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Why Is gluten-free Food So Freaking Expensive?

leelee20

By leelee20
in Coping with Celiac Disease

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NoGluGirl Contributor
NoGluGirl
Posted

Dear sickchick,

I am glad you like the title! :) I feel no one should have to go without comfort food! Bland is just not in my vocabulary. Life without flavor is no life at all. :( Everyone deserves and has the right to tastebud happiness! :P

Sincerely,

NoGluGirl

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    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Thank you for responding.  I didn't intentionally reduce gluten prior to the endoscopy though I dont generally eat a lot of it due to the unpleasant symptoms. I was under the impression my TTG of 87.4 was very high, at least that's what my doctor said.  
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      Thank you.  I think what's confused me is that I assumed the biopsies would show damage due to my TTG being so high.   I have been looking into paying for the genetic testing.  I think I will do this.  If it shows I have the genes I will consider the repeat endoscopy.  If I haven't got the genetic susceptibility at least I will know and not go through another endoscopy unnecessarily.     I have been on 30mg lansoprazole daily for 3 years and my acid symptoms have not resolved.  Its miserable being in pain and not having a definite answer.  I have had transfusions for iron due to chronic low ferritin that doesn't resolve with tablets but I'm not sure about B vitamins.  
    • knitty kitty
      Coeliac or not coeliac

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      @CC90, Welcome to the forum! Have you had a genetic test to look for Celiac genes?  You must have Celiac genes in order to develop Celiac disease.  If you don't have any Celiac genes, your doctors should look for another cause of your illness.   Intestinal damage from Celiac disease can be microscopic and patchy, especially in people who haven't had symptoms for long.  Gall bladder dysfunction is common in the early stages of Celiac disease.  Gall bladder pain occurs on the upper right side of the abdomen.  Nausea and acid reflux often accompany.  These symptoms can be improved with supplementation of the eight B vitamins, chemical compounds the body cannot make so must get from food.  Acid reflux, nausea, brain fog, gall bladder dysfunction are symptoms of deficiencies in B vitamins Niacin and Thiamine.  The eight B vitamins work in concert together, so taking a B Complex containing the activated forms of B vitamins is essential with Celiac.  Thiamine in the form Benfotiamine helps with the gall bladder dysfunction and brain fog.   The B vitamins are water soluble and easily excreted if not needed.  Taking B Complex and additional Thiamine in the form Benfotiamine is beneficial and safe.  Doctors aren't taught about vitamins, so the deficiency symptoms that you have are easily misinterpreted.  Other vitamins like Vitamin D and essential minerals like magnesium are often low in the newly diagnosed.  Supplementing with B Complex can improve symptoms.  
    • trents
      Coeliac or not coeliac

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      Welcome to celiac.com, @cc90! Had you been experimenting with a gluten free or reduced gluten diet prior to getting the TTG and the endoscopy/biopsy? If so, it would have skewed the test results, including the endoscopy/biopsy, toward the negative range. Was the TTG-IGA the only blood test run for checking into celiac disease? Did they also do a Immunoglobulin A (IgA) (aka, "total IGA") test to check for IGA deficiency? This should always be run along with the TTG_IGA test. If you are IGA deficient, then the IGA tests such as the TTG will not be reliable.
    • CC90
      Coeliac or not coeliac

      By CC90 · Posted

      I'm really confused.  I've struggled with pain in right side of abdomen, head fog, nausea, acid reflix etc and have attended A&E on several occasions with no cause found (normal ultrasounds and CT). My GP ordered bloods.  TTG was 87.4 so I was referred for endoscopy.  Endoscopy was very traumatic but seemed worth it to have diagnosis confirmed.  Results have returned saying everything looks normal (7 biopsies taken) but they have arranged a repeat endoscopy to look at other areas of the bowel.  I really dont think I can go through the wait and traumatic ordeal again.  Is it likely I'm coeliac or not.  I was expecting confirmation but have been left more confused than ever.  
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