Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Alert! Csa Guide Misinformation!


Guest LilKLJ

Recommended Posts

Guest LilKLJ

For those of you who purchase and/or reference the CSA Gluten-Free product listing, be WARY!! On page 189, I found beer listed as a gluten-free product for Chipotle. When I asked the CSA execs to send out a warning to people, they ignored my request and claimed that the information had been changed for future issues of the product guide.

The fact that a blatent gluten-containing food such as beer is put in the guide and no one there second guessed it or caught it is scary to me. I am using my guide with a grain of salt.. I've always been a label reader... but I thought this guide could help me as well as family members purchase gluten-free foods. I am worried about what else CSA didn't catch.

katelynn


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hez Enthusiast

When I was first diagnosed I bought this guide (last year). I found it to be expensive and not very helpful. I realized much of what I needed could be found on the internet or by making a phone call. I was not impressed.

Hez

jerseyangel Proficient

I did the same thing! I bought it last summer--I have looked up a few things, but most of the brands in there are not available in my area. The best source of info about products, in my opinion, is either here or contacting the companies directly. The second is kind of a pain, but you get the most up to date info that way. I looked up page 189 in my copy, and it was not the restaurant section. And the restaurant in question was not listed at all in mine. I thought that they mailed out updates, but in the 10 months I've had the guide, I have received none. And I did pay 1 year's dues!

VydorScope Proficient

I plan to get the Clan Thompson Food SmartList for Pocket PC (brand new! I helped beta test it!), I have been impressed with them so far, and they seem stay on top of the updates. Its $59 for it with a years updates.

ms-sillyak-screwed Enthusiast

What is CSA Gluten-Free product listing?

Sounds like it was written by a few too many beer drinking guys, or perhaps they were drunk when they wrote it? HA! It's all about the almighty dollar.

Perhaps I've become skeptical -- well I'm more cynical -- I was NEVER like that until I came down with celiac disease. I don't believe anyone for their word anymore. History has proven almost everyone lies and gets away with it. This is a prefect case in point.

debmidge Rising Star

We had purchased the CSA product guides for 3 years and while they are ok, the products that they show as gluten-free cannot be found in the NJ area; most of the supermarkets noted in the CSA book are not in NJ either, so while it might be a good publicaton for the mid-west or west coast, it is not the proper publication for NJ area. So I stopped buying it this year. I am very interested in Clan Thompson....how long (in hours) does it take to download when you buy it for the first time?

VydorScope Proficient
We had purchased the CSA product guides for 3 years and while they are ok, the products that they show as gluten-free cannot be found in the NJ area; most of the supermarkets noted in the CSA book are not in NJ either, so while it might be a good publicaton for the mid-west or west coast, it is not the proper publication for NJ area. So I stopped buying it this year. I am very interested in Clan Thompson....how long (in hours) does it take to download when you buy it for the first time?

The beta version for Pocket PC that I tasted was only a couple of megs, so un a dialup should take around 15 mins, 30 mins at extrem worst. Dunno how big the full version is. But you you email them they can tell you. They are very helpful. For average 56k dialup you can use about 3 mins per megabyte as a rule of thumb. For averag 28k you can use 5mins per meg. Thouse are rough ideas only, not exact, but getyou ball park at least.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ms-sillyak-screwed Enthusiast
What is CSA Gluten-Free product listing?
VydorScope Proficient

Dunno nuting about it, but Google gives this:

Open Original Shared Link

ms-sillyak-screwed Enthusiast
What is CSA Gluten-Free product listing?
jerseyangel Proficient

Ms. SS--Vincent posted a link to it above. It is a 3-ring notebook of current gluten-free foods, as reported by the manufacturers--put out by the Celiac Sprue Association. I bought it shortly after I was diagnosed. I had no idea where else to get info--I had not yet found this board, and my doctor was no help. I would not buy it again--it is far from a complete list and a lot of the stores are not in my area. It was of some help in the beginning--and the list of company phone numbers did come in handy a few times. I think I paid $35 for it, and another $25 for dues to become a member. I am dissapointed, though, as they told me they printed updates and would mail them out to members. In the entire year I was a member, I did not get one update.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...