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jhow32000

Endocrine Problems

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I am having a few issues:

my hair is falling out majorly

I am having hypoglycemic fits still

I am fatigued all the time

I am cold sensitive

I have no libido

I have weight gain that I can't lose

I have been told this is all related to endocrine problems most likely.

Is anyone else having these problems? What have been some prescribed treatments?

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I had all those problems and more, for me the treatment was the diet, followed very strictly and the addition of some good gluten free vitamins, the most important of those being sublingual B12. Royal Jelly from bees was also helpful for me with energy and hair.

How long have you been gluten free? With your hair loss have you checked your shampoos and such for gluten? Hair loss is pretty common for us, for some it is simply loss because we were so sick, it is common with any severe illness to lose hair in the 3 months following the illness. For others it has an autoimmune aspect and we will see loss whenever we get CC'd or a full glutening. In both cases the hair will usually grow back but it does take a while.

You also may want to have your doc do a vitamin and mineral levels on you, anemia, often see in us, can also be a factor in hair loss but you don't want to supplement iron unless you know you need to as too much is quite toxic.

I don't know how long you have been gluten-free but it does take a while to heal. Hopefully you will get to a point where you are feeling better soon.


Courage does not always roar, sometimes courage is the quiet voice at the end of the day saying

"I will try again tommorrow" (Mary Anne Radmacher)

Diagnosed by Allergist with elimination diet and diagnosis confirmed by GI in 2002

Misdiagnoses for 15 years were IBS-D, ataxia, migraines, anxiety, depression, fibromyalgia, parathesias, arthritis, livedo reticularis, hairloss, premature menopause, osteoporosis, kidney damage, diverticulosis, prediabetes and ulcers, dermatitis herpeformis

All bold resoved or went into remission in time with proper diagnosis of Celiac November 2002

 Gene Test Aug 2007

HLA-DQB1 Molecular analysis, Allele 1 0303

HLA-DQB1 Molecular analysis, Allele 2 0303

Serologic equivalent: HLA-DQ 3,3 (Subtype 9,9)

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Thyroid Test - TSH, Free T3, Free T4 and all antibodies

Ferritin & Iron tests

B12 and MMA

Vit D

Im on Armour, Vit D, B12 and I eat a ton of iron rich foods trying to avoid the supplements. I just retested Tues. and waiting for the results to see where I am with all of it. 6 weeks into the diet. No change yet.


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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I am having a few issues:

my hair is falling out majorly

I am having hypoglycemic fits still

I am fatigued all the time

I am cold sensitive

I have no libido

I have weight gain that I can't lose

I have been told this is all related to endocrine problems most likely.

Is anyone else having these problems? What have been some prescribed treatments?

You have classic, testbook low thyroid symptoms and yes, both adrenal and thyroid problems are very common to Celiac. I have Hashimoto's thyroid and mild adrenal insufficiencies but have them under control. It's very important for you to find a good doctor who really knows how to manage your endocrine system. One who will also go by your symptoms as part of the treatment and not just look at your TSH level. Have the full panel done and probably get your adrenals tested also because they all work together....one affects performance of the other. Once you have been tested, you can make a decision as to which thyroid hormone you want to take. There are natural ones and synthetic but both will do the trick. Good luck!

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I am having a few issues:

my hair is falling out majorly

I am having hypoglycemic fits still

I am fatigued all the time

I am cold sensitive

I have no libido

I have weight gain that I can't lose

I have all those symptoms off and on, except the weight gain (I'm chronically underweight); and have just been diagnosed with Hashimoto's (already diagnosed w/celiac years ago). You got the right advice about what tests to get! Good luck.


Diagnosed Celiac via biopsy '97/Gluten Free ever since

Diagnosed Hashimoto's 04/08

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Im like Di....underweight. Many years ago I had a doctor tell me that I could not possibly be hypothyroid because I was thin and not constipated. Idiot. Sometimes you have to get a second opinion or a third or a fourth. I suffered for 11 years because of some really stupid doctors. So I finally just got all of the necessary tests myself (they dont cost that much), did the research, went to a new doctor armed with all of the information I needed. He Dx hypothyroid and put me on Armour. Dont give up!


GLUTEN FREE 4/4/08. LEGUME/SOY FREE 5/15/08. YEAST FREE. CORN FREE. GRAIN FREE. DAIRY FREE. I am eating all meats, eggs, veggies, fruits, squash, nuts and seeds. I just keep getting better every day. :)

Do not let any of the advice given here substitute for good medical care. Let this forum be a catalyst for research. Find support for any post in here before you believe it to be true. Arm yourself with knowledge. Let your doctor be your assistant. Listen to their advice, but follow your own instincts as well. Miracles are within your reach. You can heal!

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