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Hi, I am 40 and have celiac. Three of my 4 children and my grandson are also celiac.

The issue that I am having as I grow older is with celiac friendly carbs. The gluten free breads and grains cause me stomach pain and esophageal spasms! I am fine as long as I eat an Atkins style diet...potatoes are okay but no other carbs. Does anyone else have this issue? It is as painful as eating gluten. Paula

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Yes, I do not eat grains, I mostly eat Paleo diet. Occasionally I will have cornbread with cornmeal & corn flour, that I make myself with coconut milk in place of milk. I keep posting that I do, but I have not had any now since Thanksgiving... :) I seem to not want the grains now, I am happy eating my regular diet. I even recently mostly gave up rice. I never cook it at home anymore. I will eat a little at Pei Wei etc. I am also dairy free & corn syrup free, & soy free. & I stay away from additives. I eat a lot of seafood, meat & veggies, & fruits & nuts. I do occasionally have white corn tortillas, but not everyday & not more than once a week. I am very healthy & energetic...

I rarely eat any of the gluten-free grains, & totally cannot tolerate tapioca, bean flours, soy flour, potato flour and potato startch. & I hate the gritty rice flour.

for special occasions like birthdays or Christmas I will indulge in something homemade maybe chocolate chip cookies, with dairy free chocolate chips. I use sorghum flour, corn flour & homemade nut flour.

I think that almost all those grains are cross contaminated to some degree & I am very sensitive. I also think that really grains are not good for me. I encourage you to check into the Paleo way of eating. It is really the healthiest way to eat. You develop new favorite foods, at the moment mine is fresh pineapple & blueberries. I also like broccoli with oranges or pineapple or tomatoes. I think broccoli is good with anything "juicy".

my lunch for tomorrow, that I just packed is baked chicken, olive oil & vinegar dressing with herbs, to dip the veggies in, broccoli, tomatoes, carrots, dessert is pineppale, blueberries, banana, snack is nuts & apple.

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I too, stay away from grains--soy and corn were the next intolerance's after I went gluten free. I can't have potatoes either. I too, stayaway from rice, except for my ricecakes, which seem to be ok for me. We celiac's are not all created equal. Some can give up gluten and live quite happily. Some of us give up gluten and dairy and do quite well. The lists goes on and on. My list of what I can and can't have has seemed to stablize finally, and now I have to figure out how to get the right nutrients back into my system so that I have a healthy balance going on. :huh:


Deb

Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

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I quickly discovered that tapioca, which is in almost every gluten-free product and recipe, was almost worse for me than gluten. The last time I had tapioca (in frozen rice dream) I was in pain for over a week. I just had some tests come back with a medium reaction to rice! The only grains in my 'green' section were corn, millet and buckwheat. I tried making some millet flat-bread today, but it came out more like a flat pancake lol! Giving up rice in addition to wheat and dairy is kinda daunting!


Cara - 42, mom to dd 15, ds 12, ds 4

Off gluten and dairy (and tapioca ;-( ) since 11/07

A.L.C.A.T. test showed over 50 sensitive foods

Celiac panel came back negative.

Regular allergy testing reacted to every inhalant and all but 6 foods.

Slowly adding in foods, started w 19 and now have 25

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I quickly discovered that tapioca, which is in almost every gluten-free product and recipe, was almost worse for me than gluten. The last time I had tapioca (in frozen rice dream) I was in pain for over a week.

I'm like you! I love Chebe breads, but they have virtually the same effect on me as regular wheat bread products! The same with all gluten-free products that have tapioca as a major ingredient -- go figure.


Life is to LIVE, not to suffer. Make the most of it, and have some FUN, regardless of your situation.

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