Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?


Gluten Challenge Time Frame

Rate this topic

Recommended Posts

For over 5 years I dealt with doctors telling me that all of my test results were "normal" even though I was complaining of chronic fatigue, Irritability, joint pain, brain fog, migranes, gas, bloating, eczema, and itchy blisters on my scalp. These symptoms became so bad that I would work one day and have to sleep the entire next day to be able to function. Eventuallly I quit my job entirely just so I could sleep enough during the day to take care of my family.

Finally a blood test alerted my 4th GP in as many years that an autoimune disease might be the cause. With further blood tests a Reumatologist actually diagnosed celiac and I have been gluten-free for 2 years now and 95% healthy.

My problem is that I am seeing a GI doctor now and he believes because I was not given an endoscopy I do not know for sure I have celiac. He recommends doing the challenge for awhile and then the endoscopy/biopsy. How long I asked? "A few weeks? Maybe months or it could take longer before a biopsy would show damage".

Not a very helpful answer

Have you taken the challenge?

Share this post

Link to post
Share on other sites

This is the problem with doing this:

You have been gluten-free for two whole years. If your villi were damaged, they have long healed. This GI wants you to purposely destroy your villi again, just to confirm that you can't tolerate gluten.

Some people here were told to do the gluten challenge, and it nearly killed them. It could trigger other autoimmune diseases, or cause other irreversible damage. You would have to be eating the equivalent of four slices of bread a day for at least three to six months to even have a remote chance of a positive biopsy. Possibly even a year or more.

If, on the other hand, you have 'only' a gluten intolerance, which normally attacks the nervous system, brain, thyroid etc. and not so much the intestines, you will make yourself possibly deathly ill for nothing, because no matter how long you eat gluten, your biopsy will still come back negative.

It is a good idea to find out what stops you from getting 100% well. But that can be (hopefully) accomplished without trying to destroy your villi and make you 100% unwell again!

Are you still consuming dairy? Soy? Either or both could be a problem. Or another intolerance altogether.

What are your remaining symptoms? Maybe some of the resident sleuths can help you figure out what the problem is.

Share this post

Link to post
Share on other sites

I consider it to be unethical to ask a diagnosed Celiac to do a gluten challenge. You have been diagnosed by a doctor skilled in autoimmune disorders, end of story. There's nothing left to prove to this GI doctor. If a GI doctor doesn't accept your Celiac diagnosis and work with you to figure out what else could be going on, you should find another one. Every doctor wants to run their own tests, but you shouldn't feel compelled to do those tests if they are going to hurt you. Please don't spend 6 months destoying your body just to have a pointless test POSSIBLY come out positive. It's definitely not worth it.


Share this post

Link to post
Share on other sites

I agree stongly with the previous posts. I was only gluten free for about 3 months when my GI demanded a week long gluten challenge for biopsy. The challenge almost killed me with a severe GI bleed. I got my diagnosis without the biopsy because I was on the bathroom floor in extreme pain and bleeding freely from my rectum on the day of the biopsy. It was so not worth it. You have been diagnosed and IMHO you need to consult with a different doctor.

If you are still having issues have you checked every script and OTC med, with the maker not a pharmacist? Are you consuming a lot of mainstream 'gluten-free' food like the copious listing of Frito Lay products that are gluten free by label but heavily cross contaminated? Did you replace gluten with soy? Many of us have a problem with soy and casien (milk protein) and they can be difficult to avoid in processed foods. I learned the hard way that dairy free doesn't always mean casien free. Have you eliminated gluten from toiletries and nonfood sources? Many doctors don't think that is needed but for some of us the low levels accidently ingested or absorbed through mucous membranes may be enough to keep the antibody reaction in full swing.

Share this post

Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.

  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      Celiac Emotional Healing Support Group
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
I just had my kid retested for celiac disease and we are waiting for the results.  Her doctor does not hesitate to test since I have a firm diagnosis.  I can also say that my PCP and GI  never hesitate to check for other AI issues either.  They know that you can develop more than one autoimmune disorder.  Better to catch it early before damage!   If you get an endoscopy, be sure to do a gluten challenge 2 to 4 weeks prior or your result will be negative!  
  • Blog Entries

  • ×
    • Create New...