Jump to content

  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Rash

Sally Walker

By Sally Walker
in Dermatitis Herpetiformis

 Share

Recommended Posts

Sally Walker Newbie
Sally Walker
Posted

This rash is new. My chest, my back. My hairline. What triggered it? I want to know why it started so i can stop it from  coming back, if it ever goes away.  Im using lidocaine pain patches for the itch and they work but i want it to go away. Any thoughts?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wheatwacked Veteran
Wheatwacked
Posted

Welcome to the forum Sally. Could you please add some background information. Like are you diagnosed with Celiac, when did the rash start? Has it been seen by doctors?

Sally Walker Newbie
Sally Walker
Posted
  • Author

I have celiac disease, the rash started about a month ago but its worse now, and i have not shown it to a doctor. 

Scott Adams Grand Master
Scott Adams
Posted

Is your diet 100% gluten-free? Do you eat in restaurants?

trents Grand Master
trents
Posted
3 hours ago, Sally Walker said:

This rash is new. My chest, my back. My hairline. What triggered it? I want to know why it started so i can stop it from  coming back, if it ever goes away.  Im using lidocaine pain patches for the itch and they work but i want it to go away. Any thoughts?

Dapsone?

Sally Walker Newbie
Sally Walker
Posted
  • Author

Before I go to the doctor I want to see what I can find in my prescription and vitamins that is causing it and if I can't do any detective work then I'll go to the doctor

19 hours ago, Scott Adams said:

Is your diet 100% gluten-free? Do you eat in restaurants?

I'm very careful to be 100% gluten-free because I know what it does to me. But maybe something has slipped in that I don't know about

knitty kitty Grand Master
knitty kitty
Posted

@Sally Walker,

Welcome to the forum! 

I get DH rash if I'm exposed to iodine in foods like crustaceans and seafood, and nori (seaweed). Even dairy has high levels of iodine.  I use Pink Himalayan Salt, because I react to sea salt and iodized salt.  

Check your vitamins labels to see if they have added iodide components.  Some prescription medications can contain iodide, too.  

I've found that taking Niacin in the form of nicotinic acid (not the same as nicotine in tobacco) that causes flushing helps my skin recover faster.  

Hope this helps!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Scott Adams Grand Master
Scott Adams
Posted

Someone in another thread just recommended U-Lactin Lotion for DH, which is the first time I've heard about it.

MADMOM Community Regular
MADMOM
Posted
On 1/4/2023 at 3:06 PM, Sally Walker said:

Before I go to the doctor I want to see what I can find in my prescription and vitamins that is causing it and if I can't do any detective work then I'll go to the doctor

I'm very careful to be 100% gluten-free because I know what it does to me. But maybe something has slipped in that I don't know about

night shade veggies can also cause inflammation and rashes - read up on them - i had a reaction from tomatoes a few months ago that gave me a flare up of eczema on my eyes for a week 

knitty kitty Grand Master
knitty kitty
Posted
On 1/4/2023 at 2:06 PM, Sally Walker said:

Before I go to the doctor I want to see what I can find in my prescription and vitamins that is causing it and if I can't do any detective work then I'll go to the doctor

Are any of your prescriptions sulfa drugs?  

 

Sally Walker Newbie
Sally Walker
Posted
  • Author

I called the manufacturer about 1. They said no. Ill check on the other one.

knitty kitty Grand Master
knitty kitty
Posted

@Sally Walker,

That's good to know!  

I have Hypersensitivity type four to sulfa drugs and iodide.  

@MADMOM is correct about nightshades being inflammatory.  

Vitamin B12 and Vitamin C help calm inflammation and clear histamine.  Lots of histamine is produced during flare ups as part of the autoimmune response.  Niacin will help, too. 

Talk to your doctor about checking for vitamin and mineral deficiencies as part of proper follow up care for Celiac patients.  

Hope this helps!

Sally Walker Newbie
Sally Walker
Posted
  • Author
On 1/7/2023 at 3:12 PM, Scott Adams said:

Someone in another thread just recommended U-Lactin Lotion for DH, which is the first time I've heard about it.

Thanks

On 1/9/2023 at 1:17 PM, knitty kitty said:

@Sally Walker,

That's good to know!  

I have Hypersensitivity type four to sulfa drugs and iodide.  

@MADMOM is correct about nightshades being inflammatory.  

Vitamin B12 and Vitamin C help calm inflammation and clear histamine.  Lots of histamine is produced during flare ups as part of the autoimmune response.  Niacin will help, too. 

Talk to your doctor about checking for vitamin and mineral deficiencies as part of proper follow up care for Celiac patients.  

Hope this helps!

Thanks

MiriamW Contributor
MiriamW
Posted

Hi @Sally Walker, I hope that you are feeling better. A friend of mine started to itch recently from peanut butter. I also tend to itch after eating nuts and gluten-free products containing flour and starches. 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

      @glucel, There's a strong correlation between thiamine deficiency, hypoxia, and insomnia. Thiamine is needed to help red blood cells carry oxygen. In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular...
    2. Aretaeus Cappadocia
      - Aretaeus Cappadocia commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks. Not a big thing, particularly because most likely it is "true" but not yet demonstrated.
    3. glucel
      - glucel replied to glucel's topic in Super Sensitive People
      17

      iron digestibility

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation...
    4. Scott Adams
      - Scott Adams commented on Scott Adams's article in Latest Research
      3

      New Research Reveals How Antibody Genes May Shape the Immune Response in Celiac Disease

      Thanks for the thoughtful comment. You are right that the study’s main conclusion was cautious: the researchers found that inherited antibody-gene variants significantly shape the naïve B-cell receptor repertoire, including usage of some gene segments involved in celiac-related antibody responses, but they did not find strong evidence that polymorphisms in...
    5. knitty kitty
      - knitty kitty replied to Bogger's topic in Related Issues & Disorders
      6

      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      I have osteoporosis and have crushed three vertebrae. I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health). I tried Fosomax, but it tore up my insides. I prefer the supplements. I feel better and my bones feel stronger. References...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      134,003
    • Most Online (within 30 mins)
      10,442
    michelinagiggles
    Newest Member
    michelinagiggles
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

    • There are no registered users currently online

  • Upcoming Events

  • Posts

    • knitty kitty
      iron digestibility

      By knitty kitty · Posted

      @glucel,  There's a strong correlation between thiamine deficiency, hypoxia, and insomnia.  Thiamine is needed to help red blood cells carry oxygen.  In thiamine deficiency, hypoxia (lack of oxygen in tissues) occurs, and this can result in insomnia. Hypoxia causes systemic inflammation, increases inflammatory markers, and is associated with cardiovascular events.  Curiously, thiamine deficiency is correlated with excessive daytime sleepiness and oversleeping.   I found a combination of Tryptophan, Pyridoxine B 6, magnesium, and L-theanine works very well for inducing sleep.  Sometimes, I add Passion Flower Extract and/or Sweet Melissa.  There's no side effects the next morning with Passion Flower, it just induces sleepiness.  Sweet Melissa is groovy, and has anti-inflammatory effects on the digestive system.   I prefer to take 250 mg Benfotiamine and 100 mg Thiamine TTFD in the mornings and another dose of Benfotiamine at lunch.  I try not to take any thiamine after four p.m. because it keeps my brain so energized and wanting to think... Oh, I do take a combination of another form of thiamine (sulbutiamine), Pyridoxine and Cobalamine for a pain reliever sometimes, but I can sleep after taking that.  But thiamine does help regulate circadian rhythm.   Make sure you're getting Omega Three fats! They'll help you satisfy that late night carb craving with fewer carbs.  Flaxseed oil, olive oil, sunflower seed oil.  Nuts and nut butters, like walnuts and cashews, are good, too, if you can tolerate them.    Try taking the 100mg thiamine HCl before your aerobics and see if there's a difference.  Sweet dreams! References: Network Pharmacology Analysis of the Potential Pharmacological Mechanism of a Sleep Cocktail. ......(Skip to Section Four) https://pmc.ncbi.nlm.nih.gov/articles/PMC11201840/ Effects of Melissa officinalis Phytosome on Sleep Quality: Results of a Prospective, Double-Blind, Placebo-Controlled, and Cross-Over Study https://pubmed.ncbi.nlm.nih.gov/39683592/
    • glucel
      iron digestibility

      By glucel · Posted

      Thanks to everybody for your help. I reread the dr's notes from the biopsy procedure and it seems I had worse than atrofied villi. It was termed flattened mucosa. So while iron ferratin levels are normal my bet is, as kitty alluded to, iron not getting into cells. I have dr appointment next mo but don't hold out a lot of hope, There is strong correlation of low red blood cells and insomnia so at least I finally solved that one after few yrs of being mislead. I intend to take stop taking 100 mg b1 at noon time and start 150 mg benfotiamin. I may or may not add the the 100 mg b1evening meal. BTW, last night had 1/3 lb beef. potato then 2 bowls cereal and an apple later in the eve. I generally do my areobics before supper so maybe that contributes to the hunger.  
    • knitty kitty
      Osteoporosis: Does the body start rebuilding bones after starting a gluten-free diet?

      By knitty kitty · Posted

      I have osteoporosis and have crushed three vertebrae.  I supplement with Lysine, Tryptophan, threonine, calcium, Boron, Vitamins D, A, and K, and the B vitamins (folate, B12, and Thiamine B1 especially for bone health).   I tried Fosomax, but it tore up my insides.  I prefer the supplements.  I feel better and my bones feel stronger.   References: A composite protein enriched with threonine, lysine, and tryptophan improves osteoporosis by modulating the composition and metabolism of the gut microbiota https://pubmed.ncbi.nlm.nih.gov/41915427/
    • knitty kitty
      Coeliac And Cardio Vascular Disease

      By knitty kitty · Posted

      @Aileen Cregan, I was put on high blood pressure medication, too. But I was able to correct my high blood pressure by supplementing with Thiamine Vitamin B 1.  I am no longer on high blood pressure medication.  I feel much better without the medication. I continue to supplement Thiamine in the form Benfotiamine.   The particular high blood pressure medication I took was Norvasc (amlodipine), which causes thiamine deficiency by blocking thiamine transporters so that thiamine cannot enter cells.  Benfotiamine can get into cells by merging with the cell membrane, thus bypassing nonfunctional thiamine transporters.   Indapamide also blocks thiamine transporters! The use of this type of medications that block thiamine precipitated Wernickes Encephalopathy.  My doctors did not recognize the connection to Thiamine deficiency.  I nearly died.   Talk to your doctor and dietician about supplementing with Benfotiamine, a fat soluble form of thiamine that bypasses thiamine transporters.  Ask for an Erythrocyte Transketolace Activity Assay to check your thiamine levels asap.  Routine blood tests for thiamine are not an accurate measure of  thiamine in the body.   Absorption of essential vitamins like Thiamine is altered in Celiac Disease due to damaged villi, inflammation and dysbiosis.  The Gluten Free diet can be lacking in vitamins and minerals.  Discuss supplementing with all the eight B vitamins,  the four fat soluble vitamins and necessary minerals. Please keep us posted on your progress! References: Drug-nutrient interactions: discovering prescription drug inhibitors of the thiamine transporter ThTR-2 (SLC19A3) https://pubmed.ncbi.nlm.nih.gov/31764942/ The Pivotal Role of Thiamine Supplementation in Counteracting Cardiometabolic Dysfunctions Associated with Thiamine Deficiency https://pmc.ncbi.nlm.nih.gov/articles/PMC11988323/
    • knitty kitty
      Terrible Neurological Symptoms

      By knitty kitty · Posted

      Hi, @Sue7171, I thought you might be interested in this article about Lyme disease and the discussion after the article.   I found this article enlightening.  The finding that not only can alpha gal be problematic, but advantageous infection with Staph aureus can be problematic.   The Acari Hypothesis, VII: accounting for the comorbidity of allergy with other contemporary medical conditions, especially metabolic syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC11983536/  
×
×
  • Create New...