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College Student Recently Diagnosed With celiac disease


BlackburnK

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a1sacch Rookie

oh! this will probably help more.

usually i just drink rum or vodka, but when its going to be a long day of drinking, and i dont want to pass out by noon- i drink "woodchucks"-they are a fermented apple cider, not tooo expensive and really good.


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KaitiUSA Enthusiast

I'm a college student to but I do not live on campus. Once you get used to it , it will be very easy. It takes some adjusting but you can have alot that many people can have. There are great substitutes that are becoming more readily available. You have to find the right brands but we can help you here. You can message me and I will be glad to give you some info. You came to the right place:)

NoGluGirl Contributor

Dear BlackburnK,

I second the sandwiches on gluten-free bread. I actually had my first sandwich since going gluten-free yesterday. It was divine! :D I love big, stacked sandwiches! I am not supposed to eat yeast, though. I kind of felt like I have to eat the bread with yeast since my father paid so much for it. It is a rare treat for me due to affordability.

Sincerely,

NoGluGirl

DestinyLeah Apprentice
To anyone that reads this, please reply with any info you would like to share with me!

I am a college student, always on the go, love to eat out, love to snack.

2 weeks ago I was diagnosed with Celiac disease. I am struggling to find good things to eat.

Do Puffins Cinnamon Cereal have gluten in it?

Are there other names for gluten that is on the ingredient list?

How come some wheat free foods are not gluten free??

I loved miller lite, any one try the wheat free beer?

Also what liquors do I stay away from? or do I have to be that girl and ask everytime I want to get a drink?

Any other info you would like to share, please do, since I am learning everyday.

Thanks,

Krista

Redbridge does not taste like Miller Light, but is good. Try it, you will like it.

I lived off of Honey Rice puffins when I got out of the hospital. They still make me smile.

Even if you ask, 9/10 bartenders have no ides where the alcohol they are serving came from, or what it is made from.

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      Hypoglycemia, ketones in urine and weight lost. I need advice.

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    • Aretaeus Cappadocia
      Your post doesn't mention if you are seeing Doctors about this and what they had to say, or if you are just trying to manage it by yourself. If you aren't getting medical support, that is the first place to go. On the other hand, if you've been on a diagnostic odyssey with Dr after Dr being perplexed, consider getting your genome sequenced (search for "whole genome sequencing"). It's not guaranteed to get you an answer, but if your symptoms are caused by a genetic condition you might get the answer that is stumping standard differential diagnosis. These days there are quite a few companies offering this service. I wish I could tell you which one was best but I've been out of that field for a decade. Talk to your Dr about this and see what they think. Price is probably ~$500-$1,500 including the sequencing and detailed reports. Sounds like a lot, I know, but consider that 25 years ago just the sequencing (no reports) cost $2.7 B and took 3 years to complete.
    • knitty kitty
      @yellowstone, You poor thing!  I'm not a medical doctor, but it sounds like "Refeeding Syndrome".   I suggest you seek medical attention.   Refeeding Syndrome occurs when your body doesn't have enough of the necessary vitamins, especially Thiamine, to turn sugars (from the fruit, juice, and honey) to turn provide energy.   This can occur in Malabsorption due to Celiac Disease.  Malabsorption prevents the absorption of B vitamins, especially Thiamine. The B vitamins and Thiamine cannot be stored long in the body.  When you run out of Thiamine, your body burns fat for energy which produces the Ketones, hence your weight loss. With medical attention, Thiamine and other B vitamins need to be replaced before giving any more sugars.  Doctors can give you an IV containing B vitamins including Thiamine, called a "banana bag".  Riboflavin  Vitamin B2 causes the yellow color.   Doctors can also monitor your electrolytes which can become unbalanced and cause further serious health issues. I've experienced Refeeding Syndrome.  It's very scary.  Health can deteriorate quickly in Refeeding Syndrome.  It's correctable, but complicated.   I strongly urge you to get professional medical attention as soon as possible.   Our prayers are with you! https://my.clevelandclinic.org/health/diseases/23228-refeeding-syndrome Thiamine Deficiency in Self-Induced Refeeding Syndrome, an Undetected and Potentially Lethal Condition https://pmc.ncbi.nlm.nih.gov/articles/PMC4295429/ Keep us posted on your progress!
    • Sheila G.
      Thank you for sending me this information 🙏🏻❤️✌️
    • yellowstone
      Due to malabsorption, I have hypoglycemia and I excrete ketones in my urine. I am losing a lot of weight. I don’t know what to do — I drink juice, eat fruit, take honey, but I don’t notice much improvement. Any advice?
    • glucel
      I ate sprouted buckwheat and hard boiled egg last night instead of cereal and got extra 1/2 hour sleep but more importantly feel better this morning. I do sleep in cycles that seems to rotate btwn 3 and 6 hrs but I will monitor next time I make a pot. Bwheat is a complete protein with good amounts of thiamin, magnesium, fiber and iron. High carb but much lower glycemic and much healthier than refined flour cereal.
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