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Sharon Marie

Mistaken Diagnosis ?

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:( I was diagnosed with celiac disease, My villi were nearly gone. Is it possable for this to have been caused by something else besides wheat ?? This is all still so new and overwhelming to me.

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:( I was diagnosed with celiac disease, My villi were nearly gone. Is it possable for this to have been caused by something else besides wheat ?? This is all still so new and overwhelming to me.

I've never heard of anything else that does it, perhaps someone else will chime in. The standard among medical professionals is that if there is villous blunting of the small intestine, then you have Celiac. There is no other possible diagnosis that I am aware of.

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Even though the most common cause of blunted villi is celiac disease, there are other causes.

Here is a quote from one website:

http://www.medscape.com/viewarticle/405488_2

Although villous atrophy is not exclusive of celiac disease, it is considered a crucial finding. Other causes of blunted villi include tropical sprue, malnutrition, intolerance to cow's milk, soy protein intolerance, and infectious gastroenteritis. However, most of these conditions can be readily excluded on the basis of clinical history and laboratory data.

Here is another quote:

http://www.medhelp.org/forums/gastro/archive/4405.html

Blunted villi can be seen in conditions of bacterial overgrowth as well as partially treated gluten sensitive enteropathy.

I've also found some sites that say that a Cryptosporidium infection will cause blunted villi.

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As far as I know, though, if the villi are nearly gone like the original poster said, it's more likely celiac. The other things I think cause damage but not as thorough damage.

To the original poster: one part of the process of learning to deal with a big life change is denial. It's normal to keep hoping that it might be something else, but hopefully you'll start feeling better on the gluten free diet and after a while you get used to it. :) hang in there!

Pauliina

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I feel so foolish! I just now found all your reply s ! I am still struggleing with denial.... the reason being that I wasn't feeling THAT BAD.

Thanks for all your responses!

In the future I will know how to find responses! :rolleyes:

I have nearly become addicted to all the forums. I am trying to learn and understand, otherwise how can I possably expect my family and friends to understand.......

Thanks again!

Sharon Marie

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What did you find out about your daughter ? My son is 6 and has used the exact same sentence!! He feels like there is a bubble in his throat. He has been complaining on and off for the last year and recently it seems he complains more Ans Wants me to make a doctor appt. he had reflux bad as a baby until about 2.5 and allergies to fomula Ans my milk but since then I thought that all went away. 
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