Celiac induced small fiber neuropathy

[Carlyallyn]

Hello,

I appreciate any feedback and would appreciate if it could stay on the more positive side of things. I am 3 months gluten free and have seen some improvement in my neuropathy but still have daily tingling/burning/discomfort. For those who have seen resolve of these symptoms, how long did it take to recover? Was it slow? Any feedback about your experience with this is appreciated. 

[trents]

Welcome to the forum, @Carlyallyn!

I would suggest taking a high potency gluten free B-complex and 5000IU of D3. B-vitamins and D3 are key neurological nutrients.

How long do you believe you lived with celiac disease before you were diagnosed?

[Scott Adams]

I agree that supplementation can help.

The most common nutrient deficiencies associated with celiac disease that may lead to testing for the condition include iron, vitamin D, folate (vitamin B9), vitamin B12, calcium, zinc, and magnesium.  Unfortunately many doctors, including my own doctor at the time, don't do extensive follow up testing for a broad range of nutrient deficiencies, nor recommend that those just diagnosed with celiac disease take a broad spectrum vitamin/mineral supplement, which would greatly benefit most, if not all, newly diagnosed celiacs.

Because of this it took me decades to overcome a few long-standing issues I had that were associated with gluten ataxia, for example numbness and tingling in my feet, and muscle knots--especially in my shoulders an neck. Only long term extensive supplementation has helped me to resolve these issues.

 

 

 

[pjrhancock]

Thank you so much for this info!  I was diagnosed just a year ago, at age 69, and suffer from similar neuropathy symptoms. I was advised that all I needed to do was to avoid gluten, and take Vitamin D3 and Calcium supplements!

[Scott Adams]

I would include a good quality B complex as well because low B12 levels, or issues metabolizing it, can also lead to those symptoms.