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Westchester Group


joelcontrol

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The Westchester Celiac Sprue Support Group is pleased to announce its participation in the Sixth International Walk for Celiac Disease. Our Walk will be held at Rockland Lake State Park along a 3-mile path in a beautiful wooded area. We invite you to join with us and thousands of other Walkers, in cities across the U.S. in supporting this great event.

Location: Rockland Lake State Park, Congers, N.Y.

The Park is on Route 9W, 3 miles north of the Tappan Zee Bridge

Date: Sunday June 3, 2007

Time: Registration - 9:00 A.M.

Walk Start - 10:00 A.M.

There will be plenty of gluten-free snacks and beverages. We will have resource information on hand especially helpful for newly-diagnosed Celiacs.

There will be a raffle, with many great prizes. T-shirts commemorating the event will be distributed to all participants.

Registration fees are $15 for adults and $10 for children. For a Registration Form/Pledge Sheet, email Arlene and Cliff Blaker at cblaker@millerblaker.com. Also, if you need directions to the Park, let us know and we will help you get there.

Over the last five years, the Westchester Celiac Sprue Support Group's participation in the International Celiac Walks have raised more than $100,000. Those proceeds were donated to fund research at the University of Maryland Center for Celiac Research and at the Celiac Disease Center at Columbia University.

Please join with us June 3 to help make a positive impact for Celiac Disease

Arlene & Cliff Blaker

cblaker@millerblak

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    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
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