reflux before. I've been gluten-free since last June and started having the reflux/gas/burning in December.

Moongirl Community Regular
Yes--I never was troubled with reflux before. I've been gluten-free since last June and started having the reflux/gas/burning in December.

could anyone explain what it was? or did they just put u on a med?

jerseyangel Proficient

My GI, as he was closing my folder and heading towards the door, told me it was gas in my upper abdomen and to take Phazyme. I asked my GP the last time I was in and she nodded in agreement and said Phazyme is what she would suggest, too. So, there ya go--I won't be much help. :D But I would also be interested in what others have to add.

penguin Community Regular

I've had the annoyance of which you speak for a long time. Just one in a laundry list of symptoms that I chalk up to celiac. I get it from stress, usually. Not really from foods, unless I've been glutened.

Tums, prilosec, tagamet, tylenol, tibetian chanting under a full moon on a tuesday when the planets aligned ( :rolleyes: )...nothing seemed to help.

I sleep on a pyramid of pillows (I don't think I need it now, but it's habit), and I take antispasmodics (I use bentyl as needed) when it flares up.

I don't get it as much since going gluten-free, so I'm not much help for you. Has your dr ever given you antispasmodics?

Moongirl Community Regular
My GI, as he was closing my folder and heading towards the door, told me it was gas in my upper abdomen and to take Phazyme. I asked my GP the last time I was in and she nodded in agreement and said Phazyme is what she would suggest, too. So, there ya go--I won't be much help. :D But I would also be interested in what others have to add.

has that helped u? and r u still on it? i dont like taking prilosec, even though it makes the burning go away

jerseyangel Proficient

My doctor did give me antispasmotics--I have Neulev and Pamene. I thought those were for the D type cramping?

Moongirl--it does help a little bit--kind of gets the gas moving.


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Moongirl Community Regular
I've had the annoyance of which you speak for a long time. Just one in a laundry list of symptoms that I chalk up to celiac. I get it from stress, usually. Not really from foods, unless I've been glutened.

Tums, prilosec, tagamet, tylenol, tibetian chanting under a full moon on a tuesday when the planets aligned ( :rolleyes: )...nothing seemed to help.

I sleep on a pyramid of pillows (I don't think I need it now, but it's habit), and I take antispasmodics (I use bentyl as needed) when it flares up.

I don't get it as much since going gluten-free, so I'm not much help for you. Has your dr ever given you antispasmodics?

oh yah, we tried Levsin once, and boy the side effects were awful, i said id rather deal with the pain!

penguin Community Regular
oh yah, we tried Levsin once, and boy the side effects were awful, i said id rather deal with the pain!

I didn't do well on the Levsin, that's why I have the Bentyl. I think it works better and faster, too. My dr originally gave it to me to yes, stop the D cramping, but also to stop the digesting-glass pain in my actual stomach. It was a nice (and effective) change from the narcotics the dr would thow at me.

It was a clue to the dr when the bentyl didn't stop the daily D.

Now I'm on it as needed instead of the originally presrcibed 4x per day, every day. I only take it a few times a week, and usually only if I've been glutened!

jerseyangel Proficient

Geesh--shouldn't be surprised the doctor didn't tell me I could use the antispaz. for this <_< . Thanks!

Susan123 Rookie

I only get the burning sensation after eating gluten. After eating gluten for a year from a gluten challege my stomach lining was raw. Dr said it is from excess stomach acid that is produced due to sensitivity/allergy. I have a wheat allergy as well as gluten sensitivity. Once I stopped gluten the burning went away in a week. When I accidentially eat gluten it comes back the next day.

bklyn Enthusiast

I've had this burning stomach and nausea since February. I've been gluten-free since Sept. 2004. The same thing happened to me last year around the same time, and it lasted for several months. My dr. doesn't think it['s related to celiac, but after several tests, he says he really doesn't know. I'm taking Zantac 150, but it doesn't help much. I never had this problem until I went gluten-free! It's a mystery.

Lisa Mentor

I have a large Hiatal Hernia as well as gastritis which is the cause of my burning and reflux.

I take Prilosec twice a day, morning and night...that seems to really help. Also sometimes a zantac when in real need.

Lisa

bklyn Enthusiast

Lisa,

I've tried Prilosec, but it gives me a giant headache. Also, I've read that once you start using the PPIs, that you can't stop. I feel like Zantac is an "old" medicine, with not so many side effects.

Guest Robbin

I have had the same burning, sharp pain in the stomach for quite a while (years) but it did seem to get worse after going gluten-free in January. It didn't stop until a couple of weeks ago when I got my last test results back and found out I was casein intolerant. I never was a milk drinker and thought I was lactose intolerant, so I ate cheese. (LOVED cheese, sniff) Well, I stopped all dairy now and I have to say, with the exception of an accidental gluten incident (still learning), the acid/pain/gas/nausea has stopped. I sincerely hope that my giving up cheese will help others 'cause it has helped me, but oh, do I miss it!!! Try going completely dairy free and see if it helps you. Just a thought :)

covsooze Enthusiast

For me, stomach burning has always been the indication that I've eaten something that disagrees with me. It stopped for a couple of weeks when I went gluten-free then resurfaced. For me, it's a good indicator of me being intolerant to something. Like Robbin, cheese was also a problem for me. I too have never liked milk - have always known I can't 'stomach' it and remember mum thinking I was being fussy about milk as a child - but I adore cheese, so miss it loads too :( However, it's worth it to feel better :)

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