Casein Intolerance

[mela14]

I'm starting to think that my dairy intolerance could be casein.

I don't have anything dairy except for a little milk in my coffee. lately I haven't been having coffee because my gut has been in an uproar! I've been having camomille instead which has been ok but obviously not as satisfying as that first cup of morning java. This morning I thought it was safe to have coffee so I had a cup with milk. I took lactaid with it but about an hour after I had it I started to get bloated and feel sick. My gut feels inflamed and sore. shouldn't the lactaid have helped? maybe I am sensitive to the casein? I am waiting for the results from my York food allergy testing to see what shows up. if it's dairy does anyone know what I can use in my coffee to replace the milk? The rice dream bothers me as it has barley enzymes. maybe I could put a little of the rice dream frozen desert. it is gluten-free unlike the rice dream beverage. hmmmmmmmmmm

thanks,

[MySuicidalTurtle]

I know that I am very sensitive to milk. Not even lactaid helps me. You could see if goats milk works for you. I cook with it and feel a lot better with that rather than cow's milk.

I asked my doctor about casein and she said it isn't like Celiacs where we get damage. That if I didn't mind the symptoms when eating it then it was okay, unlike with gluten.

[burdee]

Hi Kristina:

Maybe your doc confused casein intolerance with milk allergy. According to my Enterolab test results, I did have antibodies to casein just like I have antibodies to gluten. Both Enterolab, Ron Hogan in "Dangerous Grains" and all the parents of autistic spectrum children on the www.gfcfdiet.com website may disagree that casein intolerance doesn't cause any damage. If lactaid doesn't prevent your symptoms and you can't tolerate goat's milk which ALSO has casein, you probably have casein INTOLERANCE. Maybe this is a good place to say that you can order the 'Vance's dairy substitute' which can be used for cooking through www.ener-g.com. Actually I picked it up at my local Ener-G Foods outlet in Seattle, but I'm sure they will ship.

BURDEE

[MySuicidalTurtle]

Oh yes, you are right. If someone can't tolerate goats milk (which is easier to digest) then it really could be casein.

I asked my doctor specifically about casein and she sat and explained the differences but was very clear that it wouldn't cause damage. Sigh, I don't know! I will ask her about it again and for information on it when I see her.

That Vance's Dairy Subsitute sounds like a good alternative.

[Maggie1956]

I can't handle having more than two mugs of coffee (instant) a day, or I got a severe stomach ache.

Have you thought it may have something to do with the coffee rather than the milk?

Just a thought....

[tom]

I think casein can cause more than just quick-and-over symptoms, but certainly nothing of the magnitude of the damage done by gluten.

I've been gluten-free a yr and Gluten-free Casein-free 2.5 months. I use Silk brand soymilk in everything - coffee, cereal, and just drinking. I like to euphemistically (sp?) call it "year-round eggnog".

Be careful of many alleged 'non-dairy' creamers and other products. Coffeemate itself and all imitators have "sodium-caseinate (a milk derivative)". How they can label themselves non-dairy while their OWN label ALSO says "milk derivative is beyond me.

[muffin2]

What is casein and what are the effects of it??

[lmtrenholm]

Hi,

Casein is a protein in milk and is a relatively common allergen. Tom is right, if you're trying to avoid casein you can't trust labels that claim to be non-dairy. They often have casein or some form of it like caseinate. Cool Whip is a perfect example and actually helped me to pinpoint what it was that was causing my reations.

As well as experiencing the usual digestive problems associated with milk ingestion (diarrhea, gas, bloating - probably mainly due to lactose intolerance), my specific response to casein is to experience swelling and tenderness, primarily in the sacroiliac region (lower back/upper buttocks area). I also have experienced severe swelling of the bottom of my feet (heel area) and aching in my hips, knuckles, and up the front of my thighs. I couldn't sleep and would get up every day stiff and aching. The sacroiliac/back pain was unbearable at times.

I was originally diagnosed as having fibromyalgia but after suffering for about 5 years, I determined that casein was the root cause of my problems. I had given up milk because of lactose intolerance but was still consuming several products containing casein or caseinate. It takes about a week to 10 days of absolutely no casein for me to be free of all symtoms.

My doctor seemed to think this was crazy at the time, but a few years later I read about a woman in the UK who showed the same reaction in a documented, double blind test. Also, my husband has found that since he gave up all milk too, a lot of his aches and pains, especially backaches, have vanished.

Giving up milk, and then later the grains, has made me (and my 17 year old celiac/dermatitis herpetiformus/casein allergic daughter) ridiculously healthy. All my health problems, and there were a lot, have resolved. My back is as strong as anything and I never have backaches or joint pains anymore.

I'm wondering whether you have to be "allergic" to benefit from giving up milk, or if maybe the Paleo/Neanderthin diet guys are right and we just aren't meant to eat grains and milk. There are probably a lot of people who've been told they have IBS, Crohn's, arthritis, etc. who would be amazed at how much better they would feel on a gluten and milk free diet.

[SMS123]

Hi,

Casein is a protein in milk and is a relatively common allergen. Tom is right, if you're trying to avoid casein you can't trust labels that claim to be non-dairy. They often have casein or some form of it like caseinate. Cool Whip is a perfect example and actually helped me to pinpoint what it was that was causing my reations.

As well as experiencing the usual digestive problems associated with milk ingestion (diarrhea, gas, bloating - probably mainly due to lactose intolerance), my specific response to casein is to experience swelling and tenderness, primarily in the sacroiliac region (lower back/upper buttocks area). I also have experienced severe swelling of the bottom of my feet (heel area) and aching in my hips, knuckles, and up the front of my thighs. I couldn't sleep and would get up every day stiff and aching. The sacroiliac/back pain was unbearable at times.

I was originally diagnosed as having fibromyalgia but after suffering for about 5 years, I determined that casein was the root cause of my problems. I had given up milk because of lactose intolerance but was still consuming several products containing casein or caseinate. It takes about a week to 10 days of absolutely no casein for me to be free of all symtoms.

My doctor seemed to think this was crazy at the time, but a few years later I read about a woman in the UK who showed the same reaction in a documented, double blind test. Also, my husband has found that since he gave up all milk too, a lot of his aches and pains, especially backaches, have vanished.

Giving up milk, and then later the grains, has made me (and my 17 year old celiac/dermatitis herpetiformus/casein allergic daughter) ridiculously healthy. All my health problems, and there were a lot, have resolved. My back is as strong as anything and I never have backaches or joint pains anymore.

I'm wondering whether you have to be "allergic" to benefit from giving up milk, or if maybe the Paleo/Neanderthin diet guys are right and we just aren't meant to eat grains and milk. There are probably a lot of people who've been told they have IBS, Crohn's, arthritis, etc. who would be amazed at how much better they would feel on a gluten and milk free diet.

Hi,

I know I am replying to 10 a year old post.

I am searching a lot on the condition I have and found your post. I am getting swelling on lower back\upper buttocks area. I got a fistula in that area and had surgery to fix it. After surgery, I got swelling again the same area.

 

Can you please tell me your experience with that swelling how it was cured.

 

This will help me lot.

 

Thanks in advance!

[kareng]

Hi,

I know I am replying to 10 a year old post.

I am searching a lot on the condition I have and found your post. I am getting swelling on lower back\upper buttocks area. I got a fistula in that area and had surgery to fix it. After surgery, I got swelling again the same area.

 

Can you please tell me your experience with that swelling how it was cured.

 

This will help me lot.

 

Thanks in advance!

 

 

This poster hasn't been on the forum in 9 years.  I doubt you will get an answer.  I think you did have some replies on your own topic?

[SMS123]

This poster hasn't been on the forum in 9 years.  I doubt you will get an answer.  I think you did have some replies on your own topic?

Hi Kareng,

This is the only post that is talking about swelling on lower back. I thought of giving a try. I have some replies to my original post but nothing specific about my condition.

 

Thanks!