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Rachel--24

Omg...i Might Be On To Something

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For those with chemical sensitivity I have an question. Im trying to give my stepson the benefit of the doubt so i would like some feedback lol.

Can you get light-headed, dizzy and nasuated from smelling smoke. Can it also make u stumble and just want to sleep.

Since I have a brother who has attempted to use every excuse in the book, I would drug test him! LOL! My kids won't get away with ANYTHING! I don't buy any of it! Plus, if he has nothing to hide, he'd take a drug test with no problems. <_< I know a little too much about this kind of thing from my own experiences. ;)

Having said that, you can get those symptoms from smelling smoke. So, it's up to you! :lol:

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Is this basically the process. I've got 1 and 2 down I think. I know I either have heavy metal or lyme so instead of testing I already ordered two product, one is a suppository for heavy metals and the other is foot pads for the same thing. After that I have a product called MMS that is suppose to kill everything bad in my system but probably kills the good bacteria. I have great probiotics ready to restore the good stuff after I kill the bad stuff. At that point I was planning on continuing the strict anti candida diet for several months until my immune system is convinced I am OK.

Ken,

I think that self diagnosis and self treatment is a bad idea....I dont ever recommend it. Its really important to know what you're dealing with before embarking on something like heavy metal detox....this is something that should never be attempted w/out the help of a knowledgeable Dr. in my opinion.

You *can* worsen your situation with self treatment. It all sounds very simple but in reality its alot more complex and usually not something easily fixed. One of my Dr.'s once told me that in most cases when a person is self diagnosing candida or some other problem...more often than not they're wrong about what they think they're dealing with.

Thats why I think its always best to have proper tests run to pinpoint the problems. In the long run you'll probably save yourself time, money and maybe even prevent more problems from occurring.

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Carla,

Why did I think you were in Mexico?!?! For some reason that stood out in my mind....

LOL, maybe you thought Marco Island was Mexico. :D

I saw the symptom list in the first couple of posts, I'm looking more for a explanation more so I guess.

I haven't totally embraced the lyme, I have been in denial so I haven't visited the thread much :lol:

Denial ..... yeah, I know something about that .... the ticks I got bitten by were Lyme-free ... remember that stupid idea. There are also some interesting posts about Rachel's denial.

Haha....guess who else has Marie for a middle name. :P

One of my kid's middle name is Marie, too.

I had carla in mexico to. She had said she was getting a full body neti pot from the gulf of mexico, so i figured she was in mexico, maybe that is what you did to lol
:lol: :lol:

The Gulf is also in Florida, LOL.

LOL...yeah...I thought she went to Mexico too!! :lol::lol:

:o:lol:

I hope no one minds but I would like to jump in on this thread (all 1900 pages of it) and ask some questions.
Welcome! I don't have time for a detailed post right now .... but I agree with what Rachel said. You might have to figure out what's wrong on your own, but when it comes to treatment, you need to have someone with experience guiding you.

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OK but my doctor thinks chronic fatigue is lack of sleep and/or stress.

At this point I've dropped 45 pounds and I am back in pretty good physical condition. How do I convince a doctor that occassionally I get knocked down by fatigue. "Get some sleep, reduce stress and take a couple of these" I can hear it now.

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OK but my doctor thinks chronic fatigue is lack of sleep and/or stress.

At this point I've dropped 45 pounds and I am back in pretty good physical condition. How do I convince a doctor that occassionally I get knocked down by fatigue. "Get some sleep, reduce stress and take a couple of these" I can hear it now.

No, that's not exactly what I mean. Regular doctors have their head in the sand when it comes to most chronic illness.

I discovered that I had a significant number of Lyme symptoms, then sought out a Lyme specialist for treatment.

My regular doctor thought I had Somatization Disorder .... basically, she was determined that it was all in my head. After doing my own research, discovering what was wrong, then finding the best doctor to treat it, now I'm getting close to your number 6 on your list. :)

You are absolutely correct .... there is something more than lack of sleep behind CFS.

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OK but my doctor thinks chronic fatigue is lack of sleep and/or stress.

At this point I've dropped 45 pounds and I am back in pretty good physical condition. How do I convince a doctor that occassionally I get knocked down by fatigue. "Get some sleep, reduce stress and take a couple of these" I can hear it now.

Your probably wasting your time trying to convince a conventional Dr. that your problems are legitimate. There are definately some great Dr.'s out there who really do understand all of this stuff. I didnt actually learn all of this on my own....I have some really great Dr.'s on my side. ;)

Everyone here has gotten the same run around from the conventional Dr.'s...we've all gone outside of the mainstream to see Dr.'s who actually have a clue about these problems.

If your Dr. doesnt believe you then he's obviously not the right one for you. I suffered for almost 3 years and only got worse under the care of ignorant Dr.'s. Since I switched to more integrative/alternative Dr.'s I have had nothing but positive experiences and am moving forward with treatment. :)

I could never do this on my own...even if I'm able to do the research and put some pieces together...I still need the Dr.'s to run the tests and to treat the problems that we find.

What do you all think about these test. I thought of ordering the ibs one and the hair analyses, to try to get an full picture of what is going on. Since the ND that came to my house was useless and wothless.

http://www.irritableboweltest.com/

paula

I'm not sure Paula. Since parasite testing is very difficult to begin with I'd probably choose a lab with some of the best capabilities for detecting parasites. There are some labs that come highly recommended for these types of things.

Personally, if I'm going to pay for testing I'd rather get the best available from the most qualified labs. I'm not saying that this one isnt good...I've never heard of it so I have nothing to go by. Theres so many different tests offered online but they are not all equal.

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That is very interesting about the corn allergy. I didn't know that it was in thyroid meds. I have been having ever increasing allergic reactions some severe requiring trips for treatment in the ER. Has anyone ever had any issues with this as well? It seems like I can't take any medications I need without a hyper or negative reactions. I just don't know what additives these medications have in them beside the drug I need. I found I do have egg and a possible peanut allergy that has been keeping my gut in an uproar.

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I have some good news. :)

Dr. S. called me and we talked about my test results. He said that clearly I have high levels of copper in my cells.

So I asked him if this problem could have interfered with my chelation treatments...by not allowing the DMPS to get to the other metals. I told him that the copper was definately high in all 3 of my urine tests.

He said that it doesnt tell us anything because DMPS always causes the copper to be elevated.

Yeah...BUT at what point do we look at those results and say "maybe the copper is a problem in and of itself?" This is why I wanted the bloodtest afterall....and it does show high copper...so we DO have the answer now.

So he agreed that it is a problem because the bloodtest shows that its elevated.

I asked him again about the metals possibly not coming out because too much of the DMPS was being used to pull out copper.

He said that typically metals do not come out right away because copper always comes out first...then as copper goes down we see the other metals start to appear in higher levels.

That would be the "normal" scenario...but that was not what I saw with my own results. Instead the copper was getting HIGHER even after 5 months of chelation...and the other metals were not being excreted....except for in tiny amounts.

He asked if I was supplementing copper during that time and I told him it was in the mineral IV's I was having.

So he said that theoretically its possible that this is the reason I wasnt excreting the metals...but we dont know for sure. He asked if Amy definately feels that metals are an issue and I said that YES...she says its the main issue.

So he said its definately a good idea to get me back on the DMPS IV's to pull this copper out first and foremost. He wants me take some zinc to help drive the copper levels down and correct that imbalance. He also wants me to supplement all of the other minerals since they werent as high as he'd like and also because I'll be back on DMPS.

I definately have to be on the selenium because that one was way too low.

I ordered some trial size minerals to see how well I do with them but if I'm not tolerating the orals I'll have to go back on the mineral IV's...and copper will be deleted from the formula. YAY!

I'm soooo not excited about the possibility of having to get back on those dreaded 3 hour mineral IV's but I'm suspecting that I'll do better with them minus the copper. Crossing my fingers anyway. Maybe a miracle will happen and I'll tolerate the orals I ordered. :)

He said he also wants me to do a porphyrin test. I was really happy that he mentioned it because thats one test that I've been particularly interested in lately. I think I only posted about it in another thread but heres that post if anyones interested in the test.

One test that I've not yet had is a porphyrin urine test.

I've been looking at this recently...trying to decide if I want to have it done. It might not be useful for me at all since its fairly obvious that I'm toxic....and I'm already being treated for the metals.

However, it might be worth looking into for you or anyone else that might be interested in a non-invasive test to see if toxicity is an issue.

heres a couple links.

http://www.oralchelation.net/data/ToxicMetals/data13h.htm

http://www.mercurypoisoned.com/new/urine_porphyrin_test.html

This is a urine test that is frequently used to test the ASD kids for heavy metal toxicity. It seems like a pretty useful test.

I think Dr. S. wants to do the porphyrin test to get a better idea about the metals....since they werent showing up. He asked me if Amy had any idea why the metals werent being excreted. I told him she thought it could be a problem with the sulfation pathway (we did talk about all of this before but he forgets if he doesnt have my whole file in front of him).

I told him it might actually not be that complicated if copper was getting in the way...but that still remains to be seen. In the meantime I'm really wanting to see what the porphyrin test tells us.

So tomorrow morning I'll schedule my next DMPS IV as well as the porphyrin test. I think Amy will be happy to see the results of that as well....she had asked me if I'd had that test done at my last visit....but of course I hadnt.

Sooo...I'm keeping my fingers crossed that bringing the copper down will reduce some of the toxicity, get me back to where I was at Xmas, and hopefully once it comes down we will start seeing more of the mercury. :)

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Anyway, I have a question about frozen veggies. If all it says in the ingredients is for example, brussle sprouts, or organic asparagus, could there still be something in there derived from corn to preserve it? Just wondering because I'm avoiding all the frozen veggies that I have because I'm scared, but I don't want them to go to waste!

I don't think so cause in canned stuff if it is just veggies they usually just say "peas and water" or something if it is packed in water or sometimes if there is a preservative it lists what the preservative is so I think if the frozen veggies just list the veggies then that is all that is in the package

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Guest tamedandfoxed

Update

Had my OBGYN appt yesterday. She said there was no yeast or bacteria, but was going to run a culture, and suggested Vagisil. which i bought but WTH? seriously? I mean. I guess it means i've made progress if there's no bacteria visible--but i don't think there was at the last Pap either, until the culture grew. I don't know what any of that really means except i'm not getting better and they can't help me.

Had the shoulder worked on yesterday and it is killing me today. :( I see three different PT's at this place and yesterday i saw Adam who is the best one, but also the most intense and thorough. which is "good" but feels not great.

I ALSO got my first Colonic yesterday. It was certainly weird. The woman was a bit too perky for me, considering what she was doing, but whatever gets you through the day, i guess! We didn't get much OUT and they were very suggestive of more treatments close together but i don't really have lots of $80 dollar installments lying around... i dunno. i'm hoping some of the toxins and such were rinsed out. I've started Aloe Vera and Chlorophyll in addition to a new round of acidophilus (i've been switching probiotics every time it's time for new ones). apparently the Chlorophyll helps the Acid. take root faster than the bad bacteria. Didn't know that! I got the orange PApaya Aloe and it's pretty tasty! But the Colonic wasn't painful or anything, just a wee bit awkward and uncomfortable!

My job interview yesterday went very well, i thought. I'm not sure if i posted about it, it's for a local Theatre, box office assistant. The theatre is really beautiful, and the staff seem fun. It doesn't start until June and it's part-time AND seasonal, but I'm still really hoping i can find some way to swing it, cuz Panera is killing me and i need to get out.

Die-Off is not fun. My skin is unbearably itchy. lotion/aloe does not help. I'm trying to figure out if it's die-off or something i'm still eating that i shouldn't be. I'm going to go tomorrow with no eggs or almonds (my favorites) but breakfast will be non-existent without eggs! People suggest brown rice but that takes 50 mins to cook! I already get up 2 hours before my shift to catch the bus. But we'll do rice tomorrow. Suggestions for other options would be fabulous!! I've been eating a small red potato with dinner daily to try to reduce die-off... i'm really trying hard to stick with it this time. I've done great for two whole days! that's good for me. I'm still eating one-day leftovers, because with my work and transport situation, i cannot avoid it, or i'd starve. I'm down to 108 pounds and it's starting to freak me out....

OH AND FUNNY STORY! I was at Panera hanging out after my shift last week, eating some beans and onions and veggies, blah blah and this woman was like "Excuse me, but which salad is that?" I explained that it was from home and that i couldn't actually eat anything at Panera.....we got into a LONG conversation about gluten and candida and all this stuff. She said she'd been thinking about it but scared to start any of the diets. But that I had hopefully inspired her, because i was so young and diligent. (little did she know my cheating ways!) But I gave her my number in the end and who knows, maybe i'll find a friend here who can relate! It was an ironic situation, that's for sure!

Okay! Sorry it's so long!!

Hope you're all feeling well!

~Katy

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Thanks for the update Katy.

I don't have any ideas for breakfast.......that's something I skip alot unless we have leftovers as I never know what to have.

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I HAVE A DATE WITH THE ORANGE JUG!!!!!!! :D:D:lol:

Dr. S finally agreed it's time to do the provoked challenge, BUT I can't do it now, lol. He wants me to wait until next month to make sure I'm over the virus. He also wants me to stay away from the sugar until then, lol.

BUT, I DID make my appointment for the IV....It'll be on Friday, May 23! He's going to do a child's dose with me and I heard the nurse say "without" something or other, lol. The nurse said the first one will probably take longer than the others (should I have others, lol) because they need to give me a dose, then wait to see if there are reactions, then the IV. THEN, I get my orange jug. :lol:

I'm taking the day off work and I have the very first appointment of the day. :)

He said I looked very good, and he was pleased that things are moving forward with my flooring/condo, etc. He did say one thing which was slightly discouraging...I guess I'm one of only a few patients he has that has the triple whammy of mold toxicity, heavy metals and lyme, and he says none that are still exposed to all three are getting better...he doesn't want me to be one of those so he REALLY wants me to get the mold thing taken care of. :rolleyes:

I'm trying, I'm trying, lol.

OK but my doctor thinks chronic fatigue is lack of sleep and/or stress.

Yeah, I know in my case, I had no luck with the more conventional doctors. Fortunately for me I live in the same area as Rachel, so was able to see some of her doctors. Sometimes it just takes some diligent searching for the right doctor. I now have a team of doctors who take me seriously and are working towards making me better.

I'm soooo not excited about the possibility of having to get back on those dreaded 3 hour mineral IV's but I'm suspecting that I'll do better with them minus the copper. Crossing my fingers anyway. Maybe a miracle will happen and I'll tolerate the orals I ordered. :)

Well, my challenge goes okay, I may be scheduling mine around yours, lol!

EVERYONE,

Speaking of minerals...what is everyone taking?

Dr. S really wants me to take minerals and a multivitamin. I have been taking something I got from Anna, but I really don't like it much. I'd like something I can get from Whole Foods, and maybe liquid, but staring at their shelves and trying to find something is overwhelming for me. So if anyone is taking some that they like, I'd be interested, lol.

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Guest tamedandfoxed
Katy, how about making the rice the night before? Or what about brown rice bread toast?

but then it's not warm.. plus i thought leftovers were bad? I've never heard of brown rice toast--but i thought starches were a NO as well? Now i'm all confuddled!

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Well, if you're on a strict anti-candida diet, I guess the leftovers would be bad. I meant that you'd heat the rice up in the morning. :)

If you're eating brown rice, then brown rice bread should be okay. If you're eliminating all starches, then it wouldn't.

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Yay Donna! :D

We are supposed to be taking minerals, but aren't.....haven't done the mineral taste test for months either, need to do that again. When we do get on them it will be based on what we need and individual bottles of those in liquid form.

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Yay Donna, glad you got the go ahead :D

I just started taking a couple of different mineral prodcts, one I am doing really well on KMT Minerals from BioTools.

http://biotoolsforwellness.com/joomla/inde...5&Itemid=49

Katy, I make big batches of rice ahead of time and then freeze in individual portions. If you are going to continue to eat rice you could take a packet out of the freezer the night before and let it thaw and then just quickly warm it in the morning.

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What do you all think about these test. I thought of ordering the ibs one and the hair analyses, to try to get an full picture of what is going on. Since the ND that came to my house was useless and wothless.

http://www.irritableboweltest.com/

paula

Paula, I don't really know anything about the dfferent lab companies, I just go where my practitioner's direct me :lol:

I just know Great Smokies is well known and respected for stool stuff, for hair analysis I only know of the place I had it done (I think I gave you that info for that?)

I have some good news. :)

Sooo...I'm keeping my fingers crossed that bringing the copper down will reduce some of the toxicity, get me back to where I was at Xmas, and hopefully once it comes down we will start seeing more of the mercury. :)

Great news Rachel!

Crossing my fingers and toes for you too :D

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Donna,

Great news about the challenge test! :D

If you do start treatments you probably wont be having the long IV's that I was having. I had to do them because I wasnt tolerating oral minerals....but it sounds like you do alright with oral supplements. :)

I think alot of people have a Meyers Cocktail after their DMPS treatments but I've never had that. I dont have any IV's with vitamins.

DMPS by itself is pretty quick....I'm in and out of the office within like 15 minutes. :) I wont have to do any mineral IV's unless I'm not tolerating the new oral stuff I ordered.

I cant help you with a multi mineral because I'm not taking anything "muti". I do have NutraMedix Trace Minerals (liquid) but I reacted to it and now I'm avoiding copper altogether. I'm just gonna be doing individual minerals according to my needs.

Good luck with the orange jug!! :lol:

I'm starting chelation again on Tues. :)

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EVERYONE,

Speaking of minerals...what is everyone taking?

Donna, I take trace minerals from Nutramedix. I am doing okay with this one. I want to try the 5 in 1 liquid minerals and vitamins from Waiora but I want to get more toxins and metals moving out of me before I try that product. :)

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Thanks for the info on minerals!

Rachel, do you still have to make an appointment even if the IV is quick?

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Guest LittleMissAllergy

Hi everyone-

Hope you all don't mind but I'm kind of intruding your board...I did a search on "lyme" and this board came up numerous times, so I'm going to take a wild guess and say that some of you are battling lyme disease (among other things- metals, bacteria etc.)? I'm just lookin for people that can relate- or maybe ease my mind a bit <_<

I'm currently waiting on a blood test because my doctor is like 90% sure that I have it, but I am VERY sick right now....sicker than I've ever been in my ENTIRE life, and I'm scared. I can't get up off the couch without having shortness of breath and heart palpitations. My neck is sooo stiff and tight (in the front), and my throat seems to feel like it's itching and swelling at times.

My spleen is enlarged, I've got a million food allergies...I just have ISSUES and all of a sudden, I try to detox some bacteria and WHAM...my issues intensify in such a way that I can barely get to the doctor.

Sorry to invade your board and sound so whiny and be such a downer <_< I'm just scared and my brain is going in a million directions...like meningitis..how do I know I don't have meningitis? I mean I've been to the ER and they did a standard blood test (I really dislike conventional medicine- I'm one of those. haha.) and didn't find anything...but what if there's some horrible bacteria (besides lyme) making this happen to my throat and neck and airway...

Sorry, guess I just wanted to hear from some people who have experienced this- I know, I'm so dramatic...haha...

I hope you are all well!!!!

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