Jump to content
  • You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

I Am Afraid To Eat Out


huevo-no-bueno

Recommended Posts

huevo-no-bueno Apprentice

I am afraid to eat out now. I went to a restaurant and ordered a salad with grilled chicken and crumbled feta cheese. The cheese did not appear to be the pre-crumbled type. I explained (to the waiter, whose first language was obviously not English) that I had an allergy to both wheat and egg. I thought it would be easier to tell him that they were both an allergy because of the language barrier. I told him to make sure these were not in the meal, including the dressing, and clean off the work surface, etc.

By the time I left the restaurant everything was starting to rumble in me and the heartburn and D has continued to this morning. This can't be an egg reaction, because that does different things. I know it isn't the chicken, because I never get this when I fix chicken at home. It is gluten. But where?

I know that restaurants often use pre-made commercial bases in soups, that are gel-like and come in a tub. I wonder if they use something weird to coat chicken and if it comes that way to the restaurant from the supplier? I am wondering how to deal with this. I get this reaction the majority of times I eat out, even with the precautions I take. There's obviously some hidden gluten that is commonly used, or maybe I'm reacting to some sort of other ingredient that is commonly used in restaurants. I'm so discouraged by this.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



home-based-mom Contributor

I'm beginning to think of restaurant dining as playing Russian Roulette with only one chamber empty while going blindfolded through a mine field. Sooner or later you will get sick. :(:ph34r:

My daughter was quite annoyed but I wouldn't let her take me out for Mother's Day. We finally settled on take-out from a near by Mexican hole-in-the-wall, because I do OK with their food.

Sigh. :blink:

LuvMoosic4life Collaborator

yeah eating out sux. Its almost like you are gaurenteed CC. I went out last night to eat and ordered broiled haddock. It was an itailan resturant and every dish comes with some sort of pasta. The nice thing though is when I order the fish there the pasta comes in a seperate bowl and the only other thing on the plate with the fish is fresh itailan style veggies......I didn thave a problem with any of it.... I usually stick to plain broiled stuff when I go out.

ShayFL Enthusiast

broiled,poached and steamed are the best bet. Stick with meat and veggies. I tell them no seasonings of any kind. No coatings/breadings of any kind. No marinaded meats. Just plain meat with salt and pepper. Same with the veggies. I tell them olive oil is o.k.

hippiegirl2001 Newbie

Even frozen chicken which a restaurant purchases can have gluten already added, or else the restaurant may marinate it in something with gluten, such as soy sauce, or a marinade with flavoring from barley, etc... Even grilled chicken at many fast food places which have gluten free options is Not Gluten Free (examples, McDonalds, Carls Jr.)... If I don't know beforehand that the chicken is gluten free (via a website or personal reply to an email question) unless the restaurant assures me that they only use fruit juices to marinate the chicken in, I don't eat it. It IS difficult to eat out, and it can be discouraging. I am starting to cook more and more at home. There is lots of good info on this forum, and many good people willing to share their experiences and knowledge. Research, research, and Take Care!

missy'smom Collaborator

One option in situations like this is to go straight to the manager and let them handle your order.

I agree that the chicken could be problematic. I used to get fish tacos at a place here and they were safe but one day I went in and ordered and there was some subtle difference and they didn't quite look like the naked fish that I usually got. I ended up explaining and asking questions and sending them back three times(first time we thought maybe they didn't give me the one that was specially prepared for me, and on the final time they FINALLY told me that their supplier had changed and that they didn't know how they were prepped.

huevo-no-bueno Apprentice

Thanks for all your helpful responses. I'll have to be a lot more particular with restaurants, and go into more detail for them, even if it is awkward. The only thing I seem to be able to order with no problems is a cheese plate. Yikes!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    2. - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      34

      Pain in the right side of abdomen

    3. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    4. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

    5. - Aretaeus Cappadocia replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      7

      1 Year Elimination Diet journey

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      134,056
    • Most Online (within 30 mins)
      10,442

    Faiga
    Newest Member
    Faiga
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.7k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac disease can have neurological associations, but the better-described ones include gluten ataxia, peripheral neuropathy, headaches or migraine, seizures, cognitive symptoms, and, rarely, cerebral calcifications or white-matter changes. Some studies and case reports describe brain white-matter lesions in people with celiac disease, but these are not specific to celiac disease and can have many other explanations. A frontal lobe lesion could mean many different things depending on the exact wording of the report: a white-matter spot, inflammation, demyelination, a small old stroke, migraine-related change, infection, trauma, vascular change, seizure-related change, tumor-like lesion, artifact, or something that resolved on repeat imaging. The word “transient” usually means it changed or disappeared, which can happen with some inflammatory, seizure-related, migraine-related, vascular, or imaging-artifact situations.  Hopefully they will find nothing serious.
    • knitty kitty
      @Heatherisle, I would feel much less worried if you would insist that the doctors administer high dose thiamine hydrochloride (500mg x 3 daily) for several days, with a banana bag (all eight B vitamins, riboflavin makes it yellow like bananas).  Electrolytes may become unbalanced, so monitoring is needed as well.  Just to rule out Thiamine deficiency, high dose thiamine should be administered for several days.  If no health improvement, look for something else. The symptoms your daughter is showing are seen in Wernickes Encephalopathy caused by Thiamine deficiency.  White spots in the brain including on the frontal lobe are seen in Wernickes Encephalopathy.  Blurred vision, balance problems, changed gait (wider stance to compensate for imbalance), tingling in hands and feet, ascending neuropathy, lower back pain, kidney pain, abdominal pain are all symptoms I have experienced when I had Wernickes.  The damage becomes permanent if not corrected quickly.  Korsakoff Syndrome follows with brain damage that cannot be reversed, and death following.   Doctors are not trained in Nutrition.  Doctors are taught Wernickes Encephalopathy only happens in Alcoholism.  My doctors did not recognize Wernickes Encephalopathy because I did not drink alcohol.  If it walks like a duck... Doctors do not realize that Malabsorption from Celiac Disease can result in severe nutritional deficiency diseases, including Wernickes.  Malabsorption of Celiac Disease affects all the essential nutrients, vitamins and minerals, our bodies need to function properly.  It's rare to have a deficiency in just one vitamin.  B12 Deficiency and Thiamine deficiency go hand in hand.   I had symptoms of deficiencies in many vitamins and minerals because my Celiac Disease was still undiagnosed at that time.  They laughed when I asked to be checked for Celiac Disease.  I was overweight (high calorie malnutrition).  I didn't match their " in the box" thinking.  I didn't match their concept of the wasting away, skin and bones stereotype of Celiac Disease.  My doctors wrote me off as "depressed".  I could feel myself dying.  I trusted what I learned at university about how vitamins work inside the body.  I recognized the symptoms of Wernickes and other nutritional deficiency diseases.  At home, I took 500 mg over the counter thiamine hydrochloride and had health improvement within twenty minutes.  I continued supplementing for months, with thiamine and B vitamins and electrolytes.  I continued to have health improvements.  I did suffer some permanent brain damage.  I have permanent vision problems and optic nerve damage.  Computer screens cause migraines.  I struggle through them to help others.   Ask for Thiamine and an Erythrocyte Transketolace Activity Assay.  This test is more accurate than a blood test for Thiamine level, but both tests take time, during which time permanent damage can be done.  The World Health Organization recommends thiamine administration before test results come back in order to prevent permanent damage.   Trying thiamine hydrochloride is simple and cheap and safe and nontoxic.  If high dose thiamine doesn't work, there's no harm done.  Try thiamine supplementation if only to rule out Thiamine deficiency....while there's still time. References: Thiamine Deficiency and Brain Injury: Neuroanatomical Changes in the Wernicke-Korsakoff Syndrome https://pmc.ncbi.nlm.nih.gov/articles/PMC12535404/ Concomitant Vitamin B1 and Vitamin B12 Deficiency Mimicking Thrombotic Thrombocytopenic Purpura https://pmc.ncbi.nlm.nih.gov/articles/PMC9887457/ Please have ears to hear.
    • Aretaeus Cappadocia
      I don't know about this. Here's how I make kasha: boil water in a pot add the kasha, stir to mix, turn heat down to a gentle simmer for ~10 min, maybe 15, until tender remove from heat and serve There are lots of variations if you wish, like adding salt and butter. One variation that is really tasty, but kind of a pain, is to mix the dry kasha with a beaten raw egg, heat the dry kasha/egg mixture in the pot for a couple of minutes (to coat the kasha and cook the egg), then add boiling water and finish like the "basic" recipe above. I seldom have the patience to do all of that, though.
    • xxnonamexx
      What's the reasoning of washing and rinsing kasha buckwheat for 12 hrs
    • Aretaeus Cappadocia
      I don't clean the kasha. It does take more than a minute but less than half an hour. However I understand the need for efficiency in the morning routine. I am not familiar with the lemon thing. Another one to consider is quinoa (I buy Kirkland, labeled gluten free). It is probably better to rinse the quinoa before cooking. I don't notice it myself but a lot of people don't like unwashed quinoa because of saponins that are removed by a rinse. All of these are reheatable if you want to make a larger amount ahead of time. Also, it may be possible to use the "overnight oats" strategy with some or all of these, but I have to say I never even thought about it until writing this response.
×
×
  • Create New...