Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

College


theycallmewheatthins

Recommended Posts

theycallmewheatthins Newbie

I am 19 and just got diagnosed with celiac, its been real hard on me and my body. I am a dedicated runner and went from being state champion in the 800m to a no body because of this disease. I find it extremely hard not to cheat and when i mean cheat i mean on accident. (ill feel the side effects later and know i ate wheat) i get really tired, too the point where i can sleep for 13 hours and feel like i didnt sleep at all. is anyone else going through similiar problems? because im having a hard time with coping with this. any suggestions/comments/concerns are appreciated. thanks so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



NorthernElf Enthusiast

Hi,

It's tough, I know. I often use exercise as a remedy for a glutening, mind you these days any glutenings are very accidental, usually just a cross contamination thing since I am very careful what I eat. Research is your best defense - I scour these forums and the internet for information. If I don't know if it is safe, I don't eat it. It did take me a couple of years to get to this point, accepting things rather than fighting them. I've told people that eating gluten is like choosing to have a combination of a flu and a bad hangover. Who wants to do that to themselves ? On purpose ? Knowledge is truly your best weapon to all but eliminate 'accidental' glutenings.

Stupid things...

Smarties in Canada are not gluten free, but M&Ms are.

Rice Krispies (and most other cereals) have barley malt in them.

Wheat starch can show up as a flavoring in canned icing.

A plain burger patty in a restaurant may not be enough since they may toast their buns on the same grill.

Fries are usually a no no because nuggets & onion rings use the same oil...so I eat New York fries but the risk is still there due to their toppings.

Most soy sauces have wheat in them - never made sense to me that Japanese cuisine would even include wheat.

Last but not least - other people don't get it. It just doesn't help us !

  • 2 weeks later...
LuvMoosic4life Collaborator

I am also a runner and in college. Although I don't compete and havent been diagnosed with celiacs, I have found the the reason behind half of my running problems is a reaction to gluten. I tried going gluten free and had so much energy to run it was amazing, and I just felt so great. Before I knew gluten was the problem, my main concern was making it through a run without having to run to the bathroom. This is not good being a distance runner. I also would get horrible fatigue in my muscles. It would take a good mile before endorphines would kick in and the pain would be gone. I also never understood why I couldnt make it up a flight of stairs without it feeling like I had burning bricks in my calves and legs. I tried taking days off from running at a time figuring I was over doing myself, but it never helped, the fatgued feeling wouldnt go away, I went like this for 7 years thinking it just must be the way I am... I've always wanted to train for a marathon, but i know there would be no possible way for me to make it through w/o having to stop ten millon times to go to the bathroom. I have no problem when I'm gluten free.

gfgypsyqueen Enthusiast

If you were a former state champ in running you must be very driven and goal oriented. This disease sucks at times. No one will disagree with that. But, this disease is a blessign in a way - no meds and no side effects to manage the disease. I had many meds with side effects that made it impossible to run or ride a bike let alone think through a problem.

Keep a log of what you ate and how you feel - it made a huge difference for me. Track your glutenings and what effects it has on you and how long until the reaction ends. Start a running log and set reasonable goals. You will see that remaining gluten-free will give you the strength and the ability that you used to have. Soon you will be back to the track meets and winning races again.

Search this site and find the carb loading meals that other Celiacs use for preping for a race.

Hope you feel better.

  • 3 months later...
ar8 Apprentice

Hey there- I am also a distance runner who had hope to train for a marathon this fall, but due to fatigue, and feeling like I am about to get injured/like I am overtraining everytime i try to Run hard two days in a row (more than 4-5 miles at 15-30 seconds/mile less than race pace), and just not getting "better" after a day of rest, I have almost given up. I don't seem to get faster despite incorporating various strategies to avoid overtraining (cross train, days of rest, etc) I have returned to a previous effort to go gluten free and see if it helps (I also have a bathroom issue that flares up often when i run-- bad diarrhea). I seems to have improved after a stint of gluten free and decreasing coffee consumption. I saw your april post and was wondering if you are currently gluten free and if your running has improved since then? How long did it take if so? Did you ever get tested? Did you take a lot of time off to recover or just push through?

I am hoping that I can continue to run (though at a decreased level) while I recover from what I believe is a gluten problem. I have a history of anemia, "IBS," and general fatigue, as well as blood sugar issues and elevated liver enzymes, all of which fits with gluten intolerance. I am actually hopeful that this is my problem as I can FIX it. My knees and hips hurt and my ankles have had many problems despite not doing more than maybe 25-30 miles/week, and often far less. I used to run 8 miles a day at an intense pace, no problem.

I was tested with enterolab, which reported I had gluten intolerance though of course this is not an accepted testing method. I just don't know. Anyway your post struck me in its similarity to my problems and I just wanted to touch base and ask a few q's!

Archived

This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,084
    • Most Online (within 30 mins)
      10,442

    Melvac
    Newest Member
    Melvac
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      Sigh. I posted this yesterday based on the Safeway website. I went back again today to their website to double check. On the page where they are selling Vanilla Bean flavor, it has a distinct Certified Gluten Free label. Other flavors on the Safeway website didn't have the gluten-free statement. Today I went into the store. None of the flavors I looked at, including Vanilla Bean, have a Gluten Free statement. Is it safe? Who knows. The ingredients are either safe or nearly safe (some have "natural flavor"). There are warnings about "contains milk and soy" but not about wheat - this implies they are safe, but again, who knows. On the other hand, every flavor I checked of their Slow Churn line of ice creams has wheat as an ingredient. 100% not safe.
    • knitty kitty
      Do keep in mind that many of the newly diagnosed have lactose intolerance.  This is because the villi lining the intestinal tract are damaged, and can no longer make the enzyme lactAse which breaks down the milk sugar lactOse.  When the villi grow back (six months to two years), they can again produce the enzyme lactAse, and lactose intolerance is resolved.  However, some people (both those with and without Celiac Disease) are genetically programmed to stop producing lactase as they age.   Do be aware that many processed foods, including ice cream, use Microbial Transglutaminase, a food additive commonly called "meat glue," used to enhance texture and flavor.  This microbial transglutaminase has the same immunogenicity as tissue transglutaminase which the body produces in response to gluten in people with Celiac Disease.  Tissue Transglutaminase (tTg IgA) is measured to diagnose Celiac Disease in blood tests.  Microbial Transglutaminase acts the same as Tissue Transglutaminase, causing increased intestinal permeability and inflammation.   New findings show that microbial transglutaminase may be able to trigger Celiac Disease and other autoimmune and neurodegenerative diseases.   Microbial Transglutaminase is not required to be listed on ingredients labels as it's considered a processing aid, not an ingredient in the U.S.  Microbial Transglutaminase has been GRAS for many years, but that GRAS standing is being questioned more and more as the immunogenicity of microbial transglutaminase is being discovered. Interesting Reading:  Microbial Transglutaminase Is a Very Frequently Used Food Additive and Is a Potential Inducer of Autoimmune/Neurodegenerative Diseases https://pmc.ncbi.nlm.nih.gov/articles/PMC8537092/
    • Aretaeus Cappadocia
      There is a 10 year old post in this forum on Edy's and Dreyer's ice cream. The information is somewhat outdated and the thread is closed to further comment, so here is a new one. Edy's And Dreyer's Grand Vanilla Bean Ice Cream - 1.5 Quart is labeled "Gluten Free". This is a different answer than years gone by. I don't know the answer for any other flavor at this moment. On 1 May, 2026, Edy's website says: "As a general rule, the gluten in Edy's and Dreyer's® frozen dessert products is present only in the added bakery products, such as cookies, cake or brownies. We always label the eight major food allergens on our package by their common name. We recommend to always check the label for the most current information before purchasing and/or consuming a product. The exception to this rule is our Slow Churned French Silk frozen dairy dessert, which contains gluten in the natural flavors." https://www.icecream.com/us/en/brands/edys-and-dreyers/faq It seems that Edy's and Dreyer's are more celiac-friendly than they were 10 years ago. Once I found enough information to make today's buying decision, I stopped researching.
    • Aretaeus Cappadocia
      probably not your situation @Mimiof2, but allow me to add one more to @trents list of celiac-mimics: "olmesartan-induced sprue-like enteropathy"  
    • knitty kitty
      My dad had an Abdominal Aortic Aneurysm.  Fortunately, it was discovered during an exam.  The doctor could feel my dad's heart beating in his stomach/abdomen.  The aneurysm burst when the doctor first touched it in surgery.  Since he was already hooked up to the bypass machine, my dad survived ten more years.  Close call! Triple A's can press on the nerves in the spinal cord causing leg pain.  I'm wondering if bowing the head might have increased the pressure on an aneurysm and then the nerves.   https://gulfcoastsurgeons.com/understanding-abdominal-aortic-aneurysm-symptoms-and-causes/ Abdominal Aortic Aneurysm Presenting as a Claudication https://pmc.ncbi.nlm.nih.gov/articles/PMC4040638/
×
×
  • Create New...