Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Other Allergies Common? A Bit Of A Vent...


Canadiangirl

Recommended Posts

Canadiangirl Apprentice

Ok so I know that I have Celiac...I am so so so careful. I also know that I have a peanut allergy, also so so so careful. So last weekend I am with some freinds and we went clam digging on the coast ( very random, but fun!) we roast up the clams and loh and behold within minutes of having ONE BITE of this dreadful Razor Clam I break out on hives all over my hands and by ears swell and my tounge also strarts to swell. SO SCARY. I start freaking as i know that I must be having some sort of anaphilactic ( spelling?) reaction, luckily have some antihistimine, take several and suffer for several days with a sore tounge, feverish and hives galour. I went to my doctor as soon as possible and she prescribed an Epipen right away which is good as my peanut allergy can become worse in time too. great. so now I have a crazy allergy to shellfish?!?When will it ever end!?! I have an appiontment with an Allergist ( again) soon to clarify this new found allergy. Good greif! SO why have I not reacted like this before? I have eaten crab for ages...no problems, but this was a first with this evil Razor Clam.....

Has any one else had anything like this happen? Is my body trying to destroy me??! I gotta laugh, but its really not that funny. People around me are getting tired of hearing ' i cant have...i have this and such allergy etc' and now " heres a large needle with medicine in it, please shove it in my thigh if i start to swell'.....sigh....

-Canadiangirl


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Helena Contributor

Hey, yes I can sympathise! I have a number of food allergies in additon to celiac disease. I sometimes find it awkward because I'm sure that some people think I'm kind of paranoid about my food. I have to be very careful because cross contamination could = anaphylaxis.

I'm not really sure about shellfish---I got some hives with shellfish with the skin prick test which means there is a likelihood that I could be allergic. clams were particularly bad--that hive lasted for a number of days. I've only had shellfish once----way back in 1989 I had clam chowder. I didn't react at all, but often it takes one exposure before you start reacting. I avoid shellfish to be on the safe side.

The reaction to clams sounds quite scary. Just to pass on one piece of advice that I learned the hard way---if you are prone to anaphylaxis (which you obviously are!) you are supposed to take the epipen right away and call 9-1-1 before the symptoms get any worse (i.e. at the first *sign* of a reaction). If the reaction progresses too far, it can be too late---the epinephrine might not kick in. Also, it is a good idea to carry two doses of epinephrine. The first dose doesn't always work for some people.

Also, a lot of people with shellfish allergies have difficulties with eating in restaurants unless they are certain that there is no cross contamination.

Good luck with all of this!

tarnalberry Community Regular

That has got to be awfully frustrating! I'm sorry. :(

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,036
    • Most Online (within 30 mins)
      10,442

    NCGS Celia
    Newest Member
    NCGS Celia
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      Vitamin A is important for vision health. But be careful in supplementing it as it can lead to toxicity. Research it and consult with your medical professional. I do not have a definite answer to your original question but I was pursuing the possible cause of nutritional deficiency. But your visual deterioration could be unrelated to your celiac disease so don't rule that out.
    • Name
      Currently 19. Doctors think I was 1 year old when celiac started, but I wasn't diagnosed until 18, because they didn't do lab work on minors. I've been on a strict gluten-free diet for 14 months now. For example only certified gluten-free nuts and I've researched best brands a lot. I take B vitamins, vitamin D, vitamin C, Curcumin with black pepper, black sesame and green tea extract, magnesium, iron, and a little selenium and zinc, beef liver capsules. I recently had my vitamin and mineral levels retested and D is the only one I don't have enough of now. I had my eyes tested at 17 and they were good back then.
    • Scott Adams
      Not everyone with dermatitis herpetiformis needs to avoid iodine. DH is caused by gluten exposure, but iodine can worsen or trigger flares in a subset of people, especially when the rash is active or not yet controlled by a strict gluten-free diet. Some people react to iodized salt, seaweed, shellfish, or iodine supplements, while others tolerate normal dietary iodine without problems. In most cases, iodine restriction is individualized and often temporary, not a lifelong rule for everyone.
    • trents
      Questions: How old are you now? How long ago were you diagnosed as having celiac disease? Do you practice a strict gluten-free diet? Are you taking vitamin and mineral supplements to offset the nutrient malabsorption issues typical of celiac disease and if so, can you elaborate on what you are taking?
    • Name
      My vision was good as a teen and now has gotten worse in the last year. Could that be caused by my celiac disease?🤓😎🥸👓🕶️
×
×
  • Create New...