Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Where Your Contribution Counts!
    eNewsletter
    Support Us!

Oregon Celiac


Danno

Recommended Posts

Danno Rookie

Hello,

I'm 52 and was diagnosed 14 years ago, it was consisdered very rare in 1993. I've found that being a Celiac is only what you make it, to me, it's no big deal and as time goes by, even less so. If I can offer any support or advice from experience, please feel free to write.

Dan

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunnyDyRain Enthusiast

I really hope I get to the point you are. I have only been dx's for 2 mo, and eating gluten-free for a little less. To me it seems to overtake my entire life. I am constantly worrying about what I'm eating, what I can't eat, what am I reacting to now? Grrr... I would love to just for a day eat without thinking!

Thanks for giving me hope.

Link to comment
Share on other sites
Generic Apprentice

I second that statement. I was diagnosed 19 years ago, it's no biggy. I hate it when people say they feel sorry for me. I say not to, I don't want a pitty party. I'm perfectly fine having it. There could be worse things. I'm just glad I'm not sick anymore.

There are new gluten-free products coming out all the time. Good ones at that, Back then you had shuttle tile bread and crappy styrofoam crackers. It's in the news quite a bit now and some people have actually heard of it and don't look at you like you have 3 heads.

It will become normal to you, and you will think nothing of it. It just takes time.

Link to comment
Share on other sites
Danno Rookie
I second that statement. I was diagnosed 19 years ago, it's no biggy. I hate it when people say they feel sorry for me. I say not to, I don't want a pitty party. I'm perfectly fine having it. There could be worse things. I'm just glad I'm not sick anymore.

There are new gluten-free products coming out all the time. Good ones at that, Back then you had shuttle tile bread and crappy styrofoam crackers. It's in the news quite a bit now and some people have actually heard of it and don't look at you like you have 3 heads.

It will become normal to you, and you will think nothing of it. It just takes time.

Well put. I see a lot of complaining when people should be greatful that the cause is known and can be dealt with, we are no longer some unknown minority. Anything that keeps one away from eating many types of junk food is a good thing. Imagine that....being a celiac is a good thing!!

Link to comment
Share on other sites
tarnalberry Community Regular

I think about all the foods - the wide variety of natural foods - that I eat that all the other 'normal' people I know haven't even heard about, and kinda think maybe I'm the lucky one. ;)

Besides that, I bring in muffins and cobbler and other fun things on occasion (I'm gluten-free, CF, and soy-light), and everyone *loves* them. Not exactly deprived there. ;)

Link to comment
Share on other sites

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Help Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to SuzanneL's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    2. - SuzanneL posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      Weak Positive Test

    3. - Scott Adams replied to Braver101's topic in Coping with Celiac Disease
      2

      Constant sweating with celiac disease

    4. - Scott Adams replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling

    5. - trents replied to Julie Riordan's topic in Traveling with Celiac Disease
      2

      Any ideas for travelling


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      120,494
    • Most Online (within 30 mins)
      7,748

    Zofosho
    Newest Member
    Zofosho
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.2k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      Welcome to the forum, @SuzanneL! Which tTG was that? tTG-IGA? tTG-IGG? Were there other celiac antibody tests run from that blood draw? Was total IGA measured? By some chance were you already cutting back on gluten by the time the blood draw was taken or just not eating much? For the celiac antibody tests to be accurate a person needs to be eating about 10g of gluten daily which is about 4-6 pieces of bread.
    • SuzanneL
      I've recently received a weak positive tTG, 6. For about six years, I've been sick almost everyday. I was told it was just my IBS. I have constant nausea. Sometimes after I eat, I have sharp, upper pain in my abdomen. I sometimes feel or vomit (bile) after eating. The doctor wanted me to try a stronger anti acid before doing an endoscopy. I'm just curious if these symptoms are pointing towards Celiac Disease? 
    • Scott Adams
      I'm sorry to hear about what you're going through. It must be really frustrating and uncomfortable. Have you talked to your healthcare provider about these sudden sweating episodes? It might be helpful to discuss this with them to rule out any other underlying issues or to see if there are specific strategies or treatments that can help manage this symptom. Additionally, staying hydrated and wearing breathable clothing may provide some relief. 
    • Scott Adams
      I am not sure where you are going, but we have articles in this section which may be helpful: https://www.celiac.com/celiac-disease/gluten-free-travel/ 
    • trents
      There are supplements available that can help breakdown minor amounts of gluten such as you might experience with cross contamination when dining out and you order gluten free items from a menu. But they will not help when larger amounts of gluten are consumed. One such product that many on this forum attest to as having helped them in this regard is GliadinX. The inventor of GlidinX is one our forum sponsors so you should know that.
×
×
  • Create New...