Jump to content

Celiac.com Sponsor (A1):

Celiac.com Sponsor (A1-m):

  • You've found your Celiac Tribe! Join our like-minded, private community and share your story, get encouragement and connect with others.


    • Sign In
    • Sign Up

Bone Pain

Recommended Posts

I've read on this forum or someplace about bone pain associated with celiac. I have been having a pain in my left leg from the hip down to the knee, including the joints but also the thigh bone and only at night. Once I get out of bed it goes away & I am not bothered with any pain during the day.

Anyone have any thoughts on this?

Link to post
Share on other sites

Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8):

;) barb--in the beginning when i was first going gluten-free, i had this kind of pain too--i would even have the pain in dreams and wake crying from the pain--it did get better until i developed an intolerance to soy--when i get too much soy in my system now, the same pain returns and with a vengence--so maybe you are dealing with an intolerance that you havent found yet too or maybe you just need to give yourself more time--deb


Long Island, NY

Double DQ1, subtype 6

We urge all doctors to take time to listen to your patients.. don't "isolate" symptoms but look at the whole spectrum. If a patient tells you s/he feels as if s/he's falling apart and "nothing seems to be working properly", chances are s/he's right!

"The calm river of your life approaches the rocky chute of the rapids - flow on through. You are the same water. The rocks cannot hurt you. Remember, now and then, that you are the water and not the boat. Flow on!

Link to post
Share on other sites


It sounds like people with celiac develop all sorts of other intolerances. What on earth do they eat????? No grains, no milk, no soy etc etc. Sounds like a good way to starve. :(

I have been gluten-free for about 8 months but still feel tired a lot, & now the aching leg at night. I do take B12 & multivitamins. But I wonder if I am getting enough nutrition. I eat a lot of fruit & rice. And I crave sweets much mroe than I used to, maybe it's because I can't eat desserts, so I eat ice cream instead.

Link to post
Share on other sites
  • 6 months later...

My thoughts on this is I cimplained of pain in my bones from my head to my toes to my doctor for three years and until I found the idea of Celiac he did no evaluation. I suppose a person is "lucky" to have pain isolated to one or more parts of the body;otherwise, doctors are trained that it is all in your head and to ignore it. Sad but true. And I had severe Osteopenia, along with other lab signs they ignored over many years. :blink:

Link to post
Share on other sites

I had read somewhere that if you put a bar of soap under your sheets it takes the pain in your legs away. Anyway, I tried it and it worked!

Nostaglia is a file that removes the rough edges from the good old days!!!!

" 15 years of it's stress!"

"blood work show's a disease called celiac,

but it can't be that because it's rare!"

Diagnosed via blood and biopsy 2003

Not a medical professional just a silly celiac

offering support, my

experience and advice

Link to post
Share on other sites

Hi, Barb;

I, too, have the majority of my bone pain in my hips and thighs. Before I was diagnosed my arms also ached. Now I take 600mg ibuprofen at least twice a day (with food). The pain is much more manageable since going gluten-free, and sleeping with them elevated helps, too.

It's interesting about the other food intolerances...I have some known food allergies (watermelon, waterchestnuts, cashews, bananas, avacados), so I'm going to pay closer attention to any symptoms that coincide with soy.

Thanks, and good luck,



(aka Nurse Diesel)

"well, I better learn how to swim

'cause the crossing is chilly and wide"

--Indigo Girls

Link to post
Share on other sites


This topic is now archived and is closed to further replies.

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):

    Celiac.com Sponsors (A17-m):

  • Create New...