Celiac.com Sponsor (A1):

Join eNewsletter

Celiac.com Sponsor (A1-m):

Join eNewsletter


This topic is now archived and is closed to further replies.


Does It Ever Get Better?

Recommended Posts

I'm getting frustrated lately and I was wondering if there is anyone out there with some encouragement. Does it ever get better?? Will we ever feel "good" again? I've been gluten free for almost 6 months now and still have major stomach issues. Will that ever go away?? It's getting very depressing.

Please someone tell me something positive.

Share this post

Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

I've been gluten free for almost one and a half years now and I feel great. :) Six months into the diet though I did still feel crummy a lot. I had gotten better in some respects but I also had some symptoms that I didn't have before going gluten free. But nowadays I feel fine unless I eat gluten or dairy. I hope you will soon, too!


Share this post

Link to post
Share on other sites

My stomach issues are all gone. The only time I get sick is if I get cross contaminated and that is very seldom. I have been gluten free for 2 years and I was much better after 6 months. Could you possibly be getting cross contaminated? Have you checked your lipsticks, shampoos and do you have a toaster that has never had regular bread in it? These are all just suggestions, but you have probably already thought of them. I hope you feel better soon.

"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma


Hypothyroid and Hperthyroid

Essential Tremors



Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia


Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

Share this post

Link to post
Share on other sites

you should be feeling better soon. It does take a while to make it completely better, but over time you will start noticing positive effects. Just as long as you are cutting out all gluten sources, you should be feeling better soon.


Share this post

Link to post
Share on other sites

I started to notice some improvement after about six months on the diet, but I never really started feeling better until about 1 year on the diet. During the first year on the gluten-free diet, I felt like you and I was getting very frustrated (I am sure you could find some of my old posts of me wondering what was going on with myself). During that time, I realized that I had issues with dairy products and that I was eating gluten free chips that were contaminated so that probably contributed to the problem. After a year, I started to feel so much better. There is hope!

Carrie Faith

Diagnosed with Celiac Disease in March 2004

Postitive tTg Blood Test, December 2003

Positive Biopsy, March 3, 2004

Share this post

Link to post
Share on other sites

My digestive problems cleared up about 5 - 7 months into the gluten free and food allergy diets. I did both at the same time, because I was in pain 24/7. Also, stopped eating meat and all processed foods. And I eat organic when affordable.

Symptom relief may have happened sooner if I had realized I was getting soy lecithen and oat bran regularly in my meal replacements powders. I knew they were hurting my stomach, I just figured it was all the vitamins in them. Now, I just use rice or hemp protein and eat healthy.

I'm hoping this diet will eventually help with my CFIDS/FM symptoms too. I've seen a little improvement, brain fog gone, more energy, but nothing concrete yet.

Hang in there ... Marcia

Jan 1990 - Dx CFS/ME/FM (URI's, Ataxia, myoclonus, orthostatic hypotension, insomnia, brain fog, swollen lymph nodes, sore throat... ) Completely Disabled (housebound and bedridden at times)

2004 - Digestive pain all the time.

May 2004 - Hiatal hernia, erosive gastritis, gastroparesis (endoscopy)

August 2004 - Colon polyps, diverticulitus, internal hemorrhoids (colonoscopy)

No relief from Nexium, Prilosec, Protonix, Zelnorm, Miralax, Imodium, Lomotil ...

July 2005 - GP recommended WFDFSFEFCF + vegan (Also, anything that hurts free)

Immediately stopped needing naps and digestive pain reduced.

Sept 2005 - GFDFCFSFEF + chemical free - Immediately stopped feeling jittery / buzzing and digestive issues were much better.

June 2006 - Dx B12 and iron deficient. Started B12 injections and using cast iron pan.

August 2006 - MYOCLONUS GONE. (off Klonopin)

September 2006 - ATAXIA, INSOMNIA and Feeling like the floor was moving under my feet gone.

June 19, 2007 - Positive DQ2, Dx Celiac

October 2007 - Sleeping like a baby, waking up with energy, but still having fatigue/stamina issues

Nov 2007 - Started Paleo diet for chronic hypoglycemia

April 2008 - GTT normal. I'm no longer hypoglycemic. Started Low oxalate diet for kidney stones.

May 1, 2008 - Began salt loading for OI/NMH - noticed immediately muscle weakness was gone. I was sodium deficient but my labs don't reflect it. Still working on OI and PEM.

Share this post

Link to post
Share on other sites