Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


What Do I Do With This Information?

Rate this topic

Recommended Posts

I have been gluten free for 3 and a half months and my symptoms have gone away. My celiac blood tests were negative along with the blood tests for food allergies but I tested positive for the HLA DQ2 gene. My oldest daughter (15) is starting to have digestive symptoms similar to what mine were at her age so we had her tested and her celiac blood tests were also negative and, with the exception of a dairy allergy, her other food allergies were negative too. My youngest daugher (11) isn't having digestive symptoms but has a weird rash on her neck that won't go away so I had them test her too. Same thing..... no food allergies, negatiive celiac tests. Well they both have the HLA D2 gene too. The older one is gonna stick to the diet because she wants to feel better but what should I do about the younger one? My husband along with my ex (their dad) asked why put her on the diet if she isn't having symptoms. Other than the rash, she has some concentration issues and learning problems and I think it might help her her with that. Plus I didn't have any symptms at her age and why wait until she is sick to make her better why not prevent it? It would be nice to have a gluten-free household but thats not gonna happen here. We are a blended family and my husband would never agree to it. So, his kids will be eating normal foods and I am afraid that I will be wasting my time trying to get my youngest to be gluten-free. I also have a son (13) who has severe speech delays and ADD who would benefit too (haven't had him tested yet) but without the support is this possible to do? Their dad did agree to try it if I think he could possibly get off his meds. So its a start.

What should I do? Any advice? I think I am beginning to sound like a gluten obssessed freak! Do I think everyone has it? Do I think gluten-free is the cure for everything?

Share this post

Link to post
Share on other sites

The blood tests have a lot of false negatives. I would have them tested through Enterolabs for gluten intolerance. Intolerance can reak havoc on our bodies even in the absence of celiac. It is a stool test.

Share this post

Link to post
Share on other sites
What should I do? Any advice? I think I am beginning to sound like a gluten obssessed freak! Do I think everyone has it? Do I think gluten-free is the cure for everything?

I chuckled a little at this, because I've been the exact same way. I'm actually not celiac, but I'm convinced my DH and his mother are. Some of DH's symptoms have gotten better eating gluten-lite, since I won't cook a gluten meal. My feeling is it doesn't hurt to try the diet. You have the gene tests that show your family is susceptible. I'm trying to get DH to try the diet, but he isn't quite ready yet.

In our household, I still buy DH bread, cereal etc... but dinner is gluten-free. DH doesn't mind this. (Though sometimes, he'll make himself a piece of toast to eat with dinner.) I'm discovering there are so many "normal" meals that are naturally gluten-free. I bet you could cook some for a few days without saying anything, and your husband wouldn't even notice. Eventually, though, he'll want some bread with dinner, and you can easily oblige and just not let the gluten-free eaters have it.

Share this post

Link to post
Share on other sites

Just a guess here, but if you have only one DQ2 your other gene could be DQ1, which is gluten intolernace gene, which is really just worse than plain celiac which mainly just affects the gut. With the DQ1 gene it always seems to go along with the neurological problems, ADD, ADHD, Migraines, depression, temper tantrums in children. Also, the people that I know that have DQ1 are very sensitive to gluten & most will test negative on the blood test, but not always. My double DQ1 sister tested positive via blood test, & I have a double DQ1 friend that tested positive via endoscopy.

So yes, gluten-free diet should help all your kids live productive, happy, healthy, energetic lives, what more could we want for our kids. This gluten-free diet will give your kids a great advantage in life.

Personally, I would have a gluten-free house, if my hubby could not hack it, he would find himself packing...

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
  • Blog Entries

  • ×
    • Create New...