Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Celiac.com!
    eNewsletter
    Donate

I Am Afraid To Eat Out


huevo-no-bueno

Recommended Posts

huevo-no-bueno Apprentice

I am afraid to eat out now. I went to a restaurant and ordered a salad with grilled chicken and crumbled feta cheese. The cheese did not appear to be the pre-crumbled type. I explained (to the waiter, whose first language was obviously not English) that I had an allergy to both wheat and egg. I thought it would be easier to tell him that they were both an allergy because of the language barrier. I told him to make sure these were not in the meal, including the dressing, and clean off the work surface, etc.

By the time I left the restaurant everything was starting to rumble in me and the heartburn and D has continued to this morning. This can't be an egg reaction, because that does different things. I know it isn't the chicken, because I never get this when I fix chicken at home. It is gluten. But where?

I know that restaurants often use pre-made commercial bases in soups, that are gel-like and come in a tub. I wonder if they use something weird to coat chicken and if it comes that way to the restaurant from the supplier? I am wondering how to deal with this. I get this reaction the majority of times I eat out, even with the precautions I take. There's obviously some hidden gluten that is commonly used, or maybe I'm reacting to some sort of other ingredient that is commonly used in restaurants. I'm so discouraged by this.

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor

I'm beginning to think of restaurant dining as playing Russian Roulette with only one chamber empty while going blindfolded through a mine field. Sooner or later you will get sick. :(:ph34r:

My daughter was quite annoyed but I wouldn't let her take me out for Mother's Day. We finally settled on take-out from a near by Mexican hole-in-the-wall, because I do OK with their food.

Sigh. :blink:

Link to comment
Share on other sites
LuvMoosic4life Collaborator

yeah eating out sux. Its almost like you are gaurenteed CC. I went out last night to eat and ordered broiled haddock. It was an itailan resturant and every dish comes with some sort of pasta. The nice thing though is when I order the fish there the pasta comes in a seperate bowl and the only other thing on the plate with the fish is fresh itailan style veggies......I didn thave a problem with any of it.... I usually stick to plain broiled stuff when I go out.

Link to comment
Share on other sites
ShayFL Enthusiast

broiled,poached and steamed are the best bet. Stick with meat and veggies. I tell them no seasonings of any kind. No coatings/breadings of any kind. No marinaded meats. Just plain meat with salt and pepper. Same with the veggies. I tell them olive oil is o.k.

Link to comment
Share on other sites
hippiegirl2001 Newbie

Even frozen chicken which a restaurant purchases can have gluten already added, or else the restaurant may marinate it in something with gluten, such as soy sauce, or a marinade with flavoring from barley, etc... Even grilled chicken at many fast food places which have gluten free options is Not Gluten Free (examples, McDonalds, Carls Jr.)... If I don't know beforehand that the chicken is gluten free (via a website or personal reply to an email question) unless the restaurant assures me that they only use fruit juices to marinate the chicken in, I don't eat it. It IS difficult to eat out, and it can be discouraging. I am starting to cook more and more at home. There is lots of good info on this forum, and many good people willing to share their experiences and knowledge. Research, research, and Take Care!

Link to comment
Share on other sites
missy'smom Collaborator

One option in situations like this is to go straight to the manager and let them handle your order.

I agree that the chicken could be problematic. I used to get fish tacos at a place here and they were safe but one day I went in and ordered and there was some subtle difference and they didn't quite look like the naked fish that I usually got. I ended up explaining and asking questions and sending them back three times(first time we thought maybe they didn't give me the one that was specially prepared for me, and on the final time they FINALLY told me that their supplier had changed and that they didn't know how they were prepped.

Link to comment
Share on other sites
huevo-no-bueno Apprentice

Thanks for all your helpful responses. I'll have to be a lot more particular with restaurants, and go into more detail for them, even if it is awkward. The only thing I seem to be able to order with no problems is a cheese plate. Yikes!

Link to comment
Share on other sites

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - plumbago replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    2. - trents replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    3. - Suzi374 replied to Suzi374's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    4. - Suzi374 posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Lots of tests

    5. - Peace lily posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      0

      Would like to gain weight


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      121,224
    • Most Online (within 30 mins)
      7,748

    Suzi374
    Newest Member
    Suzi374
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      120.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • plumbago
      I'm also a nurse, but one who has worked in chronic care, and to some extent, it is more satisfying to see patients through to a diagnosis (as opposed to working in the ED), but an accurate diagnosis does not occur not as often as it should! Your posting presents a lot of information. But a couple of things I can respond to. One, celiac disease is diagnosed by endoscopy and biopsy of the duodenum. So, pathology will need to weigh in. It's not diagnosed on gastroscopy. (At least, not as far as I know). Two, did you get blood tests for celiac disease? You will need to be eating gluten in order for those to be accurate. Three, where was the CT angiogram (of what)? I could go on and on, but thought I'd start there.
    • trents
      Was a biopsy done when you had your gastroscopy? Concerning your anemia, are you B12 deficient? It's nearly impossible to get sufficient B12 if you are a vegetarian unless you take supplements.
    • Suzi374
      And I’m anaemic, however I’m also female and vegetarian. I had an iron trans a couple of years ago however it’s starting to dwindle and taking supplements doesn’t seem to work. I can’t seem to absorb it. 
    • Suzi374
      Hi, I attended a neurologist appt last Tuesday, which I nearly cancelled, due to ongoing numbness and tingling in toes to mid foot. One of the first things he asked was ‘are you celiac’. I’m not. He thought all reflexes were ok but at the last minute decided on nerve conduction tests which were low normal. He was a little confused as he felt they should be better and tried a new set of probs, all the time, giving me multiple shocks which were not enjoyable lol. Anyway, he’s now ordered tests for myeloma, and all the vitaminy things that so many of you mention on here, also tests looking for autoimmune responses. I already have Hashimotos. Interestingly, to me, but maybe someone out there can relate or knows more than i do, although I was a nurse, but ED not ‘weird symptoms’  nurse. Anyway back to the interesting thing, I took duramine in 2013 to lose weight which caused a massive panic attack when I stopped taking it and half my hair fell out. I only took it for a week but it was horrible and I regret it. It triggered ongoing panic attacks which are horrendous. So I feel like I’m a bit crazy. Then in 2020 I had this sudden onset of horrible pain when trying to eat a cinnamon roll. It continued and I lost around 20 kgs. I had two gastroscopes and a colonoscopy and they were all normal. I scored a barium swallow and CT angiogram. All normal. The pain subsided a little but I was left with reflux and an awful feeling that I couldn’t get air when I ate some foods. This was not anxiety.  The anxiety was separate and I still maintain this. This was something to do with eating. It was like the air was thick but I wasn’t short of breath. I just had the sensation I was, then it triggered anxiety. Anyway, I had other weird things- couldn’t bend knees to shave legs in shower lol. Knees felt stiff and swollen but they weren’t. Knee WOUld swell up randomly but mri showed minimal issues. A bit of a meniscus degeneration but insignificant. Then the buzzing sensations in my head, the feeling like someone was stabbing me with something sharp. So now, I pre empted his tests, although I don’t think I’m celiac because it should have come up on gastroscopy, I’ve gone off gluten. Since Tuesday last week so 9 days. Since then I don’t appear to be as constipated, I realised I got through today without a nap and I’m not tired, maybe it’s just today and not related but I get very tired normally and sleep straight after work often, I can bend my knees and shave my legs lol, the buzzing vibrating has gone from my head, I had to call and ambulance as my heart decided we were off on a run, but we weren’t running and I’ve been a bit twitchy at bed time when trying to sleep, reflux is improving, I did get the weird suffocating feeling a bit when eating today but not as bad normall. Tingling and numbness still present and I felt like it moved up my legs a bit today but I’m a bit jittery. So I don’t know if it’s celiac disease or a gluten intolerance but I think, and it may be wishful thinking because my symptoms do make life a bit challenging, but maybe I’m feeling better. I don’t feel as cloudy. My thinking feels crisper. Like there’s no buzzing and I’m not fighting to break through the cloudiness now. I hope so much that this may help me feel a bit better moving forward. It would be a miracle as I really have struggled to work and parent and keep the house clean and I’m always anxious and exhausted.  If you get this far, please tell me if you you can relate to any of the above. Oh and tonsils out 5 years ago but before that antibiotics multiple times a year, sometimes intramuscular because they were so bad.  Op was meant to take 30 mins, it took 1.5 hours due to size of them. 
    • Peace lily
      Im still not gaining weight I’m on a gluten free diet . And still having issues with constapation started priobiocs figured it would help been over two weeks . I guess it’s going to be a long road for me .
×
×
  • Create New...