Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Symptoms, possible celiac


DK1984

Recommended Posts

trents Grand Master
19 minutes ago, DK1984 said:

Allright.

but i have to eat gluten the next 2-3 weeks because of my upcoming biopsy so i have to wait with a Low histamine and no gluten diet until after the biopsy and Then i Will try that out.

thanks so much for helping me🙏🙏🙏

Understood.

  • 4 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 56
  • Created
  • Last Reply

Top Posters In This Topic

  • DK1984

    24

  • trents

    19

  • knitty kitty

    8

  • Outlaw

    4

Top Posters In This Topic

  • DK1984

    DK1984 24 posts

  • trents

    trents 19 posts

  • knitty kitty

    knitty kitty 8 posts

  • Outlaw

    Outlaw 4 posts

DK1984 Apprentice
On 10/12/2022 at 5:35 PM, trents said:

Understood.

So i Got my biopsy result and i do NOT have celiac according to the gut doctor.

she said she suspect IBS but i dont Think that is it.

for example:

today i woke up feeling ok. I ate breakfast at 10:00 and i had, 1 banana, 4 homemade cookies made of (peanut butter, glutenfree flour, 1 eg, 1 tablespoon honey) and water and coffee. After that i still felt ok.

at 13:00 i had lunch and had: 100 grams of white Rice, 1 can of tuna, 1 tablespoon og olive oil. And water and coffee. Still feeling ok.

at 15:00 i had an energy drink (not a diet)

so at around 16:00 i started getting problems. Right side of nose started to be congested. Light presure in the head, light pain in the Right side of neck, and tiredness.

maybe i have an intolerence? Question is, was it something i ate the Day before? Was it something i ate at the breakfast, and the stuff just has an delayed allergi symptoms or was it the energy drink, or maybe it was just nothing i ate, and it would have been the same why if Nihad not eaten or drinked anything 🤷‍♂️

 

knitty kitty Grand Master

@DK1984,

Hi!  Did you have your deviated septum fixed?  

I'm still of the opinion you are not getting enough protein and thiamine in your diet. 

You are having lots of carbohydrates for breakfast and no protein.  Peanuts and coffee contain thiaminase that destroy Thiamine.  

Heavy on carbohydrates and fats at lunch.  Canned tuna is protein, but canned foods are not good sources of thiamine.  The canning process destroys thiamine.  Fresh meats are best.  

More carbohydrates in the energy drink.  

You can have Thiamine deficiency without Celiac Disease.  If we eat lots of carbohydrates and not enough thiamine, our system gets depleted and our bodies start having problems.  This can include having sinus problems! 

Here's Dr. Lonsdale's explanation...

https://www.hormonesmatter.com/nasal-cycle-sinusitis-allergies-something-else/

And high carbohydrate diet....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

DK1984 Apprentice
32 minutes ago, knitty kitty said:

@DK1984,

Hi!  Did you have your deviated septum fixed?  

I'm still of the opinion you are not getting enough protein and thiamine in your diet. 

You are having lots of carbohydrates for breakfast and no protein.  Peanuts and coffee contain thiaminase that destroy Thiamine.  

Heavy on carbohydrates and fats at lunch.  Canned tuna is protein, but canned foods are not good sources of thiamine.  The canning process destroys thiamine.  Fresh meats are best.  

More carbohydrates in the energy drink.  

You can have Thiamine deficiency without Celiac Disease.  If we eat lots of carbohydrates and not enough thiamine, our system gets depleted and our bodies start having problems.  This can include having sinus problems! 

Here's Dr. Lonsdale's explanation...

https://www.hormonesmatter.com/nasal-cycle-sinusitis-allergies-something-else/

And high carbohydrate diet....

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Hope this helps!

Hello knitty. Thx for answering.


Yes i had my septum fixed 4 weeks back. I allmost Healed up on that part. After 2 weeks both my nostrils was really open up an alot of Air passage in both nose. But This last week my Right side has started to block a bit.

 

regarding thiamin, is that the same as B12? I just had a test for B12 2 days back and it was perfectly normal.

im having difficult finding out what i should eat. Im pretty tall and skinny so i Also need som food that contain calories because i cannot afford to looks weight. I usually weight around 80 kg and im 192cm. But i am Down at around 76 now even though i eat a normal good amount of food Daily. I Think all these checks at the hospital where i had to faste. Had me drop weight. Or maybe This eating gluten and not eating gluten is the Reason. 🤷‍♂️
 

so what would good Daily diet be, with enough calories, if i should get thiamine that you talk about, but avoid gluten, diary, Rice, sugar.?

knitty kitty Grand Master

Here's some interesting articles....

https://www.hormonesmatter.com/nasal-cycle-sinusitis-allergies-something-else/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Follow the Autoimmune Protocol Diet.  

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Thiamine is Vitamin B 1. Cobalamine is Vitamin B12.  There are eight different vitamins in this group of B vitamins.  Blood tests are not an accurate measurement because these vitamins work inside the cells.  Blood tests don't reflect a deficiency inside the cells of the tissues of the body.  We need all eight because they all work together.  

You can have a thiamine deficiency without Celiac Disease.  If you eat a diet of high carbohydrate foods, you need more thiamine.  The more carbohydrates you eat, the more  you need higher levels of Thiamine.  

The AIP diet consists of Meat, veggies, some fruits.  No GRAINS, no dairy, no beans (legumes), no nightshades, no processed foods.  

Hope this helps.

DK1984 Apprentice
12 hours ago, knitty kitty said:

Here's some interesting articles....

https://www.hormonesmatter.com/nasal-cycle-sinusitis-allergies-something-else/

And...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8533683/

Follow the Autoimmune Protocol Diet.  

https://www.healthline.com/nutrition/aip-diet-autoimmune-protocol-diet

Thiamine is Vitamin B 1. Cobalamine is Vitamin B12.  There are eight different vitamins in this group of B vitamins.  Blood tests are not an accurate measurement because these vitamins work inside the cells.  Blood tests don't reflect a deficiency inside the cells of the tissues of the body.  We need all eight because they all work together.  

You can have a thiamine deficiency without Celiac Disease.  If you eat a diet of high carbohydrate foods, you need more thiamine.  The more carbohydrates you eat, the more  you need higher levels of Thiamine.  

The AIP diet consists of Meat, veggies, some fruits.  No GRAINS, no dairy, no beans (legumes), no nightshades, no processed foods.  

Hope this helps.

So if i eat viramin b1 pills i could still eat High on carbs?

issue is that im getting all sort of recommendation and i am really unsure what i should follow.

some people say that food with High histamine like advocado should be avoided

doc that said she suspect i had IBS said avoid Meat from animals that has 4 legs, so she meant avoid beef and pork.

and you telling me to have alot of Meat with the AIP diet.

and on top of that im loosing weight because i dont know what i should eat anymore because im afraid everytime i put something in my mouth. Im thinking, “does it have High in histamine” “does it contain wheat/gluten” “does it contain diary” “does it have to much sugar” “and now does it have to High on carbs”

Im really lost on what to do and eat.

 

knitty kitty Grand Master

Ask your doctor to refer you to a nutritionist.  

Here's a  high histamine diet explanation...

https://www.healthline.com/health/low-histamine-diet

If you are losing weight, fats are not going to give you the protein you need to maintain and rebuild muscle.  

It's your choice which type of protein you want to eat.  Smoked meats, sausages, processed meats, canned fish, fermented foods, like yogurt and sauerkraut and even wines, are high histamine.  Avocado, tomatoes, eggs, bananas, strawberry are all high histamine.  There's still lots left to eat if you avoid all these.  

You want a balance between carbohydrates and proteins.  Eating a diet made mostly of carbohydrates and little protein  is not going to prevent the weight loss.  Even if you do eat B1 pills, carbohydrates don't contain the proteins needed to make more muscle.  Carbohydrates contain energy that your body uses as fuel.  Without enough thiamine, carbohydrates are stored as fat.  Then without enough protein, the body burns that fat plus the muscles.  

This book has been very helpful to me...

https://www.amazon.com/Paleo-Approach-Reverse-Autoimmune-Disease/dp/1936608391

Hope this helps!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,077
    • Most Online (within 30 mins)
      10,442

    terrificterry
    Newest Member
    terrificterry
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...