Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Help Celiac.com:
    eNewsletter
    Donate

How Long Before Symptom Free?


Curt

Recommended Posts

Curt Newbie

HI,

Just wondering how long it took for everyone to feel better? I have been on a gluten, dairy and egg free diet now for 10 months and not much better. Thanks.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



marciab Enthusiast

"I have been on a gluten, dairy and egg free diet now for 10 months and not much better. "

IMHO Ten months is long enough to see some improvement from the gluten free diet. Have you looked into other food sensitivities ... Like soy and corn ? Shellfish ? Nuts ? MSG?

Is it your digestive tract that is still bothering you ? Have you tried probiotics ?

Some issues take longer. After 16 months, I am still tired most of the time and still have trouble with brain fog. But I'm still getting glutenned by mistake too.

What has gotten better for you ? Marcia

Link to comment
Share on other sites
Curt Newbie

"I have been on a gluten, dairy and egg free diet now for 10 months and not much better. "

IMHO Ten months is long enough to see some improvement from the gluten free diet. Have you looked into other food sensitivities ... Like soy and corn ? Shellfish ? Nuts ? MSG?

Is it your digestive tract that is still bothering you ? Have you tried probiotics ?

Some issues take longer. After 16 months, I am still tired most of the time and still have trouble with brain fog. But I'm still getting glutenned by mistake too.

What has gotten better for you ? Marcia

I've tried so many things it would take pages to list them all. I have good periods but more bad than good though. I was just wondering if people out there had to go a long time before they finally got better mostly with digestive problems. It's one thing to follow this diet if you feel good but I'm ready to give it a few more months and then the heck with it if it doesn't make any difference anyway. But if it takes well over a year than I'll hang in there.

Link to comment
Share on other sites
marciab Enthusiast

Just a thought ...

You can always take a gluten challenge and see how you do. I would only eat a little though ...

Some people have problems with foods that are labelled gluten free too. Bob's and Amy's are known to cause problems. I have a thread I am working on about completely gluten free companies you can check out ...

Did you go on the elimination diet ? The trick to that diet is to stay with foods you know are safe before moving on to new foods. You digestive tract needs to heal and can't if it's torn up all the time ... You many need digestive enzymes and probiotics here too ... I ate papaya, mangos, and pineapple and drank Helios plain kefir ...

You can expect new foods to be a problem so eat only 1 tablespoon the first time and progress from there. Back off that food if it is just too much ... It took me several months and about 10 attempts to get tomatoes, garlic and citrus back into my diet.

I'm working on adding leafy greens back in now. I think I introduced them too quickly ... and I knew better :P

Hope this helps ... marcia

Link to comment
Share on other sites
CMCM Rising Star

Curt...just a thought...why don't you post here a couple of day's eating so we can see what sorts of things you eat. That might provide some clues...

Link to comment
Share on other sites
Curt Newbie

Thanks for the replies. I've had problems for over 10 years and have done the elimination diets and allergy testing, etc. I know what I am eating now is okay and I eat EXACTLY the same foods every day. I did this to eliminate variables when I went on the gluten free diet. I can go for a couple of weeks and do fine and then it's bad again for weeks. So I'm done with the food elimination deal I just thought that maybe the damage done to my intestines can take a long time to heal, that is why I was curious if anyone out there took a long time to finally feel better.

Link to comment
Share on other sites
Marlene Contributor

Hi Curt,

I know everyone is different but it helps to hear other people's experiences. I started the gluten free diet on July 1st and limited my dairy. After about 6 days, the diahrrea stopped. Then about a week later, I would have another bout of D. I went crazy, trying to figure out what I had eaten that could cause this. In September I went completely dairy free as well. And as before, I would have weeks where I would feel some improvement and then go back down again. It has been somewhat of a roller coaster. So after all these months, I actually have weeks where I feel phenominal. But then I have a bad week again. IMHO, I don't think it's necessarily because I am eating something I am intolerant of. While certain foods do irritate my poor intestines (acidic, spicy, etc), I believe the roller coaster effect is in fact caused by the healing process. Sometimes we need to feel worse before we feel better. Case in point, when I started using a very good probiotic, after about a week some of my symptoms came back. At first I was so discouraged and tried to figure out what the heck was wrong with me. I did not change my diet just to see what would happen. Then a week later, things went back to normal and I was doing much better. Probiotics can cause the body to detox and bad bacteria to die off. The healing process does the same thing. As your body heals, it will get rid of toxins and bad bacteria. While this is going on, you might feel worse or at the least, not see any improvement.

I know there have been others on this forum who have had similar experiences. I have stopped freaking out everytime I feel worse and I no longer drive myself crazy trying to figure out what I could have eaten that is causing me to feel that way. I stick to the gluten/casein free diet completely, avoid irritating foods, and for the rest, am just going to give my body time to heal. Afterall, I figure it took me 40 years to get like this, it's going to take some time before I am completely healed.

Marlene

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lisalouryan Newbie

Being fairly recently diagnosed with gluten intolerance and going a gluten free diet, it is such a relief to know that other people go through the same types of ups and downs that I am experiencing.

It does get discouraging, but it does help to remember that it will take time to heal as it did take a long time to get this way as well.

Lisa

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,466
    • Most Online (within 30 mins)
      7,748

    Tlbaked13
    Newest Member
    Tlbaked13
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Tlbaked13
      Not officially diagnosed yet I goto the doctor a week from today but I'm 110% that will be the diagnosis I honestly can't believe my doctors/health care team hasn't put it together before I mean I'm basically the live and walking definition straight from the book haha I don't think I've ever been so sure on anything before I'm just reqly concerned for this diet I will be living on or diets I guess due to type 1 diabetes, gastroparesis, gerd, celiac disease, and lactose intolerance...what is left? A sand salad with a side of rain water?!? I definitely see a tough future
    • trents
      Welcome to the forum, @Tlbaked13! Have you been officially diagnosed with celiac disease? It is well-known that celiac disease can result in peripheral neuropathy but so can diabetes. 
    • shadycharacter
      Lactic acid bacteria start to develop as soon as flour and water are mixed, so I assumed that in a yeast dough with long proofing time there could be some effect of fermentation and gluten break down. 
    • Tlbaked13
      I am COMPLETELY new to this celiac disease however I have had the same feelings and then some with my feet for years now and been diagnosed with peripheral neuropathy myself but they blamed and attempted to treat due from my type 1 diabetes and none of the treatment has helped at all so far so possible from celiac disease? Just sharing MY thoughts on this I've had zero confirmation 
    • Hannah24
      I've not heard of the DNA test I will definitely look into that. And I did not know that the neuropathy was symptoms of vitamin deficiency. I have been trying to get on a good vitamin regimen. Thank you!  
×
×
  • Create New...