Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

The Dangers Of Elimination


Budew

Recommended Posts

Budew Rookie

You folks have helped so much, that the issues have changed.

Untreated celiac 25 years. gluten-free 7 years. For 6 of these things got worse, then I met you folks and connected with a specialist who now cannot answer my questions or refer me to anyone who can. The explaination I got was that stripped of the gluten barrier I became sensitive to other things.

Since, eliminating iodine elevieted daily vomiting. Nightshade elimination helped rashes and sweats

Low salicylate diet cleared congestion, cough, and flushing. I still deal with pain. I also still seem to be more reactive rather than less. Any advice is welcome!

I eat like I have cancer. Everything peeled. Notthing processed. I have tried to eliminate toxins as much as possible. Eliminated meds to compounded thyroid meds and a fentanyl patch for pain. A few days ago I got Maxalt for the increased frquency of migraines. I eliminated all grain and legumes recently. I had eliminated meat almost 3o years ago. I am eating full fat dairy. I am limiting salicylates as much as I can.

Basically I had hoped that from Jan to April I would try to be really strict to allow my system to heal. Perhaps my efforts are misguided. I need advice. I do not want to create more problems.

I have done my own research, consulted a homeopathic doctor, a gastro doc for advice. I have gotten some advice, but question some of it too.

My vitamin and mineral levels seem to be fine. I guess toxins are causing the pain. In a quest to eliminate them more efficently I am considering milk thistle extract for the liver. I thought about a alkaline diet but was warned it could invite bacteria resulting in candida. So I have settled on flushing the urinary track with water.

I have several types of pain. Hands and feet, radiating from the spine, migraines. I tried Maxalt 2 days ago to halt the migraine. It worked in a hour. My migraines last 3-6 days, I read most are 12 hours.

I switched to the fentanyl patch for the general pain, bypassing the stomach and binders. I am now having my thyroid meds compounded. The only other methods I use are heat and ice.

I know there are folks, ursula, mtndog and more who may have words of wisdom. I thought of writing them directly but hope my post will help me connect with them and others who can help me from making mistakes that could harm me.

I feel for these folks worried about dinner, now I fear that if I don't find answers in time I will have irreversable problems. On the verge of throwing ion the towel. I haven't felt that way in a few years. But everything I read looks so grim. I need some hope.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Jestgar Rising Star

Budew, can you find a good naturopath? Bastyr University has an excellent reputation, maybe you can contact them to find someone in your area that can help you.

www.bastyr.edu

Guest cassidy

Sorry you have been through so much. At least you know that different foods were causing your problems. I had very bad liver headaches when I was eating gluten. I still get them when I get glutened, but that is the only time. If you think that toxins and your liver are your problem then I would recommend finding a chiropractor that can help make your liver dump. I didn't believe it in the beginning but I would go in with a headache and come out feeling great. They push around your abdominal area and it starts to gurgle and the headache goes away. Obviously, not all chiropractors do this. The doctor that I used to go to is Dr. Remeta (336) 774-9006, she may be able to tell you of a practitioner in your area that does the same thing.

As I'm sure you know there are liver cleanses that you can buy at the health food store. It is helpful to do a colon cleanse first if you haven't done that in a while. There are also many types of "vitamins" that you can take to help your liver.

I would think that you are still eating something bad if your liver is causing so many headaches. Also, your liver and kidneys work together and if you have any kidney problems it puts a strain on the liver and that could be an issue.

I have no idea if these ideas will help you and I learned to believe in alternative medicine because nothing else worked for me. At least it seems like you have gotten rid of some of your symptoms. Good luck.

tarnalberry Community Regular

Being dairy intolerant myself, I wonder if that's causing problems for you (it exacerbates my headaches).

I'm with you on the migraines - mine last for days (12 hours? ha!), and would occur far too often. Using a daily preventative has helped tremendously, but I don't know if it can be compounded.

Good luck.

Nancym Enthusiast

Are you sure your vitamin levels are ok? Especially B vitamins? Eliminating meat makes me wonder about that. Do you get plenty of sunshine (vit. D)?

Have you ever given up dairy to see how that works for you?

  • 5 months later...
Celena Rookie

please tell me more about ur pain. it really sounds likeb it could be CMP. have you looked into that?

why are you so certain that ur pain is related to food/nutrient/toxin intake? perhaps there is another cause? if you have been able to resolve all other issues thru modifying intake but not the pain...maybe it is not the intake at all.

how long have you hasd the pain? did it come on slow? or all of a sudden? does it stay the same or cycle up and down? what kind of pain is it....burning? itching? aching? shooting?

i am sorry i have posted u about this in so many places...apparently i started reading from the bottom up on ur posts. i am just really excited to help anyone that lives w debilitating pain.

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442

    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...