Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My son newly diagnosed

Nicola McGuire
 Share
Go to solution Solved by Scott Adams,

Recommended Posts

Nicola McGuire Newbie
Nicola McGuire
Posted

It’s quite overwhelming receiving diagnosis my son is 14 should I have had an apt for him to discuss food etc ? I have read up a bit but have lots of questions re cross contamination 

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


trents Grand Master
trents
Posted

Welcome to the forum, @Nicola McGuire!

An appointment with a dietician might be helpful. In the meantime, this article might get you off to a good start:

It is easy to eliminate major sources of gluten in the diet but to arrive at a consistently "gluten-free" state is much more challenging. There is a real learning curve involved and part of that is just experience. In time, you and your son will develop a sixth sense of where gluten might be hiding as you shop for food and eat out. Eating out is the biggest challenge. You will make mistakes so give yourselves some grace. It is important that your son take ownership of this new health reality as you cannot be with him 24/7.

  • Solution
Scott Adams Grand Master
Scott Adams
Posted
  • Solution

Welcome to the forum, the biggest source of cross-contamination would be eating our in restaurants--even ones that have a gluten-free menu. If your son was just recently diagnosed I'd recommend trying not to eat out during his healing period, which could last up to a year or more, depending on how much villi damage he had.

Nicola McGuire Newbie
Nicola McGuire
Posted
  • Author

Thank you so much I will speak to the doctor for dietician apt . Thank you for your advice Beth much appreciated 

Create an account or sign in to comment

You need to be a member in order to leave a comment

Create an account

Sign up for a new account in our community. It's easy!

Register a new account

Sign in

Already have an account? Sign in here.

Sign In Now
 Share
Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      129,622
    • Most Online (within 30 mins)
      7,748
    Veronica27
    Newest Member
    Veronica27
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.2k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      CVS (Cyclic vomiting syndrome)

      By trents · Posted

      Be aware that putting your child on a gluten free diet ahead of an official celiac diagnosis will invalidate any attempt to arrive at an official diagnosis. If at some point in time after commencing a gluten free diet you wish to have your child tested for celiac disease, he/she would need to go back to eating normal amounts of gluten for weeks/months leading up to the testing date. And it is often the case that once gluten has been withdrawn for a significant amount of time, the reactions are much stronger when going back on it.
    • Marky0320
      CVS (Cyclic vomiting syndrome)

      By Marky0320 · Posted

      I'm investigating the possibility of having celiac disease. My kid has Coffins Lowery syndrome, a rare form of Austism, and constantly has these CVS episodes. We suspect it could be related to Gluten sensitivity or celiac. We just started the diet last week, and we'll keep an eye on any improvements.
    • Alibu
      Waiting on biopsy after positive bloodwork, but also not really believing this is real

      By Alibu · Posted

      @Scott Adams thank you again!  You definitely 100% get it!!  It's so helpful to know that what I'm going through is normal and part of the process. My endoscopy just got scheduled for June 10 (I'm going to be traveling or else they could have gotten me in earlier) so I have 2 more weeks of eating gluten.  I'm assuming I should just go to the endoscopy and start going gluten free as soon as it's done?  Or should I wait for the biopsy to come back just in case they have to repeat something?  
    • trents
      I am wondering if my symptoms are Celiac Disease related..

      By trents · Posted

      Welcome to the forum, @NightRaven92! The symptoms you describe definitely align with celiac disease or at least NCGS (Non Celiac Gluten Sensitivity). That, and the family history of celiac disease, certainly warrant being tested for it. The first stage of diagnosis involves blood tests looking for antibodies that are more or less specific to celiac disease. If the blood antibody testing is positive, there is usually a second level diagnostic procedure for confirmation involving an endoscopy/biopsy of the small bowel lining, looking for the damage caused by celiac disease. So, when you go to your appointment, I would suggest approaching your doctor this way to simplify the experience: 1. For six weeks I have been experiencing stomach cramps, diarrhea, feverishness, headaches and joint pain when I consume wheat products. 2. I have relatives with celiac disease and other autoimmune disorders such as Hashimoto's thyroid disease. 3. I would like to be tested for celiac disease. Would you be willing to order the TTG-IGA antibody test and a total IGA test? TTG-IGA stands for "Tissue Transglutaminase Immunoglobulin A". Total IGA is also known as "Immunoglobulin A (IgA) test" (Note: the TTG-IGA is the "centerpiece" of celiac antibody testing. There are others but this one is the most important and the most popular one with physicians. But is also very important to have total IGA checked since if you are IGA deficient, it will produce artificially lower TTG-IGA scores and possible false negatives for this one and other IGA antibody tests as well.) It's very important that you not begin cutting back on gluten consumption before the antibody test blood draw.
    • NightRaven92
      I am wondering if my symptoms are Celiac Disease related..

      By NightRaven92 · Posted

      Hey so on June 18th next month,I made an appointment next month with my doctor,because I think what could be causing my symptoms,is related to Celiac Disease. Here is my symptoms & stuff..so anyway autoimmune disease runs on my mom's side of the family. My grandma has an autoimmune disease related to her thyroid,& my aunt has Celiac Disease. I have been having my symptoms for almost 6 weeks now,from what I have noticed anyway. My symptoms are:Stomach pain/cramping,chronic diarrhea,I will feel feverish out of nowhere,I get alot of headaches & pain in my joints,& I noticed that literally after I consume anything with gluten in it,I will get nausea,sick to my stomach,pain in my abdomen & around my stomach,& not to mention the diarrhea that can often come out as very painful afterwards,if I consume gluten foods. I have not felt well in what feels like forever & that's of course why I made a dr appointment. Anyway I could really use some advice on this & how I could maybe bring my symptoms up with my dr without confusing her too much..thanks in advance..
×
×
  • Create New...