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Milo Newbie

I have been gluten free for 10 months, in those 10 months I have had one "normal day". My D has always been there, sure I had some improvements but the running to the bathroom never really stopped. :(

So I wanted to get a confirmed diagnosis of Celiac because my doctor did a blood test last December and my anti-bodies for Gliaden came back hightened so she told me to go gluten free. I did, and I did not cheat, I saw some minor improvements but not anything major. Of what I've read on this board the biopsy is the way to confirm the diagnosis so I am scheduled for November 6. My gastro doctor (different from the gliaden lady) told me I had to eat gluten for a while before the test to get an accurate reading. I'm psyched but want to make sure all this is accurate from the experts here on the board.

I have been loving just the past 24 hours of eating all my old favorites but I don't want to do anything that is going to hurt me in the long run but I want the test to be accurate.

Should I just enjoy the gluten and be ready to give it up again when the test results come back?


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msmini14 Enthusiast

Dont go crazy with it, eat like you used too before going gluten-free. And yes it is very important that you consume gluten before these tests are done. My idiot doctor told me to go gluten-free before my tests, what a waste of 500 dollars on my part.

I would enjoy it while it lasts, but as the saying goes.... only in moderation. lol dont eat a large pizza in one sitting, things like that.

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    • Scott Adams
      It sounds like you have an allergy or separate intolerance to quinoa, but there is the slight possibility it was somehow cross-contaminated with wheat, even though it was certified gluten-free.
    • trents
      Unless gluten exposure is happening on a regular basis, it is doubtful that blood antibodies would show up elevated in testing. It takes time for them to build up to detectable levels.
    • Russ H
      HI Nancy, In your first post, you said that you were diagnosed by biopsy and blood test - this is what I was referring to: the blood test is for antibodies that are made during active disease. After a period on a strictly gluten-free diet, the antibodies return to low level. It is a good way of checking for accidental exposure if symptoms persist. If you are reacting to foods that don't contain gluten, you may be reacting to something else. Alternatively, a condition called SIBO is common in people with coeliac disease, where there is an overgrowth of bacteria in the small intestine. This can be tested for with a simple breath test. The main treatment is with a course of antibiotic. Small Intestinal Bacterial Overgrowth (SIBO)
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      I'm not saying this is what you have, but your description reminds me of Morgellons, which are not very well understood. Here is a review from a reputable source. If it seems similar to your experience, you could raise this question with your Dr.  https://my.clevelandclinic.org/health/diseases/morgellons-disease
    • nancydrewandtheceliacclue
      Hi Trent, no dairy. Other than good quality butter. I have been lactose free for years. No corn, sugar, even seasonings and spices. I don't eat out. I cook my own food.
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