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Lisa

Taking A Road Trip

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We feel it's time to bug out of here and take a road trip. We want to leave home and slowly take the scenic route up to Maine. :rolleyes:

Any suggestions for stops along the way?

Thanks Lisa


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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I can't remember our stops along the way to New Hampshire . . . I know on the way home we took the back roads and instead of a straight shot up there (were visiting my cousin), decided to take the leisurely way home . . . went through Maine, Vermont -- all small streets, beautiful places. My memory being basically -- well, NOTHING -- I'll ask Dave. He may have some insight as to some places that we stopped. I ENVY YOU!! This is THE most beautiful time to go up that way! The trees are AWE-INSPIRING. I hope you have a GREAT trip . . . . you deserve it, my friend.


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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We always love it up there after the nasty hot summers here.

Lynne, going to the Dr.'s office now for him the interpret my blood work. Let ya know later. With me luck.


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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My thoughts and prayers are with you . . . . let me know ASAP! PM or e-mail me . . . REALLY want to know. xxxooo Lynne


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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Lisa, let me know later too, please. Hugs.


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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OK:

Current symptoms: Arm tremors, hair loss, fatigue, lack of concentration, memory issues, brusing, no interest in food.

Most everything was below the average, WBC, Platelets,Folic, B-12. He said that the blood panel was not normal for a 51 year old, but he doesn't know where to go with it. Pushed Lexipro, as if the fatigue is depression, gheshhhhh.

Suggested seeing a rhumotologist and asked if there was a Celiac Research Center. I suggest Dr. Peter Green at the Univ of MD. I had a pros biopsy a year ago August, but he did the blood test 3 months later, and I was gluten free by then so I think that he is not sure it is Celiac. Every darn doctor wants to do their own test!!! :angry:

I guess that it is nothing to get concerned, just have to eat better, drink less

I still cannot understand why more doctors don't know anything about all this by now. <_<<_<

Lisa


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Thanks Lisa for letting us know. I think you need to find a new doctor who will address the vitamin deficiencies. First doctors say, that the blood test being positive means nothing and that you have to have a biopsy. Now your doctor is saying the biopsy being positive means nothing and that you might not have Celiac. Of course you have Celiac because of the positive biopsy. All of those things you are expieriencing are not normal and need to be addressed. I am not a doctor, but I would think that not having the right amount of certain vitamins would cause some of them. Hopefully someone will post with more ideas then I have. But, don't give up the ship. You need to find a doctor who will hear you. Many hugs. PS - how is your thyroid?


"Throw yourself a pity-party and you'll be the only guest." - Earlene Fowler

Diag. Celiac Disease by positive blood test 2/03/2004

Allergies - corn, soy, casein, egg whites and wheat

Morphia Scleroderma

Osteoarthritis

Hypothyroid and Hperthyroid

Essential Tremors

Asthma

Migraines

Fibromyalgia - diag. in 1978 when they called it Fibrositis

PAD Peripheral Artery Disease

Angina and Atrial Fibrillation

Gluten Ataxia

Vitiligo

Scoliosis of the spine (caused by malabsorption and it is horribly painful) This would be enough reason for someone to go gluten free.

Ocular Myastenia Gravis

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Yeah, I was going to mention that, too, but didn't want to blame everything on thyroid issues!!!! I think you're on the right track, though, Metta.


Lynne

Courage does not always roar. Sometimes it is the quiet voice at the end of the day that says, "I'll try tomorrow".

"There's not a word yet, for old friends we've just met. Part Heaven, part space, or have I found my place? You can just visit, but I plan to stay, I'm going to go back there some day." Gonzo, in the Muppet Movie

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Maybe you all can make sense of this, thyroid:

Free T4 - 0.85 (range 0.70 - 1.53)

TSH (high Sensitive test) - 0.89 (range0.49 - 4.87) ......sounds low to me??

Dr. had no concerns about this. So what do you all think.

L

To clarify, I may have confused people. Five years of loosing unexplained weight (size 12 pants to a size 4). A period of high stress kicked in my symptoms. I can even remember the date it began. After two months of being held up in the bathroom with "molten poop", went to my GP. He recommended a GI. Had endoscopy and colonoscopy. Endo, indicated flattened villi. Concluded Celiac Sprue. Went gluten free. Aggravated with my GP of years, and I went to an Osteopathic DR. He did the Celiac Panel (after two months gluten free), which was negative, duh

I have lost alot of padding on my bod. No butt, and wake up in the am with aching legs as no more padding on my feet. And I don't know how to get that back.

Ok, ok, enough about me. I don't feel comfortable being "out-there", but I sure did it to myself tonight. :ph34r:


Lisa

Gluten Free - August 15, 2004

"Not all who wander are lost" - JRR Tolkien

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Lisa

Missed this post in the afternoon. I'm not here much anymore but did post on the other thread.

About tests, don't know about those, sorry but came one cause I might have some ideas about your trip.

Jim and I did a conference in Maine and came home the scenic way and it was 'breathtaking' I'll try to find out from Jim what routes we took as like Lynne, we like to take the back roads and scenic ways. We went to Kennybunkport whick i love. I worked for 2 summers in college there and know some cool places to see. Also there is a neat new hotel in Oqunquite (?) that is on this point where the old hotel i worked in was.

I'll try to find the name of a neat other hotel that we loved so much as so much to do and see close by and it had a jacuzzi in the room. I find if i can get rooms that have that...I feel so much better and can do more in a day re: walking etc.

I'll be in touch.

Love

Judy

Going to PM you another idea. Have to get something out of the oven. will get back to you later.

hugs

judy


Judy in Southern CA

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