Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

Offthegrid

Anyone Thought Of Making A Packet For Doctors And Patients?

Rate this topic

Recommended Posts

I remember I spoke to the doc, he said I can't eat gluten, I said, "but what will I eat?" and he basically gave me no advice and referred me to a dietitian, whom I got to see over a month later.

Has anyone thought of creating a gluten-free information packet for doctors to hand out to patients?

It could include info on local support groups, this forum, local stores to buy gluten-free flours from, ratings of a few gluten-free products, any gluten-free restaurants in the area and the names of the best gluten-free cookbooks.

I wonder if I made something up like this if my doctor would use it. He's super nice, so he might -- I'll see him again in March.

(I'm not involved in the local support group because it only meets every other month.)

Share this post


Link to post
Share on other sites

Yes, the Celiac Disease Foundation is doing great work in this area.

I have been a member of the CDF and also serve as a local contact. Through membership you are sent a great newsletter with the current publication material, restaurants, product news, chef's corner, book reviews, helping others, food label undates, etc.... I reference their newsletter quite often here. There ongoing goal is to get information into the doctors offices, healthfood stores and markets.

Please check out their site at: http://www.celiac.org/

They do GREAT work.

Share this post


Link to post
Share on other sites
I remember I spoke to the doc, he said I can't eat gluten, I said, "but what will I eat?" and he basically gave me no advice and referred me to a dietitian, whom I got to see over a month later.

Has anyone thought of creating a gluten-free information packet for doctors to hand out to patients?

It could include info on local support groups, this forum, local stores to buy gluten-free flours from, ratings of a few gluten-free products, any gluten-free restaurants in the area and the names of the best gluten-free cookbooks.

I wonder if I made something up like this if my doctor would use it. He's super nice, so he might -- I'll see him again in March.

(I'm not involved in the local support group because it only meets every other month.)

When I got my results back my doctor sat down with me for an hour and went over the specifics of the diet. He gave me a really good explantion of how the gluten attacks the body as well as web references where I could learn more about gluten free eating. He also gave me a list of restaurants in our area with a gluten-free menu, a list of food items that I could find locally and a list of books that he believed to be excellent resources. He also provided a list of sources of hidden gluten and gave me specific brand names of products that were safe. He also gave me the list of the terms that are often found on products that contain gluten, but you would never know it. All of the information was in a handout so that I did not have to worry about remembering everything he said.

He has started a support group for his patients. We get together quarterly for an informative talk on issues relating to gluten (such as other disease associated with eating gluten, nutrition etc.) and everyone brings a gluten-free dish to share and copies of the recipes to exchange. It is a good opportunity to network with others who understand the struggle. Also, when we come across a good gluten-free food we turn in the name of the product, where we found it, and the price to his office. They keep an updated list available to the patients. I would recommend that you suggest the handout to your doctor. I still put mine out if I have a question about something.

Debbie

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
Yes, I had to stop eating Schar bread because I was getting sick on it all the time. I believe if I am not mistaken (it has been a long time) the Artisan line does not. I received this tip from someone else, and I don’t know if it is accurate but it seemed to help me, at least. 
  • Blog Entries

  • ×
    ×
    • Create New...