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horsegirl

Thyroid Nodules & Biopsy

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Some of you followed along on my "I'm cold all the time!" topic awhile back, & I thank you for your responses & suggestions.

My T4 & TSH both remain low-normal (which is odd: if one is down, the other should go up - so perhaps it's the pituitary acting up). I'm now on a low dose of T4 replacement hormone, & my energy levels are going up considerably (though now my fibromyalgia pain is increased because I'm more active - can't win them all!)

I have been having a feeling of a lump in my throat (like being "choked up" at a funeral) for several months, so my doctor ordered an ultrasound of the thyroid. It found 3 small nodules, 2 in one lobe of the thyroid & the other in the isthmus (middle part). One of the nodules is over 1 cm, "hypoechoic" (meaning it's shadowy compared with the rest of the thyroid tissue), & with borders that weren't able to be clearly defined. The doctor said it was a "normal scan, with nothing to account for the swallowing problems". However, I did research on this & found that any nodule over 1 cm should be biopsied, especially with the other 2 features of this mass too.

I saw my doc earlier this week to discuss this, & he agreed it would be a good idea. So now I'm waiting for a referral to get a fine needle aspiration biopsy done on the nodules. I know chances are very good it's nothing, but nonetheless I'm concerned & want answers.

Anyone else go through this? What's the biopsy like? What were your results, or treatment?

Thanks so much. I'm worrying about this more than I should!


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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Anybody?


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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I have a multi-nodular toxic goiter due to Grave's Disease, however I never had to have a biopsy.

BUT....my sister-in-law had a nodule and had to undergo the FNA. She said she was nervous about it, but it wasn't as bad as she was expecting. Her's turned out to be benign and I don't think they even needed to do treatment on it. Sorry I can't be of more help!


Jennifer

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Thanks to both of you for replying. I'm sure it's not a big deal (I went through the endoscopy/EGD

without sedation, after all), but hearing the word "mass" always seems concerning.

Thanks again!


Diagnosed Fibromyalgia & osteoarthritis in multiple joints 12/06

Diagnosed gluten intolerant through dietary trials 8/07

Enterolab positive for gluten, casein, soy, egg

Serologic equivalent: HLA-DQ 1,1 (Subtype 6,6)

Gluten free 8/10/07

Casein free 8/27/07

Soy & egg free 9/8/07

Eggs back again (whoo hoo!) 11/08

Diagnosed chronic fatigue syndrome 12/09

Starting various supplements/vitamins in hopes of feeling better!

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About 16 years ago (prior to celiac) I went in for a routine physical. I will try to be short

-doctor felt a bump/nodule

-ran blood tests/ they were normal

-went in for x-rays and scans/ can't remember results

-had needle biopsy (easy and somewhat painless)/ result no cancer

-doctor did not believe biopsy/ had surgery

-surgery removal of thyroid and lymph nodes due to cancer

-follow up radiation treatment

-on synthroid for rest of life!

I have always told people if you are going to have a choice in cancer pick thyroid. It has a very high cure rate. There is one type that does not, but it is extremely rare.

Of course since this happened so long ago, options for treatment may have changed. Of course I cannot remember why the doctor did not believe the test results. I think because of the scans they thought it was cancer all along.

Hez

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I went from nodule to removal of right side of thyroid...nodule was benign after all. On synthroid for rest of my life to prevent nodules in left side from forming


Husband has Celiac Disease and

Husband misdiagnosed for 27 yrs -

The misdiagnosis was: IBS or colitis

Mis-diagnosed from 1977 to 2003 by various gastros including one of the largest,

most prestigious medical groups in northern NJ which constantly advertises themselves as

being the "best." This GI told him it was "all in his head."

Serious Depressive state ensued

Finally Diagnosed with celiac disease in 2003

Other food sensitivities: almost all fruits, vegetables, spices, eggs, nuts, yeast, fried foods, roughage, soy.

Needs to gain back at least 25 lbs. of the 40 lbs pounds he lost - lost a great amout of body fat and muscle

Developed neuropathy in 2005

Now has lymphadema 2006It is my opinion that his subsequent disorders could have been avoided had he been diagnosed sooner by any of the dozen or so doctors he saw between 1977 to 2003

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So, I am looking to see if anyone has gone through what I am going through!!

I was diagnosed with Celiac about 5-6 years ago. I have been gluten free ever since.. with the exception of oat (since I did not have symptoms I thought it was okay until recently I stopped about two weeks ago.)

On a routine visit to the doctor, She felt a lump on my thyroid and sent me to get a ultrasound. It came back a several heterogenous nodules. I am going to the specialist and getting a thyroid scan done to check for cancer now. I do have normal blood tests though for the thyroid.

Soooo... Im curious if anyone knows more about it. I am online reading up on thyroid diseases and cancer. I have noticed a link between celiac and thyroid disease and nodules!!!!!!! Thanks for the replys! beth

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I have an actual frog in my throat, not a nodule. Well, ok it is a nodule but a frog sounds more exciting. Mine is dead center in the middle of my throat, which is what they call the isthmus. A little bridge of tissue connecting the 2 butterfly wings of the thyroid. It doesn't say ribbett or anything like that. :)

I had a cat scan with contrast on rec from my primary doc, who then sent me to a thyroid specialist. The thyroid doc said a sonagram would have been better and cheaper. Anyway, he did the FNA, which is no big deal at all. They just stick a little needle in and draw a little fluid out for testing. No hurt, no anaestesia. My doc said as long as you use a small diameter needle most people don't even feel it.

The chop doc recommended surgery to remove the whole thyroid, which he said is the standard treatment in these cases. If it was on one side or the other, he said it would be ok to take out just that side. But in the middle bridge, they remove the whole shebang. Anyway, the test was benign, and that is true in the vast majority of cases, like 90%. I haven't had mine removed, and it is over a year later and I am still walking around fine, cough - cough, hack - hack. : :) Just kidding. I am doing gluten-free and waiting to see if it heals up really. Maybe, at least it doesn't seem to be getting worse.


Proverbs 25:16 "Hast thou found honey? eat so much as is sufficient for thee, lest thou be filled therewith, and vomit it."

Job 30:27 My bowels boiled, and rested not: the days of affliction prevented me.

Thyroid cyst and nodules, Lactose / casein intolerant. Diet positive, gene test pos, symptoms confirmed by Dr-head. My current bad list is: gluten, dairy, sulfites, coffee (the devil's brew), tea, Bug's Bunnies carrots, garbanzo beans of pain, soy- no joy, terrible turnips, tomatoes, peppers, potatoes, eggplant, celery, strawberries, pistachios, and hard work. Have a good day! 🙂 Paul

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I had a needle biopsy done on a thyroid nodule many years ago and it was no big deal. It also didn't produce any results. I remember the doc saying, well, if its cancer, we can't tell, but thyroid cancer grows slowly so something else will probably get you first. Years, later, here I am, wishing they had checked me for ceilac disease!!!!!


Gluten free 3/07 self diagnosed

Specific Carbohydrate Diet 4/08--yes, it works.

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