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Gluten Ease

vallojo

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vallojo Rookie
vallojo
Posted

Just picked up this product called Gluten Ease(21.95) from a local health food store. I tried it the other day I took 2 pills (thou they only recommended taking 1) then eat a turkey sandwich on whole wheat bread......boy was it good. Then I waited felt no symtoms for the rest of the day. The next morning everthing seemed good but then it started : ( my abdomen got warm and I started to get a little uncomfortable. I would not call it a full blown reaction I think the pills helped but never the less was couch born for about three hours. I am not sure if it was product failure or me being worried that it might not work.

If anyone has tried this or products like this please let me know what your exp was for I know I pray for the day when a turkey sandwich wont lay me up for the day.

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Franceen Explorer
Franceen
Posted

Maybe you needed to continue to take the pills until the sandwich had a chance to completely vacate (like the next morning too).

What are the ingredients of these pills and what state did you get them in (assume USA?).

GravStars Contributor
GravStars
Posted

i don't think that stuff is intended for celiacs, just people with general digestive issues relating to gluten consumption. if i'm right, i think it helps digest gluten but it doesn't stop the body's autoimmune reaction to gluten that celiac causes. or is that the point, just to to help the symptoms in glutening situations?

vallojo Rookie
vallojo
Posted
  • Author
Maybe you needed to continue to take the pills until the sandwich had a chance to completely vacate (like the next morning too).

What are the ingredients of these pills and what state did you get them in (assume USA?).

DPP lV Protease thera-blend 60,000 HUT

Amylase thera blend 15,000 DU

Glucoamylase 15 AGU

Got it in New York its made by Enztmedica

i don't think that stuff is intended for celiacs, just people with general digestive issues relating to gluten consumption. if i'm right, i think it helps digest gluten but it doesn't stop the body's autoimmune reaction to gluten that celiac causes. or is that the point, just to to help the symptoms in glutening situations?

Thanks I never thought of that but that would explain why the reaction was not as intense.

kimjoy24 Apprentice
kimjoy24
Posted

I bought some of these at the health food store as well. I had already read on the board what they were supposed to be and knew they weren't a miracle cure, but I am curious to see if they will possibly help out with cross-contamination issues. I eat out frequently and attend events where food is present for my job and while I have avoiding obvious gluten down to a science, I always know that CC is probably present.

Because these are also supposed to help with casein ingestion, I might be more willing to try deliberately eating something like ice cream to see if it helps with digestion, since I already tolerate hard cheeses and butter well despite testing positive for lactose/casein intolerance. I really am not even tempted to deliberately ingest gluten at this point. And like someone else on the board pointed out, just because it might lessen the physical symptoms doesn't mean it still isn't damaging your gut and raising your chance of cancer.

I've only used them once in a possible CC setting so I can't say definitively if they are useful or not. I certainly don't think they can hurt, but I'm also not a doctor. :)

KaitiUSA Enthusiast
KaitiUSA
Posted

I have something called a glutenzyme that I found. I don't eat gluten with it but it helps when I get accidentally glutened.

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    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Thanks @trents I'll keep that in mind.
    • trents
      11 yo waiting for diagnosis

      By trents · Posted

      One thing to be aware of is that reactions to gluten can sometimes be more severe after having been gluten free for a significant period of time. Something to think about in connection with a gluten challenge.
    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Hi @trents Thanks for your reply and the clarification on terminology—most appreciated. My GP has referred us to a Paediatric Gastroenterologist, and we're waiting for an appointment. She mentioned they might want to do an endoscopy or run further testing. But that often with children they try to avoid scoping them.  She also said it could take months to get an appointment, which is why she recommended starting a gluten-free diet immediately to see if there's any improvement in his symptoms, growth, and blood tests. I have an appointment in 5 weeks with the Paediatrician (who ordered all the tests)—not the Gastroenterologist. I expect the Paediatrician will also recommend a Gastroenterologist referral for further testing and diagnosis. I understand the reasons for confirming with biopsies. I'm just eager to help him feel better and I don't want to keep him eating gluten for months while waiting for a specialist when it's clearly affecting him. I really appreciate your input on this, especially your thoughts about this pointing to celiac rather than NCGS. Intuitively, it feels that way—he's always been incredibly healthy and strong, but he's suddenly wasting away. We're in Australia, so I'm not sure about benefits, etc. and needing a formal diagnosis. I’ll have to investigate.  If necessary to do a gluten challenge down the track for confirmation I'm happy to cross that bridge when I come to it. Thanks so much for your advice!
    • trents
      11 yo waiting for diagnosis

      By trents · Posted

      Welcome to the forum, @cococo!  So. let me first clarify some terminology. Gluten intolerance is a general term that can refer either to celiac disease or NCGS (Non Celiac Gluten Sensitivity or "gluten sensitivity" for short). Having said that, in common, informal usage there is still a lot of mix up in the use of the terms "gluten sensitivity" and "gluten intolerance".  Elevated DGP-IGG can certainly indicate celiac disease but the IGG tests are considered not quite as specific for celiac disease as are the IGA tests, especially the TTG-IGA. If it were the TTG-IGA that gave a 250 score it would have been grounds for declaring an official diagnosis of celiac disease without further testing in the UK and many European countries. With children, however, because their immune systems are immature, we often see their celiac disease show up in the IGG tests rather than the IGA tests. Has their been any talk about an endoscopy with biopsy of the small bowel lining to confirm or disprove a diagnosis of celiac disease? The endoscopy/biopsy is considered the gold standard of celiac disease diagnosis. Physicians are not eager to do scoping on pediatric patients, however, and try to avoid that unless there is a very good reason for it.  I think to proceed with a gluten free diet experiment at this time is a reasonable approach. If there is improvement in labs, symptoms and growth then it is reasonable to assume that there is celiac disease to blame or at least NCGS. At the end of the day, both conditions require a gluten free diet anyway. But I would also have to say that when looking at the total body of evidence you present, it looks much more like celiac disease than NCGS.  One caution, however, and that is if you are in the UK there are certain government provided benefits that incur from a formal diagnosis of celiac disease. I mention that because some of your spelling suggests that to me.
    • cococo
      11 yo waiting for diagnosis

      By cococo · Posted

      Hi all, I'd love some feedback on my 11 year old son who is waiting for a diagnosis. He has been unwell for about 6 months. His symptoms include: early morning (4/5am) nausea and vomiting, loose bowels, fatigue, headaches, aching legs, persistent dermatitis on cheeks. Recently, I noticed he wasn't growing as expected. After measuring him, we found his height had dropped from above 50th percentile to 25th, and weight from 50th percentile to 5th. I took him to our GP who confirmed he only grew 2cm in the past year and lost weight, and subsequently referred us to a paediatrician. We saw the paediatrician who ordered extremely comprehensive tests (including urine and poo testing, x-ray on wrist, hormones, thyroid, liver, kidney, diabetes checks, etc). While waiting for all results, our GP received some preliminary findings indicating coeliac disease. The GP recommended starting a gluten-free diet and referred us to a paediatric gastroenterologist. Most test results are normal except: Iron levels:  18 (normal range 20-200) Anisocytosis and Microcytosis (abnormal sized red blood cells indicating iron deficiency anaemia) Coeliac-related results: DGP IgG:     >250 (normal <15) DGP IgA:      8 (normal <15) Tissue IgA:   1 (normal <15) Tissue IgG:   1 (normal <15) Genetic markers are present for coeliac A comment was made on the blood tests that total serum IgA would be tested and commented on if below 0.07. There was no comment so I assume it wasn’t that low. While I understand it could be coeliac disease, gluten intolerance, or wheat allergy, his significant growth issues suggest coeliac. The paediatrician won't see me for 5 more weeks (because he's waiting for one more test he did on his chromosomes), but I'm concerned about waiting that long given his symptoms. Clearly he shouldn't be eating gluten regardless of the diagnosis, and I'm keen to help him feel better and start growing again, especially with puberty approaching. The blood tests were extremely comprehensive and ruled out everything except coeliac disease or a strong gluten intolerance. My GP is adamant it must be coeliac because of his symptoms. My GP said, "Don't worry about the chromosome test—that's just precautionary. His blood tests, weight loss, lack of growth, iron deficiency, fatigue, dermatitis, and other symptoms all point to coeliac." Would starting a gluten-free diet now and doing a gluten challenge later be unreasonable? (I do understand the reason to wait for a clear diagnosis, I just want him to feel better. Also, he is homeschooled so I can very much be in control of his food to ensure no cross contamination, etc) Also, does anyone have experience with highly elevated DGP IgG (but normal other results) and testing positive for coeliac? For what its worth, I personally have had many checks for Coeliac over the years and the results are always "unclear". Apparently I'm a complicated case, so I just eat gluten-free. Thanks!
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