Jump to content
  • You are not alone. Join Celiac.com for trusted gluten-free answers and forum support.



  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

Biopsy?


jambo massive

Recommended Posts

jambo massive Apprentice

I am waiting for a appoinment to have a Biopsy after being ill in hospital. even tho i had a couple when i was young and was postive to have celiac. Is it important to have one?? as i read in a topic that i could get help with food cost's?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

It's a personal opinion to have one. The blood tests are really enough!!! I had positive blood tests and reguardless of what my biopsy says (May 15) I'm still going gluten free. If you do have one...insist that they take multiple samples b/c celiac can effect villi in one area and not another.

You can get a tax write off with this disease. But you have to spend a significant amount of money. On my income(I'm a single mom, one income family, I rent) I would have to spend $7,500. And it's the diffrence between the reg food and gluten free. So say reg bread is 2 a loaf and celiac is 5....you could deduct 3. But you'd have to meet teh minimum befor eyou could deduct anything. It helps if you own your own home and itemize. Sorry my mom's an account and we've discussed this!LOL I don't make enough or qualify for this deduction!

aikiducky Apprentice

If you were diagnosed by a biopsy with celiac as a child, you are celiac. The old diagnosis would still be valid, since celiac is a life long disease that doesn't go away.

There might be something to be said for doing a biopsy now to see how much damage there is maybe.

I'm very sorry that you have been sick. It's too bad no one knew to tell you that you should have been gluten free all this time. I hope you'll recover quickly, but don't get too worried if it takes a while. If you have been eating gluten for many years, it will take some time for your body to recover from that.

Pauliina

VydorScope Proficient

Strictly speaking you NEED food, shelter, and clothing. Beyond that everything a choice (with consequences of course!) . :)

But no, you do not need another biopsy. You already have a DX of celiac disease so there is nothing to be gained UNLESS they are looking for something else also.

happygirl Collaborator

If you were already positive for Celiac via biopsy, you have the gold standard of diagnosis. You are and have been a Celiac.

nikki-uk Enthusiast
I am waiting for a appoinment to have a Biopsy after being ill in hospital. even tho i had a couple when i was young and was postive to have celiac. Is it important to have one?? as i read in a topic that i could get help with food cost's?

It is true that in the UK you need biopsy proof to be eligable for prescription gluten-free foods BUT surely your old notes would show you had a positive biopsy as a kid?? Once a coeliac - always a coeliac. :)

jambo massive Apprentice
It is true that in the UK you need biopsy proof to be eligable for prescription gluten-free foods BUT surely your old notes would show you had a positive biopsy as a kid?? Once a coeliac - always a coeliac. :)

Yea that is true but i have moved away from my old town and since living in birmingham i can not find a GP yet im going through out patients in the local hospital. Hopefully next week i will be able to find a GP.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor
Yea that is true but i have moved away from my old town and since living in birmingham i can not find a GP yet im going through out patients in the local hospital. Hopefully next week i will be able to find a GP.

You should be able to access those records even after moving. Have you contacted your old doctors? If you are unable to for some reason, in the US we have a legal right to copies of all records but don't know if it is the same in UK, make sure you have your new GP contact and get the records. They should be able to get them if you can't.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    2. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    3. - HelloFlowersGoodbyeFlour replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    4. - cristiana replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

    5. - trents replied to HelloFlowersGoodbyeFlour's topic in Related Issues & Disorders
      6

      Anyone else get a lot of upper respiratory infections?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,125
    • Most Online (within 30 mins)
      10,442

    psasso76
    Newest Member
    psasso76
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • cristiana
      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Hi @HelloFlowersGoodbyeFlour I wonder if you suffer from reflux, as if you do, you may find it could also be irritating your airways.  I shall explain: I have to use a blue inhaler from time to time, and it seems to be related to reflux.  Never had any trouble before my coeliac diagnosis, the reflux seemed to be something that developed following a holiday to France in 2019, where I had been exposed to gluten.    The reflux continued into the autumn and winter, my throat itched to begin with, particularly after meals, but it then that feeling of irritation seemed to spread to my lungs.  I even found it difficult to breathe on occasion. What stopped it in its tracks was using a wedge pillow at night, following a reflux diet (you can find them online), not eating 2-4 hours before bed and also having a dose of Gaviscon Advanced at night, which forms a barrier so that acid/food can't go back up your esophagus.  The throat irritation faded, and then I found it easier to breathe again. Just mentioning in case it could be a contributing factor.
    • trents
      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
×
×
  • Create New...