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Celiac Odd Happenings

adkinsadam1

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adkinsadam1 Newbie
adkinsadam1
Posted

I was feeling very sick at 8 years old. Went to doctor, diagnosed with irritable bowl, got even worse, misdiagnosed again twice, lost 40 pounds, finally diagnosed by 3rd doctor just before turning ten. He said the 10 years of celiac disease + wheat damaged my intestines so much that I was in constant severe pain and none of my food was being digested (going out looking similar to going in). Went wheat free, still felt horribly. Doc said intestines weren't healing themselves, gave me steroids. I got better. I am now 15 and have been STRICTLY gluten-free for five years, and I have a very severe reaction to gluten, so severe my doctor has said that even touching it could set me off (how, I don't know). Without eating wheat the only thing that has not changed is constant canker sores in my mouth (usually associated with dierrea (how ever you spell it)). I put the 40 pounds back on after getting on gluten-free diet. But now, over the last eight months I rapidly lost nearly 50 pounds. I have no noticeable problems with the disease, but doctors say it is not OK, but I feel fine! Has anybody else experienced this sudden weight loss after being on gluten-free diet?

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Lisa Mentor
Lisa
Posted

Have you recently had an antibody test to make sure you're not getting any gluten in your diet? Could it be that simple?

adkinsadam1 Newbie
adkinsadam1
Posted
  • Author

No. I am positive I am not getting gluten, I would know if I was.

ShayFL Enthusiast
ShayFL
Posted

Rapid unexplained weight loss can be the first sign of diabetes. Since diabetes and Celiac often go hand in hand, ask for a glucose tolerance test and have them test your insulin levels.

SGWhiskers Collaborator
SGWhiskers
Posted

I can't help with the weight loss. At any age, (especially 15), it should be taken very seriously. I hope you get it figured out quickly.

My canker sores seem to come and go with my exposure to gluten and/or dairy. I have a milk allergy and Celiac.

Wishing you well.

SGWHISKERS

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      Anyone else get a lot of upper respiratory infections?

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    • cristiana
      Anyone else get a lot of upper respiratory infections?

      By cristiana · Posted

      Definitely worth speaking to your gastroenterologist about this. My own told me that by using Gaviscon a barrier forms over the contents of the stomach and stops gas and acid irritating the throat.  In fact, he said to me that because I found relief using Gaviscon that was a very clear indicator that reflux was the cause of that particular issue.   A wedge pillow will really help with this - or raising the top bed legs with bricks.
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      I did get the pneumonia vaccine about 4 years ago. I had this amazing allergist who did all those vitamin deficiencies test and told to get that vaccine. Unfortunately she retired.  I haven’t been to an allergist in a few years,  I’m not sure what my levels are now. I did have a pulmonologist who wasn’t concern and said I seemed fine to him that I was young etc. But yes I think I should at the very least get a different opinion. Thank you for your reply 
    • HelloFlowersGoodbyeFlour
      Anyone else get a lot of upper respiratory infections?

      By HelloFlowersGoodbyeFlour · Posted

      Yes I do have acid reflux. I’m not on anything for it at the moment. I sometimes wonder if that’s what it could be because I get heart burn every night. I may revisit my gastrointestinal doctor again. Thanks for the reply  
    • cristiana
      Anyone else get a lot of upper respiratory infections?

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    • trents
      Anyone else get a lot of upper respiratory infections?

      By trents · Posted

      Since initially getting your D checked a few years ago, has it since rebounded to normal levels? Sounds like at some point you got it checked again.
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