Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

Doctor In Long Island, Ny [?]

Eugene

By Eugene
in Doctors

Recommended Posts

Eugene Newbie
Eugene
Posted

Hi,

My Dad has celliac. Was diagnosed more than 20 years ago.

I just did a blood test and it came back with the following POSITIVE results:

GLIADIN ANTIBODIES IGG - 92.1 H

GLIADIN ANTIBODIES IGA - 64.9 H

So I guess I need to see a specialist. How do I find the specialist in my area (Nassau county, NY)?

Can you by any chance recommend one?

TIA, Eugene

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Jnkmnky Collaborator
Jnkmnky
Posted

I don't know anyone to recommend, but welcome to the boards! I'm from L.I. originally... In southern Ca. now... How's the weather? ;)

Link to comment
Share on other sites
Eugene Newbie
Eugene
  • Author
Posted
If he's already diagnosed, what kind of "specialist" are you looking for?

Julia's Husband

Thank you very much for the reply.

I'm not looking for a doctor for my Dad. He's gluten-free for ages and that seems to work for him. I mentioned him only to underline that I do have a family history.

My own blood test came up positive. So I need to see someone about biopsy and/or any other further testing.

I'm not sure if any reputable gastroentrologist can handle the next step or do I need "celiac specialist". That was the reason for my original post.

Eugene

Link to comment
Share on other sites
penguin Community Regular
penguin
Posted

You could find a gastro that's associated with Winthrop Hospital, since it's a teaching hospital, you might have better luck finding someone that's up to speed with Celiac. The program is reputible, since they're associated with SUNY Stonybrook.

Long Island Jewish has some good doctors there as well. I'm always wary of private hospitals, though.

Link to comment
Share on other sites
Eugene Newbie
Eugene
  • Author
Posted

If I go to an average gastro-enterologist for biopsy and then, if necessary, show the results to Columbia gurus, would it be much worse than going to Columbia right away?

In other words, where are expertise and experience really important: in performing the procedure or interpreting the results? Or is it truly both?

Another question. Do I understand correctly that biopsy is the logical next step after the initial positive blood test? Or do I need to do a more comprehensive blood test first?

TIA, Eugene

Link to comment
Share on other sites
penguin Community Regular
penguin
Posted
In other words, where are expertise and experience really important: in performing the procedure or interpreting the results? Or is it truly both?

Another question. Do I understand correctly that biopsy is the logical next step after the initial positive blood test? Or do I need to do a more comprehensive blood test first?

If you have positive bloodwork, you have Celiac disease, plain and simple. All an endoscopy would do would be to see the extent of the damage, and to have a baseline I suppose in case they want to check your progress later.

My dr told me not to do the endoscopy when seeing if the diet worked would yield the same diagnosis. Just my dr. though, she's all for minimally invasive.

If you do go to a gastro for an endo, both procedure and interpretation are important. Several samples need to be taken for a biopsy, and someone who knows what they are looking at need to see the results.

Link to comment
Share on other sites
Eugene Newbie
Eugene
  • Author
Posted
If you have positive bloodwork, you have Celiac disease, plain and simple.

I had two positive tests: both for GLIADIN (numbers are in my original message), however, ENDOMYSIAL test result was "<1:10".

Have I jumped the gun? Should've I considered the overall result inconclusive?

What do you think?

Link to comment
Share on other sites
Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


darlindeb25 Collaborator
darlindeb25
Posted

Eugene, to be quite truthful with you, usually unless you go to the doctor's experienced in Celiacs, then usually you educate the doctor. Dr. Peter Green is an excellant doctor, at Columbia University. And, for the most part, the best education you will receive about what to do, what works, what doesn't, what's safe, what isnt---can all be found in the celiac forums. Living this disease is the best way to overcome it--talking with others who deal with it on a daily basis too. This forum is a good source, Braintalk Communiteis is an excellant source for celiac web links Open Original Shared Link . I live in Suffolk County in the Islip area and so far, the doctors I have found are very willing to learn, but really don't have any kind of a handle on this. One doctor I have seen told me that his son has celiacs, that he can't have barley--I realized in one sentence that this man had no idea what he was talking about. Good luck, Deb

Link to comment
Share on other sites
  • 2 weeks later...
de caps Contributor
de caps
Posted

Hi.

I go to a great GI doctor in Massapequa. Her name is Corina Serer.

She is very knowledgeable about celiac disease. (516)796-9000

Good luck,

Donna

Link to comment
Share on other sites
jkmunchkin Rising Star
jkmunchkin
Posted

I think you're best off coming into the city and going to Dr. Green or Dr. Susie Lee at Columbia. I'm sure you can find a good doctor on LI, but you are so close to the city it's silly not to go to the experts.

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      121,214
    • Most Online (within 30 mins)
      7,748
    Julez13
    Newest Member
    Julez13
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • cristiana
      Constant low back, abdominal and pelvic pain!

      By cristiana · Posted

      I think sometimes the pain described here can be a result of a sort of 'perfect storm' of contributing factors.  Recently I had an appalling bout of lower back pain, lower burning gut pain and what felt like cramps.  I then started to think about what could have caused it and I realised it was several things that had set it off: I'd been carrying heavy luggage (back strain); I had been sitting down in a car for too long and wearing a tight belt (I have pudendal nerve issues and sacroiliac issues and this exacerbates the pain), and I had bloating and burning pain in my colon caused by eating too much soy, latte and caffeine, I guess putting further pressure in the lower abdomen.  I had this same pain prior to my diagnosis and a couple of years post-diagnosis, I'd quite forgotten how unpleasant it was. 
    • cristiana
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By cristiana · Posted

      HI @Kirbyqueen That's great news your insurance will be kicking in soon.  Sorry to see that you have been dealing with this for six months now, but I do hope you have managed to find some relief with some of the suggestions in the meantime. Perhaps come back and let us know what the doctor says. Cristiana
    • Scott Adams
      Trying to read my lab results

      By Scott Adams · Posted

      I agree, and hopefully your doctor will contact you soon about the next step, which will likely be an endoscopy to confirm your diagnosis. Do you have celiac disease symptoms? 
    • Kirbyqueen
      Have this rash forming on the back of my legs. Looking for relief outside of going to the doctor.

      By Kirbyqueen · Posted

      Still dealing with this rash on my legs. I've eliminated ringworm (through use of topical ointments). And I also know it's not shingles, as I've never had chickenpox before and I'm still fairly young. Through a lot of online research, I'm leaning more towards dermatitis herpetiformis, eczema, or psoriasis. I've actually got a doctor's appointment in May (finally got some insurance) and I'm going to bring it up then. I'm feeling really hopeful and excited to maybe be getting some relief soon.   Big thanks to everyone for the suggestions and positive thoughts!
    • trents
      Trying to read my lab results

      By trents · Posted

      You have three celiac disease specific antibody tests that are positive: Endomysial  Antibody IGA (aka, EMA), tTG-IGA, and tTG_IGG. Furthermore, your Immunoglobulin A at 55 is low, meaning you are IGA deficient. This one is not an antibody test for celaic disease per se but a measure of "total IGA" levels and if low (yours is low) it can suppress the individual antibody scores and even cause false negatives. So, yes, it definitely looks like you have celiac disease.   Do not yet begin a gluten free diet as your physician may refer you to a GI doc for an endoscopy/biopsy of the small bowel lining for confirmation of the antibody testing. This may help:   
×
×
  • Create New...