Very Very Sensitive To Gluten

[Tsagamer]

Hey everyone,

I was diagnosed in June after suffering with stomach issues all my life. Since then I have been researching like crazy but no one seems to have the same gluten reaction I do. Any significant amount causes violent vomitting, cold sweats, and shaking then a rotten uneasy stomach for days. While seemingly intracable amounts ( cross contamination from keyboards lets say) make me very queazy for days. When I 100% am successful in avoiding gluten I feel better than I ever have. Is anyone else as sensitive as me? Its starting to have serious repercussions at work.

[dilettantesteph]

I don't know if I am as sensitive as you, but I am pretty sensitive. I react to gluten free rice chex which very few people do. When I threw out the flour I did it at arms length with my face turned away and somehow breathed in enough to get sick for 2 weeks. Gluten free oats made me sick for 2 months, but I did eat a whole serving. I put my nose in a container of crumbs once thinking they were gluten free, but they smelled like wheat and I got sick. Not that bad though. It should make you feel somewhat better to know that as I have gotten better at being gluten free and have healed more, my reactions aren't as bad (after about a year). A typical reaction to cross contamination used to put me to bed wanting to die for at least a week. Back when I was eating gluten I would get stuff coming out both ends, cold sweats and all that after what in hindsight was probably a large gluten intake, like a pasta dinner. I used to think it was food poisoning, only it wouldn't happen to the other members of my party. I am looking for work after not being able to for years. I hope I don't have the problems that you are having. What about wearing gloves?

My feeling is that the longer you went undiagnosed, the larger a reaction to gluten you built up.

[beachbel]

Hi, I know how you feel. I have been gluten free for almost 2 years and still test positive because I react to the tiniest cross contamination. I know other celiacs who don't have to be nearly as careful as I do. If you are getting that sick you might want to talk to your doctor. My GI put me on a mild steroid for a few months to calm my immune system down. My GI tract is starting to heal now and my symptoms are controlled. Just a thought. Good luck.