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Rachel--24

Omg...i Might Be On To Something

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I actually have the dryest,curliest ,frizziest hair ever and I must admit-in this heat I'm struggling to contain it!It keeps growing bigger and bigger :lol: (big hair-not a good look)

:lol::lol:

No Nikki...Big hair went out a long time ago. :lol:

I remember the days when I wanted my hair to be big. What the heck was that all about??? Must have been an 80's thing....glad its over cuz its NOT easy to make my hair BIG. :P

Once again, thanks for all the updates Vincent. What would we do w/out our R-Ville hero?? :)

I couldnt wait to get home and check out Tanyas thread...I've been thinking about Megan all morning. This is the bestest news...I'm soooo happy things are going smoothly. Not over yet though so keep those prayers coming. :)

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I'm gonna give my little hair tip for the day:

My hair and scalp are notoriously dry (considering I have D 20-30 times a day, obviously I would have trouble with dry skin/dry scalp! LOL!)

Anyway, here is what I found worked for me, after several failed attempts with different products.

Get a bottle of Infusium 23 Leave-In Treatment and add 25 drops of Tea Tree Oil into it - shake well. After every shower, spray this directly on your scalp and throughout your hair. What happens next is best described as "heaven"..... What an awesome spa feeling, wonderful tingling feeling that isn't overwhelming, just very relaxing and within a few days, dry scalp, dry hair was immensely improved......

Contacted Procter and Gamble to check on gluten-free status of Infusium - got the typical CYB answer, but they don't directly add gluten, but can't guarantee suppliers, yada, yada, yada........ I can tell you that I have not had any problems with it, and usually my scalp breaks out whenever anything gluten touches it.....

Hugs.

Karen

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Thanks, Karen--I may try that. My scalp isn't dry, but my hair is. I'm trying to grow it a little bit, and want to keep the ends from getting dry and dull. Do you leave this mixture in, or rinse it out?

I just re-read your post, and see that it's a leave-in conditioner. Just answered my own question! Thanx, Karen :D

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MEGAN UPDATE !!

TUESDAY, JULY 25, 2006 12:30 PM, CDT

Tanya called with another update: Everything is still going really they are in the process of repairing the VSD (which is the hole in the heart). They have her on the by pass machine. They still have to replace the shunt and enlarge the pulmonary arteries (not sure if this is 1 or more than 1, sorry, I just don't have any medical sense). She still has a long way to go, but thankfully, she is doing so well.

Cotrena

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Purple, glittery bats with hair avoidance....yes, I can handle those! :)

:lol:

Susan, glad you've given in so that Chelse can have her pretty, purple, glittery bats flying around Rachelville.

Hey...if I've gotta deal with the temp. never rising above 85...I'm pretty sure you can handle a few glittery bats. :P

Soooo....now we've got glittery bats, dingos, Auxigro-detecting geese and grass fed cows. I'm anxiously awaiting the arrival of our cute and magical koalas. :D

I've decided I would like to be a bum with Donna and Sally. This is actually a life-long dream of mine and it would be cool if I can be a bum on my "off days". Does a President have "off" days?? :unsure:

Hmmm....what the heck?? I'm President so I just decided that I do have "off" days and on those days I'm requesting to share in bum duties. :D

I also wanted to add that my thoughts are with Susan and her family today as well as for Megan and her family. Thanks for the latest update!!

Good news!!

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I'm gonna give my little hair tip for the day:

Get a bottle of Infusium 23 Leave-In Treatment and add 25 drops of Tea Tree Oil into it - shake well. After every shower, spray this directly on your scalp and throughout your hair.

Top tip Karen!

Hubby gets chronic dry scalp-never connected to the whole malnourished thing!

Mmm, there may be a junior position for you Karen in R-villes salon :lol:

Oh,-and for all you mums out there

Tea Tree Oil is excellent for keeping the dreaded nits away!! :lol:;)

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Well, Jeny, I guess I'm about 80% Celtic, 15% English, 5% German. It was all so long ago, even the German part; they didn't come over until 1750. Important to note: They ALL settled in the SOUTH!!!!!

Praying for Megan.

Cissie

Mine all settled in the south too. One set were peanut farmers in north Texas. The other set were ship builders out of Corpus Christi, Texas. My married last name is Anderson (Scottish) my maiden name was Gaines, and the Grandparents were O Donnelly, Catchings, Simpson, and Gaines. My paternal grandfather was the German. He came over when he was 3.

MEGAN UPDATE !!

Thanks Vincent on the updates!!!!

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Hmmm....what the heck?? I'm President so I just decided that I do have "off" days and on those days I'm requesting to share in bum duties. :D

I also wanted to add that my thoughts are with Susan and her family today as well as for Megan and her family.

Rachel--*bum duties*?????? What does a bum have to do, anyway :blink:

I did PM Susan yesterday, telling her I'd have her in my thoughts today.

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WOW!!!

TUESDAY, JULY 25, 2006 02:05 PM, CDT

Just got word from Nashville, the surgery is over and Megan is doing really well. The cardiologist had came out and talked to Jarod and Tanya. He told them that the surgery went really well. The surgeon had just came out and said that they were able to do everything that they had wanted to do and that he was very pleased. Her oxygen saturation level was 100% (which is what normal is). Now is the wait and see process. They will have to let her body heal and get regualted. Prayers have definitely been the power source today.

They would transfer Megan up to PICU. After she got settled there, Jarod and Tanya could see her. Tanya anticipated that this should take about an hour or so.

Thanks so much to everyone for all of their prayers. I know I appreciate them for my beautiful little neice, and her parents even more so than me.

Cotrena

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Karen:

Are you serious that you have D 30-40 times a day? I am really worried about that, unless your are being silly

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Karen:

What does the doctor say about all of that? That really does not sound good at all. How long has that been going on?

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WOW!!!

YEAY!!!!!!!!!! God is Good!!!!!!!!!!

Thanks, Vincent! I'm gonna stay on this string and wait for updates, instead of switching back and forth. God bless you!

Keeping my prayers going for wee Megan.

SUSAN, we love you! I sent you a pm.

Cissie

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Vincent isn't right online right now, but there is an update:

I just talked to Ms. Debbie (Jarod's mom), and she had just gotten to see Megan. She said she looks really good; nothing like the last time. Thanks to everyone that has said prayers for her today.

Cotrena

:D

Hope you don't mind, Vincent, we're all on pins and needles!

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Rachel. I just got off the phone to my compounding pharmacy and they have not heard of ketotifen. They were going to contact the compounding company they use and see if they have. I said that I would contact you for your phamachist name in California. I am not doing well and just don't have the energy to hunt through all these pages for the info. Could you PM me with his name and phone number. My GP wrote me an RX for it, but he had not heard of it either. Thank you.

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Vincent isn't right online right now, but there is an update:

:D

Hope you don't mind, Vincent, we're all on pins and needles!

Thanks! Now that Im home form work I have to actually get up form the computer and hanlde stuff :lol:

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Vincent isn't right online right now, but there is an update:

:D

Hope you don't mind, Vincent, we're all on pins and needles!

After a long day, that is great news about Megan!

Big Hair, damn the 80s are coming back to haunt me. Although, I really miss the music. :blink: Can hear it now, Husker Du, Seven Seconds, Depeche Mode, early U2, New Order, Bauhaus, etc. :D

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KAREN, Sally is right. Does your doctor even know? It sounds as if you should be in a hospital!

Cissie

Ok, missed that earlier, Karen, please go to the doctor, please.

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My doctor is very aware of it. We did the 24 hour stool collection (boy, that was fun, pooping into a paint can) and it turns out that the volume of diarrhea I have is more than double the amount of the "high end" diarrhea volume numbers of most people.

How long has this being going on? Over a decade.

Also, when they recently did the barium test, the technician said I was the quickest "rapid transit" person he had ever seen, meaning 20 minutes waiting, got up on the table to take the second picture, and the stuff had already gone straight through me.

Prednisone did absolutely nothing to correct the problem. I go for the biopsy again on August 16th to see if there has been ANY villi improvement at all. We are hoping there is since the recent bloodwork numbers showed my antibodies at 13 - well within range.

Personally, I think my ongoing problems are a direct result of the collagenous colitis that we can't get under control, not the celiac disease, but I guess the results of the villi will give us a better understanding.

Also, I seem to be having more back problems and I have found a correlation between when my bowels are too full (of water and gas) and back pain. When my back is bad, it feels like something is pressing up against the nerve and I could barely walk, but after doing some postural positioning on the floor, getting things worked through my system, the running to the bathroom for the ultimate "explosion" with massive amount of water and gas, then I feel immediate relief not only in my stomach but also my back. So I am convinced that my bowels (or something else) is pressing up against my spine. I will talk to doctor about it when I go in on the 16th.

Now you know why he has labelled me as "refractory", but I haven't resigned myself to that yet......

Oh, the GI is the top GI specialist at St. Michael's Hospital, here in Toronto. Apparently, he's one of the best in the country...... I definitely am a mystery to him..... <_<

That's what I love about you guys, I can always count on the people here for support and love!

Hugs.

Karen

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Guest Robbin

Good lord, Karen, I thought my 15-16 x a day was horrendous before I was gluten-free!! Do you have bleeding bowels> I had so much bleeding from the irritation, I cannot imagine what hell you must go through on a daily basis and with a large family, too. I will certainly be praying for you and for the drs. to get this under control. Maybe the histamine free diet plan could help you too? If you don't get results from the drs., I would try what some of us are doing and investigate the histamine link. Thank you so much for the hair tip btw-I have the severe dry scalp too. I will definitely try this-I already have the tea tree oil.

EDIT -FOR EASE OF TOPIC DISCUSSION

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My doctor is very aware of it. We did the 24 hour stool collection (boy, that was fun, pooping into a paint can) and it turns out that the volume of diarrhea I have is more than double the amount of the "high end" diarrhea volume numbers of most people.

How long has this being going on? Over a decade.

Also, when they recently did the barium test, the technician said I was the quickest "rapid transit" person he had ever seen, meaning 20 minutes waiting, got up on the table to take the second picture, and the stuff had already gone straight through me.

Prednisone did absolutely nothing to correct the problem. I go for the biopsy again on August 16th to see if there has been ANY villi improvement at all. We are hoping there is since the recent bloodwork numbers showed my antibodies at 13 - well within range.

Personally, I think my ongoing problems are a direct result of the collagenous colitis that we can't get under control, not the celiac disease, but I guess the results of the villi will give us a better understanding.

Also, I seem to be having more back problems and I have found a correlation between when my bowels are too full (of water and gas) and back pain. When my back is bad, it feels like something is pressing up against the nerve and I could barely walk, but after doing some postural positioning on the floor, getting things worked through my system, the running to the bathroom for the ultimate "explosion" with massive amount of water and gas, then I feel immediate relief not only in my stomach but also my back. So I am convinced that my bowels (or something else) is pressing up against my spine. I will talk to doctor about it when I go in on the 16th.

Now you know why he has labelled me as "refractory", but I haven't resigned myself to that yet......

Oh, the GI is the top GI specialist at St. Michael's Hospital, here in Toronto. Apparently, he's one of the best in the country...... I definitely am a mystery to him..... <_<

That's what I love about you guys, I can always count on the people here for support and love!

Hugs.

Karen

Karen

For years I was suffering from cronic back pain, lower back. Then, I was dx with IBS and the DR. said that it was two things going on and unrelated. Don't go to him anymore. Since gluten free, guess what....no more back pain, unless big time glutened.

Don't know if that helped. You know more about all this stuff then me. But I hope you do better soon.

Lisa

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Ok, I have asked Scott to put my real name on, it's Tavi. I had put Sally when I first signed up because my name was so weird and I don't know, I just figured now that I am comfortable with all of you, what the heck, so it's taken me about 3 years, does it really matter? Anyway, Tavi is my real name, so can I still be the bum, huh can I?

Karen: I am so sorry about you going through that. I can't imagine how your body even holds up to all of that. Before my doctor put me on prednisone last year for something else, I couldn't stop the D but it was no where near as bad as yours. Anyway, I have held up pretty well since then. I think if your villi is back to normal they need to figure out why in the heck the D won't stop. :blink: My goodness, please don't let them mess around with this. It will just destroy your body, think of all the nutrients and vitamins you are not getting! <_<

Cissie: I hope your migrane is gone. I have only had about 5 of those in my life and they are awful :(

C.C. your little one is so cute, I just want to kiss her cheeks :D

Susan: How hot is it at your house? It's been 113 here the last few days B) It's really hot!

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