Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


What Should I Do?

Rate this topic

Recommended Posts

My daughter is a celiac, comfirmed with blood and biopsy (she's nearly three, been gluten free for 10 months). I have just found out i am pregnant. my gyn has no idea about celiac and couldn't answer. Should i go gluten free while pregnant and nursing or should i just let nature take its course? Since i found out i am pregnant, i have been really healthy, eating lots of salads, and veggies - really hardly any gluten. But i am not careful - i'll eat gluten chocolate, and if i want some cake, i'll eat it... You get what i mean - i can go 3-4 days without gluten, but then i'll just eat it.

Also, if i am in a right old mood, only good old gluten will calm me down :D

Share this post

Link to post
Share on other sites

Have you been tested for celiac since your daughters dx? I suggest you get yourself tested with the bloodwork immediatly if you haven't. Don't go gluten-free if you don't have to. Also, by going gluten-free before any testing you will raise the risk of false negative blood tests (you have to be consuming gluten to have the antibodies present).

If you OB/Gyn doesn't know what to do, ask your primary care physician or better yet your daughters GI doc. can refer you to some one or do the tests himself.

If you have been tested and are negative, you can consume gluten during pregnancy and breastfeeding although there are studies that researched when the best time is to introduce gluten/wheat to the babies diet (somewhere between 4-7 months of age). I've read other sources that say to wait one year to introduce wheat.

Congratulations and good luck!

Share this post

Link to post
Share on other sites

I guess there's two issues here. This first is, do you have celiac? If so, I would absolutely go gluten-free for the health of the baby. Testing is going to be difficult with you being mostly gluten-free, but the fact that you can't go more than 3-4 days without gluten sounds almost like a celiac addiction to me.

The other issue is whether you eating gluten will affect whether the baby will develop celiac. I'm not sure about this one. It seems like if the baby is going to get celiac, there isn't much you can do about it.

Share this post

Link to post
Share on other sites

i got tested and i am not a celiac - i got tested about 6 months ago. See, the reason i chose to go gluten free is because then i watch what i put i n my mouth and automatically am dieting :D (don't worry, my byn told me i am 4.5 lbs less than last preg, and i am thin to begin with ;) ) So really i am using this as an excuse to diet, but i don't know if it is the a good idea... My hubby thinks i've lost it, can't understand why any normal person would choose to go gluten free, but i like it... except the baked goods!!!

Share this post

Link to post
Share on other sites

Here's my two cents.. ;) If you are concerened about getting an accurate test, you need to being eating gluten regularly for the blood test to be accurate. If you are gluten free, you will not have any antibody's in your system. But...the blood test is not always that accurate anyways, and Im not sure you can do a biopsy while pregnant. BUT...since you already have one child with celiac, and it is a genetic condition, chances are your second child could have it too. Celiac and autism have lately been proven to be very closely linked. They are finding most kids with autism have undiagnosed celiac. Im pregnant and have confirmed celiac so I am already gluten free, but I do plan to keep my baby gluten free until he is at least past the age of developing autism. (gluten is also passed through breastmilk)Then we will introduce wheat into his'her diet and see how he/she does. Also, there have been a lot of studies on celiac raising your risk of misscarriage, but I dont know enough on that to objectivly comment. But like I said, thats just my two cents.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 20, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
  • Member Statistics

    • Total Members
    • Most Online

    Newest Member
  • Forum Statistics

    • Total Topics
    • Total Posts
  • Who's Online (See full list)

    There are no registered users currently online

  • Forum Discussions

    I am celiac and eat gluten-free, DF, SF and sunflower free because I'm highly reactive to all 4. I discovered about a year and a half ago that I would have severe and immediate GI reactions, similar to as if I ate dairy, to anything with sunflower/safflower products in it, but I think that's when using the oil became more prevalent too. Strange because I loved sunflower seeds as a kid. I've also linked it to places I've eaten out where everything was fine and then discovered they started using s
    So i recently had a baby and 3 months postpartum I started celery juicing and after juicing my stomach would be in so much pain. So I stopped it for a while and a whole month no pain or issues. I made an apt with a GI doctor to just get my blood work checked everything came back great except the Ema it was 1:20 he said it was strange because all the other Celiac panel test were negative my Ttg and the genetic screening even. So I made an apt with another doctor for second opinion she stated that
Potatoes are good for breakfast! Your concoction sounds pretty good. K, how about this? Peel & dice potatoes, fry them in just enough olive oil to keep them from sticking in a skillet until they begin getting crispy. Toss in diced sweet peppers or maybe chili peppers, onions to soften. I know you're not doing egg yolks b/c of iodine but you can do the whites. Pour egg white on top until the white is done. If you have a steak or some leftover steak, you can heat that on the side. YUM!
  • Blog Entries

  • ×
    • Create New...