Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rice Dream?


sarahelizabeth

Recommended Posts

sarahelizabeth Contributor

I keep reading comments that Rice Dream has gluten in it... but there website claims its gluten free?? Can someone please clear this up for me?? I am confused!! Open Original Shared Link


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



taweavmo3 Enthusiast

From what I can tell, under the new labeling laws, they are now allowed to claim it is gluten free because the amount of gluten in it (barley malt) is under 20ppm. It is still the same formula as before, with .002% barley malt, which many people seem to react to, including my daughter. Hope that helps clear up a bit of the confusion.

shayesmom Rookie
From what I can tell, under the new labeling laws, they are now allowed to claim it is gluten free because the amount of gluten in it (barley malt) is under 20ppm. It is still the same formula as before, with .002% barley malt, which many people seem to react to, including my daughter. Hope that helps clear up a bit of the confusion.

My daughter reacts to it as well. I find it less frustrating to just avoid the company entirely.

home-based-mom Contributor

For what it's worth, once the new labeling laws are finalized at 20 ppm, the shelves will be full of products such as Rice Dream that can legally claim they are gluten free but really are not. Every processed product you buy you will have to test out for yourself as to whether or not it is safe for you. Label reading with each subsequent purchase may or may not help as formulations (especially those dreaded "natural flavors") could change but not be required to be listed.

taweavmo3 Enthusiast
For what it's worth, once the new labeling laws are finalized at 20 ppm, the shelves will be full of products such as Rice Dream that can legally claim they are gluten free but really are not. Every processed product you buy you will have to test out for yourself as to whether or not it is safe for you. Label reading with each subsequent purchase may or may not help as formulations (especially those dreaded "natural flavors") could change but not be required to be listed.

This is what really worries me. If my daughter has been 100% gluten free for months, with 0 cross contamination, I can tell when she is reacting to a new product. But, once she's had that exposure, her reactions last for so long that I won't be able to tell if she gets cross contaminated with another product during that time. This will make pinpointing the gluten product nearly impossible, especially if I can't even trust the products that are supposedly gluten free. If that makes any sense, lol. I feel safe buying products that are made in gluten free facilities that target the celiac and allergy customer (like Namaste, Enjoy Life, Kinnikinnick, etc). But any other product claiming to be gluten free, that makes regular products as well, I'll have to think twice about buying. I feel like the new labeling laws are going to cut down my mainstream options even more, rather than help matters. I don't know where the 20 ppm rule came from, but clearly it is still too much for some people. And if you have countless products claiming to be gluten free with 20 ppm, frequent exposure would still be enough to cause an auto immune response wouldn't it???

Okay, done ranting, lol. This whole 20 ppm thing just irritates me, since it makes the diet more complicated for us, and the only people it seems to help are the companies who can now slap a gluten free label on their product to attract more customers.

sarahelizabeth Contributor

Hmmmm... I am only using the rice milk for cooking but perhaps I still need to find another alternative. He drinks a specialized elemental formula for his "milk" but I still need something to make him pancakes or waffles. He doesn't eat those very often... actualy only Saturday mornings... but still.

Most of what he eats is naturally gluten-free... fruits and meats... but he does eat some prepackaged labeled gluten-free things. Most of them are Enjoy Life because of his other allergies... its hard to find gluten-free, milk free, soy free, and nut free things. So far we've had no problems with Enjoy Life... has any one else??

Cheri A Contributor

Where's the barfing icon for the 20 ppm? That just makes me mad, too!

Sarah, we haven't had any problems with Enjoy Life stuff, other than the price tag. I buy the chocolate chips a lot, but I usually make cookies and bars from scratch now.

As to the milk, my daughter has a lot of the same allergies. Have you tried Vance's Dari-Free yet? It is a potato-based, sort of sweet milk. I use it in my bread recipe, hot chocolate, etc. It is sweet, so it's not good for savory recipes. I make a roux with chicken stock for savory flavors.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      127,786
    • Most Online (within 30 mins)
      7,748

    Kate827
    Newest Member
    Kate827
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121k
    • Total Posts
      70.4k

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @Manaan2, have you considered the possibility that she might be cross reacting to some food or foods that technically don't contain gluten but whose proteins closely resemble gluten. Chief candidates might be dairy (casein), oats (avenin), soy, corn and eggs. One small study showed that 50% of celiacs react to CMP (Cow's Milk Protein) like they do gluten.
    • Lily Ivy
      Gluten withdrawal is temporary, eat well!!
    • Manaan2
      I realize I'm super late in the game regarding this topic but in case anyone is still reading/commenting on this one-does anyone who is especially sensitive have their personal observations to share regarding Primal Kitchen brand?  My daughter was diagnosed almost 2 years ago with celiac and within 6 months, her follow up labs were normal and a year later vitamin levels significantly improving, but we are still battling GI symptoms; particularly, constipation, so much that she has been on MiraLax every day since she was 3.  We've managed to get her down to a half cap every other day but without that, she continues to have issues (when she has a known, accidental ingestion unfortunately it takes a lot more MiraLax and additional laxatives to help her).  I was searching for something else and found this and am wondering if anyone has any specific comments regarding Primal Kitchen.  I feel like we are so incredibly careful with diet, logging diet and symptoms to look for patterns (we've had multiple dieticians help with this piece as well), not eating out, contacting companies and of course, there is always room for improvement but I'm running out of ideas regarding where her issues could be coming from.  Even if the Primal Kitchen is contributing, I'm sure it's not the only thing contributing but I can't help but think there must be handful of things that are working together and against her.  The ingredients list distilled white vinegar, but also white wine vinegar and balsamic, then "spices" which I'm always cautious about.  However, after contacting the company, I felt more comfortable allowing her to consume their products but over time I've realized that the front-line customer service support people don't always provide the most accurate of information.  Thanks for reading to anyone that does.   
    • Bebee
      Thank you knitty kitty!!  I appreciate your help and knowledge!
    • knitty kitty
      Welcome to the forum, @Bebee, Yes, Celiac Disease has genetic commonalities with MS, hypothyroidism, arthritis, Reynaud, and rosacea.   Usually a gluten challenge is done before endoscopy with biopsies taken,  however I would not recommend a gluten challenge before endoscopy with biopsies for you since you have been gluten free for so long and have so many concurrent autoimmune diseases.   You can still have the endoscopy with biopsy samples taken now.  After several months with dietary changes, you can have another to compare results and check that intestinal health has improved.   You can get a genetic test for Celiac disease which shares genetics with other autoimmune diseases that you have.  Eating gluten is unnecessary for genetic tests. For the rosacea, get checked for SIBO (Small Intestinal Bacterial Overgrowth) that could be causing gastrointestinal symptoms as well as causing skin issues.  Our skin is a reflection of our gastrointestinal health.     Following the Autoimmune Protocol Diet has been helpful in keeping my own rosecea, eczema, and dermatitis herpetiformis and other autoimmune diseases in check.   Be sure to be checked for nutritional deficiencies that occur easily in gluten free and dairy free diets. Keep us posted on your progress! References: Clustering of autoimmune diseases in patients with rosacea https://pubmed.ncbi.nlm.nih.gov/26830864/ And... Celiac disease and risk of microscopic colitis: A nationwide population-based matched cohort study https://pubmed.ncbi.nlm.nih.gov/36939488/
×
×
  • Create New...