Jump to content
  • Sign Up
  • Join Our Community!

    Do you have questions about celiac disease or the gluten-free diet?

BemLmom3

Soy Help

Rate this topic

Recommended Posts

So my daughter has been gluten-free/CF since late Nov. She just turned 4yrs old, has been dx celiac disease by regular Ped and "possible celiac" by GI(already on gluten-free and chose not to challenge for tests but she does have a great pos response to diet and DQ2 gene)

So right when we switch diet over she was doing beautifully. Now we are starting to see some symptoms return. Could have been gluten once or twice by eating out, but other than that we have been VERY careful. I am now afraid she might be having reaction to soy. She is complaining of tummy hurting and constipation and VERY large poops are back. :(

I am worried this will leave very little to eat. The envirokidz cereal and animal crackers and almond crackers she loves and I see soybean in them. Do I need to remove those or just soy milks and soy cheeses? The almond milk has soy lecticin. She likes rice milk which is great but I need some cereal and snack ideas that are free of soy too??? Any help please..........I just want my little girl to feel good again!

Thanks

Sharon

Share this post


Link to post
Share on other sites

I would take all soy out of her diet for 6 weeks and see how she does, if there is no change then give her the soy back and you will know she is still getting gluten from something. I had to give up glutan, casein and soy to feel better. It was very hard but it is doable. Have u tried giving her lara bars, some of the flavors are really good.

For cereal can u give her fruity or cocoa pebbles, i think those are soy free but double check. The one that was hard for me was peanut butter, but you can have natural or almond butter, which is very good and my 3 yr old loves it.

If you need more ideas let me know, i can write some of the things i enjoyed when on gluten, soy and casein free diet.

paula

Share this post


Link to post
Share on other sites
Guest Rosany

Soy free is hard but dooable. My son has celiac disease and thyroid disease and is allergic to soy, nuts, eggs, milk, casein and all beans. We give him perky o's ceraels and he likes the apple cinnamon one. Be careful with the ready make breaded chicken because it usually had soy someowhere in the ingredients. Also vegetable oil is all soybean so be careful with that. I give my son sweet potato pancakes and corn meal for breading for chicken. Rice milk is what he drinks and all natural lays potato chips, all natural tostitos corn chips, Adrean Dream (select flavors) and energy life (select flavors) cookies are soy free gluten-free as well. I hope this helps and good luck with everything.

Hugs Hugs,

Rosa

Share this post


Link to post
Share on other sites
Soy free is hard but dooable. My son has celiac disease and thyroid disease and is allergic to soy, nuts, eggs, milk, casein and all beans. We give him perky o's ceraels and he likes the apple cinnamon one. Be careful with the ready make breaded chicken because it usually had soy someowhere in the ingredients. Also vegetable oil is all soybean so be careful with that. I give my son sweet potato pancakes and corn meal for breading for chicken. Rice milk is what he drinks and all natural lays potato chips, all natural tostitos corn chips, Adrean Dream (select flavors) and energy life (select flavors) cookies are soy free gluten-free as well. I hope this helps and good luck with everything.

Hugs Hugs,

Rosa

I could be wrong but I thought Tostitos had soybean oil in them.

Share this post


Link to post
Share on other sites

I've seen some rice milk/soy milk that actually has some gluten, so double check that too. Even when the container says gluten-free, the fine print may indicate some level, which they are allowed to call gluten-free as defined by the CODEX rules :angry:

I've made my own nut milks though, since it's really easy. Just put some almonds, pecans, walnuts, or whatever in a blender with water, and whip that up until the nuts are completely pulverized. All you might see left are tiny specks. Then to stretch it out and make it more economical, I add a little guar gum to get it creamy, which also helps keep things from settling out. Otherwise it takes more nuts.

Still, it could be the soy, or something else she is now eating more of. I had symptoms return too, until I eliminated potato and other nightshades (tomato, peppers, eggplant, etc).

Hope you get to the bottom of it!

Share this post


Link to post
Share on other sites
Guest Rosany

Julie,

You are right that some of the tostitos have soybean oil but the one we use us Natural tostitos yellow corn and it is made with: whole organic yellow corn, sunflower oil, and sea salt. Hope this helps...Hugs Hugs and have a great day

Hugs,

Rosa

Share this post


Link to post
Share on other sites

My 6 year old Celiac is also intolerant to soy, and allergic to dairy, eggs, & nuts.

Feeding her is a huge challenge. We weren't sure of the soy issue until we did an elimination challenge. I didn't "seem" to notice much difference until we added it back in. THEN it was painfully obvious. I hope you aren't dealing with a soy issue as well.

Share this post


Link to post
Share on other sites
So my daughter has been gluten-free/CF since late Nov. She just turned 4yrs old, has been dx celiac disease by regular Ped and "possible celiac" by GI(already on gluten-free and chose not to challenge for tests but she does have a great pos response to diet and DQ2 gene)

So right when we switch diet over she was doing beautifully. Now we are starting to see some symptoms return. Could have been gluten once or twice by eating out, but other than that we have been VERY careful. I am now afraid she might be having reaction to soy. She is complaining of tummy hurting and constipation and VERY large poops are back. :(

I am worried this will leave very little to eat. The envirokidz cereal and animal crackers and almond crackers she loves and I see soybean in them. Do I need to remove those or just soy milks and soy cheeses? The almond milk has soy lecticin. She likes rice milk which is great but I need some cereal and snack ideas that are free of soy too??? Any help please..........I just want my little girl to feel good again!

Thanks

Sharon

Bayleigh is allergic/intolerant to soy. Her allergist gave me cards from FAAN that i keep in my purse to let me know which ingredients contain her allergens. The soy one says that studies have shown that most people allergic to soy can safely consume soy oil and soy lecithin. We had already been COMPLETELY soy free for a month when i reintro'd soy oil and soy lecithin. No reactions. HTH!

Share this post


Link to post
Share on other sites

Join the conversation

You can post now and register later. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.

Guest
Reply to this topic...

×   Pasted as rich text.   Paste as plain text instead

  Only 75 emoji are allowed.

×   Your link has been automatically embedded.   Display as a link instead

×   Your previous content has been restored.   Clear editor

×   You cannot paste images directly. Upload or insert images from URL.


  • Top Posters +

  • Upcoming Events

    • March 24, 2019 Until March 27, 2019
      0  
      NEW ORLEANS GOURMET GLUTEN-FREE mini GETAWAY    March 24 ~ 27, 2019   We have arranged a fun and Gluten-free food filled mini in the city known for it's food and fun.  We have arranged to eat many of the famous dishes that aren't usually Gluten-free at a few of the World Renown restaurants.   Staying at the Royal Sonesta Hotel on Bourbon Street in the center of the French Quarter, you'll be able to enjoy the ambiance of the city at all hours.   Our itinerary will include a Luxury Coach tour of the city and surrounding area - Admission to The National World War II Museum, including the Tom Hanks" 4D film "Beyond All Boundaries" - an exciting Airboat ride and tour through the Bayou.      This it the 3rd time we have visited New Orleans and it has always been well attended, so join us even if you've been there before.  Check out our website for the complete itinerary and cost.    Due to contractual obligations we must have 20 participants by October 31, 2018 to make this a go.      If you have any questions just give us a call at 410-939-3218.  Bob & Ruth info@bobandruths.com (410) 939-3218
    • March 27, 2019 04:00 PM Until 08:00 AM
      0  
       
       
       
      Celiac Emotional Healing Support Group
       
       
       
      Again you are invited to join Johnny Patout, LCSW for Baton Rouge's first emotional healing support group meeting to assist those living with celiac disease manage the emotional challenges so many of us face. Most often the emotional disturbances include depression, disinterest in normal activities, insomnia, grief, mood changes, anxiety, inability to concentrate, extreme concern about managing a gluten-free lifestyle and other emotional and behavioral challenges.
       
      The professionals at Jamestown Avenue Counseling Center created the emotional healing support group to give us a safe place to begin to process our emotions and support each other as we heal emotionally while managing celiac disease and the resulting autoimmune disorders.
       
      The emotional healing support group meets every Thursday, 6:00-7:00pm, at the Jamestown Avenue Counseling Center of Baton Rouge. Jamestown Avenue Counseling Center is located at 4637 Jamestown Avenue, Baton Rouge, Suite B-1. Suite B-1 is upstairs.
       
      The support group is free and open everyone managing celiac disease. For more information: emotionalhealingforceliacs@hotmail.com
    • March 30, 2019 Until March 31, 2019
      0  
      Nourished Festival is a family-friendly event with 10 locations across the US. Attendees will be able to sample food, health and beauty products, meet with companies, learn about the most current food lifestyles, receive coupons and attend educational sessions with industry experts. 
      Nourished Festival, managed by The Nourished Group and presented by Enjoy Life Foods, is the largest gluten-free, allergy-friendly and specialty diet event in the US, with 10 locations including.
      ABOUT THE NOURISHED FESTIVALS
      Managed by The Nourished Group, formerly The Gluten Free Media Group, The Nourished Festivals are the largest and fastest growing special diet consumer events in the United States. Started in 2007, the events have expanded from one to ten cities throughout the country. The festivals cater to anyone looking to lead a healthier lifestyle or those who follow a specialty diet due to autoimmune conditions, food sensitivities, allergies or intolerances. Offerings including Paleo, Keto, Plant-Based, Gluten-Free, Allergen-Friendly and Nut-Free products. The events provide the opportunity for attendees to sample and purchase new products, receive coupons, meet with brand ambassadors and attend educational classes with industry experts. For more information, visit http://www.nourishedfestival.com 
       
https://www.celiac.com/blogs/blog/1202-gluten-free-and-specialty-diet-recipes/
  • Blog Entries

  • ×
    ×
    • Create New...